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I also weighed myself 3 days ago and I'm 130. Thats normalNormal saline flush for me. I weighed myself again today and I weigh 127. I'm worried that I'm losing muscle mass because of ALS. Although I know going up and down a few pounds (even everyday is normal) I've only had these symptoms in the last month and I really can't say I have weak muscles. But I think I think I have weak legs muscles.
I talked to my GP and he wasn't worried at all. But in all honesty he is useless in most matters. I'm going to see a neruo on my suggestion to him.
Again, the twitching is everywhere - although mostly in my legs. AND I only noticed my legs until after I googled twitching and ALS came up. So I have the (what I hope is percieved muscle weakness) after the twitching.
Have you been tested for Lyme disease? Western blot from IGeneX is the most reliable test--ELISA is worthless.
Do you live in the Great Lakes area? It's endemic for Lyme.
I have Lyme disease and I used to experience the symptoms you are describing. Lyme and its co-infections deplete the body of its magnesium, causing a lot of symptoms, especially twitching.
Since I started taking 600mg/day magnesium glycinate and occasional Epsom salts baths, my arrhytmia is better and I have no more muscle fasciculation. And, of course, I take antibiotics to treat the Lyme.
Good luck!
Alidora
PS: From what I read, most people who develop ALS are in their 40s or 50s...
PPS: If Lyme is left untreated for many years, it can eventually cause ALS, MS, Parkinson's and a host of other auto-immune diseases.
Thanks for your input. I just looked up Lyme disease but it says you would get a circular rash where you were bitten. I never remember having one of those.
I never saw a rash either. It's about 50% of "Lymies" that notice a rash. If the tick bites you on your back or on your scalp, you won't notice it. And there's no pain at the time of the bite, because the tick "numbs" your skin before starting to feed.
The symptoms of Lyme disease are extraordinarily extensive. While you are unlikely to experience all, or even most, it is important to know what might be associated with this multi-symptom disease. If infected, you may experience a few or many of these symptoms and they may come and go.
20 “yes” represents a serious potential and Lyme should be included in diagnostic workup.
The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)
Rash at site of bite; Rashes on other parts of your body; Rash basically circular and spreading out (or generalized); Raised rash, disappearing and recurring; Rash may be hard, hot to touch, itchy, crusty, oozy.
Head & face
Headache, migraine
Pressure in the head
Tingling of nose, cheek, face
Flushing
Twitching of facial or other muscles (motor tics)
Jaw pain or stiffness (TMJ-like problems)
Difficulty chewing, swallowing, speaking
Facial paralysis (Bell's palsy)
Sore throat, swollen glands, phlegm
Runny nose
Sinusitis
Hoarseness or vocal cord problems
Increase in allergy symptoms
Change in smell, taste; smell or taste hallucinations
Unexplained hair loss
Eyes
Double or blurry vision
Oversensitivity to light
Floaters, spots, flashing lights
Phantom images in corner of eyes
Decreased perception of light or color
Vision changes incl. blindness, retinal damage, optic atrophy
Eye pain
Wandering or lazy eye
Drooping eyelid
Swelling around eyes
Red eyes
Conjunctivitis or "pink eye"
Ears
Decreased hearing
Plugged ears
Pain in ears
Ringing, buzzing, tinnitus
Oversensitivity to sounds
Digestive & excretory systems
Diarrhea or constipation
Upset stomach (nausea, vomiting, pain)
GERD (gastroesophageal reflux disease/acid reflux)
Irritable bladder (trouble starting or stopping)
Unexplained weight gain or loss
Loss of appetite
Musculoskeletal system
Bone pain, joint pain, joint swelling, or stiffness
Shifting joint pains
Carpal tunnel syndrome, tennis elbow
Neck is stiff, painful, creaks or cracks
Muscle pain or cramps (fibromyalgia)
Burning sensation in feet
Shin splints
Plantar fasciitis
Drooping shoulders
Poor muscle coordination
Muscle weakness
Loss of muscle tone
Respiratory & circulatory systems
Shortness of breath, can't get full/satisfying breath
Cough
Bronchitis
Chest pain or rib soreness
Night sweats, unexplained chills
Heart palpitations, extra beats or pulse skips (arrhythmia)
Heart blockage, murmur, valve prolapsed, heart attack
Stroke
Swelling or enlargement of heart
Diminished exercise tolerance
Neurologic system
Burning or stabbing sensations in the body
Peripheral neuropathy or partial paralysis
Weakness or paralysis of limbs
Tremors or unexplained shaking
Loss of reflexes
Seizures
White matter lesions
Numbness, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Light-headedness, wooziness, brain fog, fainting
Meningitis (inflammation of the protective membrane around the brain)
Encephalopathy (cognitive impairment from brain involvement)
Encephalomyelitis (inflammation of the brain and spinal cord)
Psychological well-being
Mood swings, irritability
Agitation
Anxiety, panic attacks
Depression
Overemotional reactions, crying easily
Disorientation: getting lost or going to the wrong place
Aggressive behaviour or impulse violence
Obsessive-compulsive behaviour
Bipolar disorder, manic episodes
Schizophrenic-like states
Personality changes
Depersonalization
Increased suspiciousness, paranoia
Hallucinations
Suicidal thoughts
Feeling as if you are losing your mind
Eating disorders, anorexia
Difficulty falling or staying asleep, too much sleep, or insomnia
Cognitive symptoms
Forgetfulness, memory loss (short or long term)
Confusion, difficulty in thinking
Difficulty with concentration, reading, or spelling
Word retrieval problems (can't remember words, stop at mid-sentence)
Dyslexia-type reversals, difficulty with writing
Problems with numbers
Difficulty with speech (slowed, slurred or stammering)
Forgetting how to perform simple task
Attention deficit problems, distractibility
Difficulty with organization and planning
Difficulty with multitasking
Slowed speed of processing
Poor school or work performance
Reproduction & sexuality
Loss of sex drive
Sexual dysfunction
Unexplained menstrual pain, irregularity
Unexplained breast pain, discharge
Extreme PMS symptoms
Endometriosis
Miscarriage, stillbirth, premature birth, neonatal death, congenital Lyme disease (passes from mother to foetus)
Testicular or pelvic pain
General well-being
Extreme fatigue, tiredness, exhaustion, poor stamina (Chronic Fatigue Syndrome)
Unexplained fevers (high or low grade)
Low body temperature
Narcolepsy, sleep apnea
Swollen glands, swollen/painful lymph nodes
Continual infections (sinus, kidney, bladder, eye, ear, etc.)
Chemical sensitivities
Symptoms seem to change, come and go; pain migrates to different body parts
Early on, experienced a "flu-like" illness, possibly not feeling well since
Exaggerated symptoms or worse hangover from alcohol
Increased motion sickness
Decreased interest in play (children)
Do you live in the Great Lakes area? It's endemic for Lyme.
I have Lyme disease and I used to experience the symptoms you are describing. Lyme and its co-infections deplete the body of its magnesium, causing a lot of symptoms, especially twitching.
Since I started taking 600mg/day magnesium glycinate and occasional Epsom salts baths, my arrhytmia is better and I have no more muscle fasciculation. And, of course, I take antibiotics to treat the Lyme.
Good luck!
Alidora
PS: From what I read, most people who develop ALS are in their 40s or 50s...
PPS: If Lyme is left untreated for many years, it can eventually cause ALS, MS, Parkinson's and a host of other auto-immune diseases.
C.
The symptoms of Lyme disease are extraordinarily extensive. While you are unlikely to experience all, or even most, it is important to know what might be associated with this multi-symptom disease. If infected, you may experience a few or many of these symptoms and they may come and go.
20 “yes” represents a serious potential and Lyme should be included in diagnostic workup.
The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)
Rash at site of bite; Rashes on other parts of your body; Rash basically circular and spreading out (or generalized); Raised rash, disappearing and recurring; Rash may be hard, hot to touch, itchy, crusty, oozy.
Head & face
Headache, migraine
Pressure in the head
Tingling of nose, cheek, face
Flushing
Twitching of facial or other muscles (motor tics)
Jaw pain or stiffness (TMJ-like problems)
Difficulty chewing, swallowing, speaking
Facial paralysis (Bell's palsy)
Sore throat, swollen glands, phlegm
Runny nose
Sinusitis
Hoarseness or vocal cord problems
Increase in allergy symptoms
Change in smell, taste; smell or taste hallucinations
Unexplained hair loss
Eyes
Double or blurry vision
Oversensitivity to light
Floaters, spots, flashing lights
Phantom images in corner of eyes
Decreased perception of light or color
Vision changes incl. blindness, retinal damage, optic atrophy
Eye pain
Wandering or lazy eye
Drooping eyelid
Swelling around eyes
Red eyes
Conjunctivitis or "pink eye"
Ears
Decreased hearing
Plugged ears
Pain in ears
Ringing, buzzing, tinnitus
Oversensitivity to sounds
Digestive & excretory systems
Diarrhea or constipation
Upset stomach (nausea, vomiting, pain)
GERD (gastroesophageal reflux disease/acid reflux)
Irritable bladder (trouble starting or stopping)
Unexplained weight gain or loss
Loss of appetite
Musculoskeletal system
Bone pain, joint pain, joint swelling, or stiffness
Shifting joint pains
Carpal tunnel syndrome, tennis elbow
Neck is stiff, painful, creaks or cracks
Muscle pain or cramps (fibromyalgia)
Burning sensation in feet
Shin splints
Plantar fasciitis
Drooping shoulders
Poor muscle coordination
Muscle weakness
Loss of muscle tone
Respiratory & circulatory systems
Shortness of breath, can't get full/satisfying breath
Cough
Bronchitis
Chest pain or rib soreness
Night sweats, unexplained chills
Heart palpitations, extra beats or pulse skips (arrhythmia)
Heart blockage, murmur, valve prolapsed, heart attack
Stroke
Swelling or enlargement of heart
Diminished exercise tolerance
Neurologic system
Burning or stabbing sensations in the body
Peripheral neuropathy or partial paralysis
Weakness or paralysis of limbs
Tremors or unexplained shaking
Loss of reflexes
Seizures
White matter lesions
Numbness, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Light-headedness, wooziness, brain fog, fainting
Meningitis (inflammation of the protective membrane around the brain)
Encephalopathy (cognitive impairment from brain involvement)
Encephalomyelitis (inflammation of the brain and spinal cord)
Psychological well-being
Mood swings, irritability
Agitation
Anxiety, panic attacks
Depression
Overemotional reactions, crying easily
Disorientation: getting lost or going to the wrong place
Aggressive behaviour or impulse violence
Obsessive-compulsive behaviour
Bipolar disorder, manic episodes
Schizophrenic-like states
Personality changes
Depersonalization
Increased suspiciousness, paranoia
Hallucinations
Suicidal thoughts
Feeling as if you are losing your mind
Eating disorders, anorexia
Difficulty falling or staying asleep, too much sleep, or insomnia
Cognitive symptoms
Forgetfulness, memory loss (short or long term)
Confusion, difficulty in thinking
Difficulty with concentration, reading, or spelling
Word retrieval problems (can't remember words, stop at mid-sentence)
Dyslexia-type reversals, difficulty with writing
Problems with numbers
Difficulty with speech (slowed, slurred or stammering)
Forgetting how to perform simple task
Attention deficit problems, distractibility
Difficulty with organization and planning
Difficulty with multitasking
Slowed speed of processing
Poor school or work performance
Reproduction & sexuality
Loss of sex drive
Sexual dysfunction
Unexplained menstrual pain, irregularity
Unexplained breast pain, discharge
Extreme PMS symptoms
Endometriosis
Miscarriage, stillbirth, premature birth, neonatal death, congenital Lyme disease (passes from mother to foetus)
Testicular or pelvic pain
General well-being
Extreme fatigue, tiredness, exhaustion, poor stamina (Chronic Fatigue Syndrome)
Unexplained fevers (high or low grade)
Low body temperature
Narcolepsy, sleep apnea
Swollen glands, swollen/painful lymph nodes
Continual infections (sinus, kidney, bladder, eye, ear, etc.)
Chemical sensitivities
Symptoms seem to change, come and go; pain migrates to different body parts
Early on, experienced a "flu-like" illness, possibly not feeling well since
Exaggerated symptoms or worse hangover from alcohol
Increased motion sickness
Decreased interest in play (children)
Skin problems
Livedo reticularis
Benign tumor-like nodules
Acrodermatitis Chronica Atrophicans
Erethyma Migrans (rash)
Other organ problems
Liver inflammation
Enlarged or tender spleen
Dysfunction of the thyroid (under or over active)
Bladder & kidney problems (including bed wetting)
****************************************************
Some of the diseases Lyme symptoms may mimic include:
Multiple Sclerosis
Lou Gehrig’s Disease (ALS)
Fibromyalgia
Chronic Fatigue Syndrome
Systemic Lupus
Rheumatoid Arthritis
Parkinson’s
Guillain-Barré Syndrome
Alzheimer’s
Attention Deficit Disorder
Autism
Infectious Mononucleosis