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Going Insane and feel i might have an MND or a serious illness

Dear All,

I have been going through a tough time for the past 4 months, my journey downwards started when i got a eye infection twice in a span of 1 month and my eye doctor suggested that i might have an auto immune disorder due to which he suggested i go and get a full health check to be sure, i went in for a full health check during which they did not find anything wrong with me other than the fact that i had gallstones which was totally unrelated but an added headache for me, then came the feeling of heaviness in my arms which started to bother me and pushed me to go see a neurologist, he did all the standard strength test and everything seemed fine and sent me on my way, the symptoms however didn't improve and next came the twitching, not in one particular place but all over my body, at first they were mild but with time they have gotten worse and certain parts of my body like my left shoulder, hands and feet, knees etc twitch more than the rest of my body, there's also muscle aches and pains that come and go, i also feel that i might have gotten weaker than i was 6 months ago, even though its not fully evident as i can still function the way i used to but i do feel that things i could do easily back then are a bit more challenging now. There's also the occasional swallowing problems which i feel might be related to whats going on or totally unrelated and being caused by my acid reflux for which i have been taking proton pump medication on and off for a few months. Now during all this time i have seen various doctors and atleast 4 different neuro's, i had an MRI around 2 months ago which was normal, had an EMG ( toe to shoulder at various points on left side) and Nerve conduction test ( full body ) came back normal a month and a half ago, before that i had my blood work done ( ANA profile etc ) came back normal. Seems like im getting worse though in the past month, arms hurt and feel weaker, hands feel weaker as well and palms hurt at times and the skin seems thinner, i even feel i might have atrophy in certain muscles such as my hands but can't be sure because at this point the paranoia has taken over and whether or not i have a serious problem, i have convinced myself that i do, something on the lines of ALS, MS or and MND. There's other symptoms as well such as sleeping issues, i wake up a few times at night, my hands and arms fall asleep and get numb at times, feel like i might even have a case of Carpal tunnel, cant think straight, even stutter or slur words but not often. The last thing my Neuro told me was that if i don't feel better i can do another EMG in around 6 months and said nothing is ever 100%, that being said it made everything even worse as before i assumed that with a clean EMG usually you can rule out an MND as EMG's can catch problems much before the symptoms even appear. I would really appreciate any feed or advice on what you think might be going on, or if there is any other conditions that could mimic whats going on.

Thanks
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Avatar universal
EMGs usually catch ALS/MND long before symptoms appear.
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Avatar universal
I cant say for sure but usually ALS comes with the clinical weakness first. It means you feel like you have full strength and when you try to walk ... you fall because one of the legs or both fails to hold you. Its the same with the hands... It is usually how ALS works but not always. Personally I would say that you dont have ALS...
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