ALS COMMUNITY
Help please!! PAINFULL eye twiching, Full body Musle fasciculation, diminished s...

Help please!! PAINFULL eye twiching, Full body Musle fasciculation, diminished smell..........

Please provide reccomendations/suggestions. For the last 8 months I have experianced some disturbing symptoms, i.e., full body fasciucaltions, eye twiching (new onset 5 months long) diminished smell, shoulder jerks, back twisting (both voluntary) and a runny nose.   In addition to these symptoms I have a burning senstation inside the right of my neck and behind my righ eyeball with pressure in my right brains that has been constant for the past three months.  My questions are:

I.  what do these symptoms sound like?
II.  if I was dx with tourettes sydrome as a teenager (now 33) is it reasonable to suspect the onset to huningtons disease i.e., non familar type as I am 100% apathetic and seem mentally slower. (below my baseline, slow recall etc.) and keep waking up with my teeth clenched with a grimace while shaking my feet (from the ankle down) left to right rapidly like penguin.  This lasts about thirty seconds when I wake up in the middle of the night or right when I wake up.
Also, the doctors, (2 )neurologists (reccomended by my attending physicain)ran all types of testing which came back normal and provided me with no dx with the exception of one nero who confirmed tourettes (saw eye blinking and shoulder shrug) while the other dismissed it.  The tests  they ordered where full blood work
(lyme etc) emg, Spine and brain and spine MRI and CT's with and without contrast and allergy tests.    

PLEASE provide any insight.  Thanks for your time and help!!!
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Give that these symptoms do not sound like ALS, and that your tests came back normal.

I'd say don't worry about ALS.
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Avatar_n_tn
It sounds like you could have an onset of some neurological disorder and or medical condition.  A DX of somatoform disorder can not be considered until after two years e.g., no signs of illness/disease.  Your post did not seem to suggest you were worried about ALS.  I wish you the best however know onset of diseases/disorders often go undiagnosed for years until the symptoms are so obvious the average person would know something is not right.  The brain is bizarre and unless you are you-the pain and symptoms you experience can never be understood by even the most well versed medical professional(s).  Keep in mind only you are your best advocate. Best wishes!
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