Help so scared I have ALS....so lost

[Bigjoe1969]

I'm scared I have ALS....Symptoms stated 7 years ago headaches, fatigue, and vision changes. In February
Let me be more specific:
Symptoms that began 2011:
1. Bad headaches sometimes 4 to 7 times a week.
2. Lump feeling in throat would last a couple of weeks then go away for a month or two.
3. Vision problems at times blurry.
4. Extreme fatigue.
Year 2013:
Bone, joint, muscle aches.come and go but especially in mornings.
Lower back pain.comes and goes
Lower legs calf area on both legs would feel numb at times come and go.
Bad tennis elbow diagnosed that lasted for 6 months that went away.
Year 2015
Muscle twitches or spasm that come and go especially in upper legs, and on biceps on both arms predominately on right and at times wake me from sleep. But stop if I push on change limb elevation. Come and go.
Arms fall asleep as if I lose circulation when sleeping. Atleast 3 to 4 times a week.
Nausea especially in mornings but will come and go.
Most symptoms come and go but most of time together with other symptoms.
February 2017:
lump feeling in throat back never gone away getting worse more intense bothers me alot constantly drinking or clearing throat to try and help this.
Extremely dry throat and mouth, with itchy scratchy throat.
Light electronic shock like sensations that are in hand and legs happened several times.
Weird chest pains feel like sharp pains, sometimes accompanied by difficulty breathing.
I've been to 3 neurologist, 2 rheumatologist, 1 nephrologist.
Had 3 MRI'S first in 2013, 2015, and 2016 with and without contrast, EMG done by Baylor college of medicine 2015 and one by VA in April 2016 both good, had tons of Labs. Dexterity good, strength good, tongue function normal, can still walk on tip toes or heels. Normal routine just lasted 8 hours coaching a track meet in houston heat. Nothing diagnosed pissed cause they say ANXIETY but nobody in family has ever had anxiety. But first they checked me for HIV, then cancer, now they are not sure. So lost having bad thoughts please people Please help worried sick lost...

[Red_Star]

I had some of these symptoms myself from vitamin B12 malabsorption due to autoimmune pernicious anaemia in my case. I had to diagnose myself as no doctor could figure it out. Something to check out at any rate. :)

An excerpt from the article - B12 deficiency: a silent epidemic with serious consequences" by Chris Kresser...

"Why is B12 deficiency so under-diagnosed?

B12 deficiency is often missed for two reasons. First, it’s not routinely tested by most physicians. Second, the low end of the laboratory reference range is too low. This is why most studies underestimate true levels of deficiency. Many B12 deficient people have so-called “normal” levels of B12.

Yet it is well-established in the scientific literature that people with B12 levels between 200 pg/mL and 350 pg/mL – levels considered “normal” in the U.S. – have clear B12 deficiency symptoms. Experts who specialize in the diagnosis and treatment of B12 deficiency, like Sally Pacholok R.N. and Jeffery Stewart D.O., suggest treating all patients that are symptomatic and have B12 levels less than 450 pg/mL. They also recommend treating patients with normal B12, but elevated urinary methylmalonic acid (MMA), homocysteine and/or holotranscobalamin (other markers of B12 deficiency)."