ALS COMMUNITY
Just wait for atrophy??

Just wait for atrophy??

I'm a 44 yr old female and have been working with a neurologist and gastroenterologist for 4 months due to my severe fatigue, strange sensations, untreatable depression (with bouts of uncontrollable crying), balance problems, headaches, blurry vision, tongue fasciculations, muscle cramps, slow swallowing, and aspiration of liquids.  All blood work has been normal, as well as the MRI and EMG.  Barium swallow study was positive for dysphagia.  Both doctors are treating this as an unidentifiable neurologic problem, which I greatly appreciate.  Neither man thinks this is "just stress" and they both believe that I need to wait for the next symptom, specifically muscle atrophy.  

Is there anything else that can be tested in the meantime to rule out or definitively diagnose ALS?  Would an EMG of the tongue provide any extra information?  On a side note, my mother was diagnosed with MS at 48 yrs of age and I am truly hoping for that lesser of two evils.

Any help or advice would be appreciated.  
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There is no marker for ALS as of yet. They do mri's and emg's to rule out other diseases such as ms. Your physicians are being very cautious which is a good thing. It took about 6 months for my doctors to come up with my diagnosis of ALS. I've now had it for abut a year and a half.I doubt an MRI of the tongue would provide an answer. If it were MS lesions should've shown on the MRI's. But there are other possible causes of your symptons. Sounds like you have very good doctors and as hard as it is be patient and trust your physicians. I would guess at some point they may do a spinal tap. Be patient, hang in there and praying has helped me fight depression. I will  pray for you that it turns out to be something treatable.
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