ALS Community
Misdiagnosed?
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This patient support community is for discussions relating to Amyotrophic Lateral Sclerosis (ALS).

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Misdiagnosed?

My doctor says it's related to my fibromyalgia. I was diagnosed with fibromyalgia in 2003 and AML (Acute Mylogenous Leukemia) in 2008 (40mo remission). Over the past 6 mo or so I've had worsening symptoms with a gradual onset of weakness and fatigue in my arms, followed by muscle twitching in my right hand, and cramping in the arms and right hand. I have also noticed my right forearm, wrist and thumb are now considerably smaller than my left (I am right handed). My question is could there be something else going on such as ALS or MS or is really just related to fibro?
My maternal aunt died of ALS in 2010, 10 years after being treated for breast cancer. Is there a possible correlation?
Thank you in advance for reading.
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Update - heaviness, weakness and fatigue in arms worsening; sensation of tremors and/or vibration in arms.; right hand weakness increasing, trouble with fine motor tasks; noticeable muscle loss in right wrist and thumb;      heaviness and fatigue in legs mainly when climbing stairs; managed to break left foot 5th metatarsal coming down stairs (I didn't fall, my foot didn't flex correctly causing the foot to drop and land wrong, toes first).
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I forgot to mention that I get unexplained goosebumps throughout the day, sometime affecting only one or two areas and other time affecting the entire body including the scalp.  
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Hi Klemery,

I´ve got these strange goosebumps on very strange places, including part of the scalp. Also I have this heavy feeling in my right arm on and off. Tingling all over, sometimes worse on right foot, or hand and sometimes left side. Muscle twiching all over and all kinds of other stuff.

I would think ALS would happen more quickly, but I´m not sure though. Do you feel that your muscles are that weak so if a doctor would do the strenght test (let you pull against him) on your arms/hand or legs, would you not be able to hold possision? Sorry for my English! I´m just wondering for myself also, because I feel weaker but the doctor would not feel it with this test. I hope you get this figured soon, I´m going to neuro next week, have not seen him since Nov, so I´m hoping the same for me :)

My best,
Dagun  
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