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I am a 36-year-old femaleCondoms Female condoms Female sexual dysfunction who up until last Feb was healthy and exercised 7 days a week. Went into renalAcute kidney failure Addison’s disease Adrenal gland biopsy Adrenalectomy Cancer - renal pelvis or ureter Catecholamines - blood Chronic renal failure Dialysis End-stage kidney disease Kidney diet - dialysis patients Kidney stones failure 2/14/09 for no reason. That resolved and I had my gallbadder removed in May 2009. At the end of June, I thought I developed bilateral shinShin splints splints from trying to get back into exercising as everytime I did, both calves hurt and hipsHip joint replacement Hip pain and buttocks as well. At the end of June had horrbible bilateral calf pain, which I went to the ER for. They said I had hyperreflexia, positive Hoffman and clonusRestless leg syndrome. From that point until now, I had had an MRI of my brain (normalNormal saline flush) MRIs of my back showing cervical bulging, herniations indenting cord at T5-6 and T2-3 with L5-S1 bulge with annular tear. I also have had 4 EMG/NCVs with the first one on July 2, 2009 showing mild right carpal tunnel, the second on July 16 showing only polyphasic with normal motor recruitment in extensor hallucis longus. The dr said it was consistent with mild L5 radiculopathy. The thrid was doen at John hopkins on 07/28/09 of three extremities was normal. Finally The fourth done Sept 1 of three extremities and was normal. I also had skin biospy for neuropathy and spinal tap, which again were normal. All blood work is normal.
During this whole ordeal the pain I had in my calves had moved up my body with severe bilateral leg burning and tingling to the point I thought I would go in sane. I then developed horrible burning groin and rectal pain with pain on bilateral buttocks and underneath. Also have diminished sresation when having to use bathroom. Toes go numb and tingling when I sit at all. For over the last 2 months I have had widespread muscles twitches in legs, feet, hands, face, back, chin arms and once in a while in abdomen. My hands seem very stiff and neck is very sore. I think I see atrophy in my feet and hand, but am not sure. I have seen 3 neurologists who said I dont have ALS but I dont believe it. I am obsessed with this fatal disease and with my symptoms getting worse I am terrified. I also saw 4 surgeons who says the leg symptoms could be from the T5-6 herniation but that wouldnt explain the arms. That surgery alone is horrid! In addition I will have facial tingling and it will feel tight.
I know the say ALS is not sensory and I try to keep that in mind as this exacerabation started with the bilateral pain pain. When flex my feet I feel pins and needles in big toes. Sometimes have pins and needles in feet on bottom when I walk. I am going to go to the Mayo clinic because I dont know where to turn to get a diagnosis. Does this sound like ALS? Or does it sound like my back? I had aches and pains before and I remember that several months before this I felt like I couldnt get my legs stretched and muscles were tight, but I thought it was from exercising. MS has been ruled out.
I am a single mom of 2 and this has been the worst 3 months of my lief. I am scared to death I am dying of ALS and it is just too early for it to show on EMG. Any advice please.