Pretty sure this is not ALS but need some feedback

[morrtl]

Excited to meet others that are experiencing frustration.  I am a 49 year old female.  I have been searching for possible answers on the web and in office visits for approximately 5 months.  I have some kind of nerve and muscle problem for just over a year,  that has worsened in the last 6 weeks.  It began with disruptive muscle tiredness and cramping, only in my legs at first, the right leg being the worst.  It has progressed to constant never ending muscle twitching and rippling in my legs, feet, arms, and occasionally in my abdominal and rib muscles.   I now have severe cramps after a very vigorous episodes of these twitches and rippling areas.  It is scary when this happens in my lower ribs as it is hard to breath.  I have also visually and literally lost muscle mass in my right leg and it is weakened and has affected my normal gait.  I am also experiencing a burning skin sensation on my right leg and left arm skin.  I have also had muscle quivering and sweating episodes that can occur at anytime, but not necessarily at the time of the painful cramping.  Last week I awoke my husband as the twitching at 3am was visually unbelievable.  Both of my entire legs and feet were twitching and rippling about a 1000 times a minute which resulted in severe muscle cramps.  I cannot stop this no matter what I try and happens about once a week.  I have been reading about neuromuscular problems hoping to figure out where I can go for help.  My GP says he has no idea what to do for me other than referring me to U of M neurologists.  Do you have any suggestions where to start looking for answers?

Thanks and can't wait for some guidance through this travesty of fears and emotions.

[dib1968]

hi ihave asmilar problem personaly i believe that i have a sides affects of diovan , i suggest that you check all sides affects of your medications if you are on

[ewford]

I think you have a chronic intracellular bacterial infection.  Sleep disorders, hyperventilating, achiness, joint and muscle pain, fasticulations, feeling of a UTI infection,  NO STANDARD MEDICAL DOCTOR IS GONNA FIGURE THIS OUT< NOT EVEN AN INFECTIOUS /NEUROLOGIST.  I think it's either Lymes or Mycoplasa infection . mycoplasmas are as small as viruses and lack a cell wall, so they invade your cells and replicate.  Do you feel kinda OK for a few days, then feel like total CRAP on another?  You need to seriously consider my opinion.  Lymes is denied as chronic and you will be labeled a hypochondriac.  He also was not taught about Mycoplasmas in med school.( or at least infectious mycoplasmas)

Lyme disease is a VERY complicated disease as it has coinfecions of Bartonella, Babesia, Human Granuloma Ehrlichia and Mycoplasmas.  If you have pain in your ankles, feet, chronic headaches, It is usually a Bartonella sign.  Babesia causes air hunger, retching (feeling of throwing up), headaches, flu like symptoms, it also causes the red blood cells to swell up so they cannot pass through the capillaries in your brain, hands, feet and skin.  Borrelia Burgdeferi (Lymes bacteria) causes all sorts of symptoms such as headaches, facial ticks, muscle fasticulations, irritable bowell, CFS, symptoms of MS, ALS, Lupus, Hashimotos, Graves, etc.

  I would seriously check out   IMMED    www (dot) immed (dot) org  and look at Autoimmune illness or fatigueing illnesses.

  Does your throat hurt, neck stiffness, cracking in neck, sensativaties to light, sound, irratability, bouts of crying, endometriosis or hysterectomy because of cysts, muscle and joint pain that travels from day to day?

  Contact ILADS and find a doctor near you that treats chronic bacterial infections.  What happens is the Mycoplasma or Borrelia suppress your immune system, all latent viruses re-emerge ( HSV1&2, HHV 5, 6, cytomegalo virus, Enteroviruses, etc) and you become chronically ill.  The T4 helper cells are dissabled and stop looking for cancerous tissue, the macrophages stop working causing the immune system to stop "cleaning up" fungal infections so you now have a chronic intracellular bacterial infection, viral infections AND out of control fungal infections.

  Dr Garth Nicolson on the Autoimmune Expert page would be your best bet to get cured.  Pay the $ to get an answer from him.  It is worth it.  He is truly THE expert (Nobel Prize nominee, absolutely brilliant Cellular Patholigist. .

[Dian_na]

James is absolutly wrong wrong wrong You need to see a neurologist perferably at an ALS clinic to rule out a number of neuro problems, if you need to see a shrink they will tell you..

[james2012]

From an experience, go and see a shrink and get some pills. I was given Clonex and almost immediately it helped me with my cramping and fasciculations. Anyway, go see a doctor too - you don`t need to kepp on living in fear