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This patient support community is for discussions relating to Amyotrophic Lateral Sclerosis (ALS).

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als

i am 31 years old,i have ALS,i m from iran,i need help,plz help me...
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Avatar_f_tn
So sorry to hear of your diagnosis, I too have ALS, just diagnosis in November. I will pray for you to The Father in Heaven for He is our strength, savior and healer.
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Avatar_m_tn
sorry for your diagnosis i have lost a lot of great family to that disease and its not a good one but god has a way to bring us all home and i m very sorry if this doesnt help you i know its very hard to dill with i just pray that you can make it right with god love to see you in heaven with me and i know your scared i just started having a lot of heath problems and just wating any day to go home but iam only 25 and all i can do pray and be thankful for every day and i really hope you the best and ill pray for you if you say its okay sorry i cant help more than that i really wish i could best wishes my new friend
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Avatar_m_tn
Something natural for you to do, to help your body recover from ALS. Do this pranayam for 30 minutes, twice a day, daily. The extra oxygen going into the left and right brain will improve the brain cells and in turn slowly get your muscles to work. Continue this pranayam until you are better (more than 6 months) and then do 15 minutes daily for life.
At some point please come back to report your progress.
Build up your timing gradually.If you feel tired or dizzy, stop and resume after one minute.
Anulom Vilom pranayam –
Close your right nostril with thumb and deep breath-in through left nostril  
then – close left nostril with two fingers and breath-out through right nostril  
then -keeping the left nostril closed  deep breath-in through right nostril
then - close your right nostril with thumb and breath-out through left nostril.
This is one cycle of anulom vilom.
Repeat this cycle for 15 to 30  minutes twice a day.
Children under 15 years – do 5 to 10 minutes twice a day.
You can do this before breakfast/lunch/dinner or before bedtime or in bed.Remember to take deep long breaths into the lungs.You can do this while sitting on floor or chair or lying in bed.
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Avatar_f_tn
I have an ear that was diagnosed with a benign tumor when i was around 8 or 9 years old. During surgery, the surgeon discovered a long root system from this tumor and had to extract so much tissue that he removed a tiny piece of skin tissue from my thigh to graft where the hole was. My eardrum protrudes higher than the one in my normal ear. The family jokes that I can hear dog whistles since that ear is very sensitive to high pitches so anyone can imagine my discomfort whenever there is a weather alert or broadcast systems check on the radio or tv. That ear also hallmarks an oncoming health issue such as a head cold or sinus or flu. The problem at hand is it is almost constantly retaining fluid and the result is ringing to roaring in my ears, sinus symptoms such as that pressure and headache we all know so well, and it affects the nodes and tonsil on that side and neck aches including sensitivity to light and sound. I have kicked around the idea that perhaps if a shunt or stint were surgically placed in one or both ears as needed, would it help and is it recommended at my age? I am in my 40s. One more thing to mention is my childhood surgeon mentioned to my parents that if that tumor were ever to return then it would be in my middle ear and gave them symptoms to watch for but they have forgotten what those symptoms were before they could relay them to me as an adult later. btw those crazy little breathing exercises that hava posted seems to offer some relief from the migraine I have now had for 8 days today. I suspect it is my ear and sinuses working together to cause me discomfort so I wanted to just mention this hoping it can offer some help and hopefully to get some advice as well. As for everyone who has suffered weeks and months to years I have a question...could it be more than one problem going on here? Heart problems, kidney problems, liver and the overlooked spleen and adrenal glands can easily cause headaches as well as anemia and food alergies (allergies). Perhaps the headache and ringing are telling you there is something somewhere else going on that doesn't have a symptom so it is creating one somewhere else where you would notice? The body is immensely complex and if your doctor doesn't know or take you seriously then get another and another and ask these questions. It may not be your head at all but somewhere else that is ringing the warning bell to hunt down the real problem .  Good luck!
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