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Cervical fusions are less successful.
I'm sure he has lots to add.
The sad thing is it's my wife's B-day today. I wish I wasn't a broken down Hubby. I hate that feeling inside.
Chezz
levels damaged.S1 if you don't know is the tailbone level.
As I told you before I was in a body brace for 18 months.No sitting at all.I could stand or laying flat,it was a ***** not
to be able to sit for a year and a half.But fusion was my only choice.I had 3 surgeries prior to my fusion to releave siatic (sciatic) pain but it didn't work.But please and I can't stress enough do not let an orthopedic surgeon do fusion.That's the job of a neurosurgeon.As I told you before my wife works for one of the
best neurosugeons in the country and he is an expect on back fusion and my wife has told me several horror stories of ortho's
doing really bad jobs on the spine.But I think you are a very smart person and I am sure you will reseach the hell out of this before you let anyone cut on you,but yes fusion does work.Good luck Chezz,I know you are tired of this pain,I know it all to well.
bmac
so we could fish around it.Just a little fusion humor.I hope that sucker is now a piece of rusted metal and plastic.
But I did tie dog food on it and I hope someone caught a big fish off of it.Hang in there Chezz,if fusion is nessasary
it will help alot.
bmac
After i herniated my disc the first time(playing hockey), it was hell. This is the time when it sequestered. Well, i read every book, trying to satisfy my underlying fear about having or not having surgery. Obviously this preceeded my mri, etc.
After i found out that surgery was a last option(because after one, your spine will never quite be the same...comprimised), and that it is only required in a very small percentage of people--like 1-2%, if i remeber. Well, i get my mri results, and the Ortho tells me i'm a part of that small percentage and require surgery. Scared shitless after that.
But, I'll never forget as long as i live, waking up post-op and not having that horrific torn hamstring feel...sciatica.
Anyways, i guess i'm just trying to reassure you, and believe me i know how invassive the procedure is...i oredered the surgery on video from the Learning Channel. Take Care
percs mentioned is very good.It will explain it all to ya!But do get a second opinion just for your sanity.I did and they both agreed fusion was the right thing for me.
bmac
Good morning, still snowing like a MFer up here....
Where on the west coast are you? I live in the Bay Area.
Ah, fusion. I'm in the same boat as you. My latest MRI report came back and my Doc has referred me to the surgeons, telling me that fusion is my best option. I agreed to talk to the surgeons, but am VERY doubtful that I'll agree to fusion, despite the pain. I've talked to too many people who have had fusion and still have pain.
What I"m really interested in is artificial disk. The FDA trials are going on right now. St. Mary's hospital, Dr. Zimmerman, in San Francisco, is part of the clinical trials. They've been doing them in Europe for almost 20 years, rather than torturing folks with fusion. My HMO is not part of the trials, but they might be willing to refer me to the trials. I've spoken to a few people who have had it done and they are all doing fine and out of pain.
I'm not saying fusion is all bad, just that I've heard very few true sucess stories, and even my spine doc told me that it usually means more surgery a few years later, due to the pressure it puts on other parts of the spine.
love,
WW
If I get any surgery done it won't be here. Most likely Hawaii. And it will be done by a neuro. Most likely the same team I had last time. That is when they said to wait since it wasn't acute and I was so young(25).
The new test I am getting is a CT enhanced myelogram. This will help to better see how bad it is. I get it on Monday.
Chezz
shuts down.It is so funny to watch us try and get around while
snowing.You would love it.It is 65 here and rainy but thanks again for the coooollll weather.It is wonderful.I hope Chezz doesn't wait around on this one.My wife tells me stories all the time about this back stuff and I have watched many operations she has done over the past few years and things have come a long way since I had mine in feb 1992.In these 10 years I haven't had one siatic (sciatic) pain since my fusion.So I guess it was successful.
been there done that,billy bass,bionic bill and I'm guessing I forgot one I am sure.BTW,my nickname in the band is BoomBoom.
The bass thing.
btdtbbbbbbbmac
That is where I am at too. If I can just get through this episode I will do everything I can to stay healthy. The gym, stretching everyday, anything. I guess I am just not ready to deal with it. The doc could tell that I wasn't either yesterday. She was trying to explain that it was a mechanical issue that most likely won't just go away, or get better with epidurals or anything else. And I kept telling her I just need to get the epidurals and I will stretch, walk, ect ect ect. Anything to just get through this without surgery.
I also know of many people that have had the surgery and say they still have pain. Except now it is everyday and doesn't really change or go away. My dad and his sister had it done about 10 years ago. They both said that it helped, but hurt. I haven't seen my dad in about 5 years, otherwise I would be able to find out more from him.
The main thing I have heard from Neuro's and patients is to try not and get it unless absolutely neccessary. To also try and stay away from it. Even if it means staying on the meds for a year prior. I hate being on them as it is. Let alone for more than a couple months. The longest I have ever had to was 8-9 months, and that sucked!
I just wish I knew what I did to make it get like this. It was bearable about 3 weeks ago. Then after that night when I was emailing Bill and going out of my mind cause it hurt so bad, it has been the same/gotten worse. That is the 1st time it ever went below my knee.
Chezz
I am not sure what you meant by that because they used them in me,three levels.They used bone to do the fusion from my hips.I have no metal or any other type materials like pins or screws.
The disc material is a mix of plastics and bone.I know several people that haven't gotten any relief from fusion but I for one
am a success story.
Chezz why go to Hawaii,here in Birmingham we have one of the best Sports Medicine hospitals in the country.HealthSouth.
They are the leaders in Neurosurgery.The doctor that my wife works for helped invent the Gamma knive used for brain tumors.
No invastive part to it.They do all the professional sports
people and even the prince of Shadia Arabia has had 4 surgeries here.I didn't have mine there because at the time it wasn't such a big hospital,but I can tell you there isn't a better neurosugeon in the country.Good luck
bmac
The pharmacist also told me I might need to try taking it at different times to help stay on the same dose, but still get the same pain control for longer. She said switching the time I take it will help so I don't have to take more.
Plus right now I am taking about half of what I am prescribed so that makes me feel good. (I am just dealing with more of the pain though, that is why I couldn't sleep)
Its almost like I am hoping if I take less it will mean I am getting better and won't have to get the surgery.
Chezz
Scripts institute in San Diego, Ca. has some great surgeons too. Cedar Sinai has some also. They take care of most of the celebs. ect. ect. ect. I have heard many different docs and hospitals.
I can't explain my situation fully. I need a little ANONYMITY too. But I will be seeing the same team that I had before if I have to go through with the surgery. That is most likely. That could change, but probably not.
Chezz
bmac
So she gave me 10mg, then I can take more if I need too, or take less. I am not just going to take 40mg. twice a day, everyday. If I have a good day I can take less, bad day and I can take what is prescribed.
I want to keep it as low as possible. So I am still dealing with a fair amount of pain. Actually my shin is f#$%$@# hurting. But I would rather deal with it and feel the pain so I don't just mask the pain and hurt myself more by doing too much. I have done it before.
I want to get better. And that means I have to feel/deal with the pain.
So right now I am taking 20mg twice a day. I might have to change that if I can't get more sleep than I am getting. But 1st I am going to see if I can try other things to get me through the night.
Chezz
Any ideas on ways to help would be great.
Chezz
What video are you referring to. Was it something that described the surgery or showed it?
It sounds like something I would want to see.
Thanks for your help,
Chezz
I hope I didn't sound like an a$$ when I was trying to explain my doc situation. I don't really have a choice on where to go 100%. Hard to explain.
I REALLY appreciate all your guys help and suggestions. It is nice to be able to have a place where people understand what I am going through. It was sooooo hard yesterday when I found out that surgery might be the only answer. But I knew I could come here and get help and find out more info. It feels like I am in this by myself. I haven't been back in the states for more than 5-6 months, so I don't have any friends here to even talk to.
But I knew I could get help and support here, because of all of you guys and your BIG hearts. Thanks again,
Chezz
what you feel is best,good luck.
bmac
Good luck to you whatever you decide!!!
ps my wife refused to watch it... too much like 'trauma in the ER' for her
a patient thru the process.Went from all the testing to the actual operation and the rehab.It can be ordered from the learning channel and I am sure you can get it from your local hospital.Try there.
bmac
I have had too many knee surgeries.Now I face replacement soon.
I told my wife which she works in the OR that I am sick of doctors and operating rooms.I pray this will be my last.
I know where Chezz is right now.I kept putting my fusion off until I just couldn't talk myself out of it anymore.It is a *****.Thanks for the comment,it is appreciated. bmac
That is why I am not taking the meds like I am supposed to. I want to take the bare minimum so I can Try and just get through this. I am praying that I can get through this episode like I did the last time. Then I can go the the gym, ect. to strengthen my back up and hopefully avoid surgery for good, or at least another couple of years.
Taking the meds was all fun and games when it was for the reg. back pain running down my leg, or after my last hernia surgery.
Its not the same when your leg is going numb, and the pain in intense.
I'm actually taking less meds than I was when I had the percocet. Now I have the oxycontin, and can take up to 80mg. a day and I don't even want to take half that. That is why I am only taking 20mg twice a day. I don't want to risk masking the pain and hurting it more.
I just want it to go away. I'm scared now.
Chezz
PS I REALLY want to get that video. So if you have any more info that would be great. I will search for it on the web too. I am trying to remember what company the learning channel is with?!?!?
I was fooled by the title "neckpain"; just one of many info sites
for all of these procedures
Wazzz up? Just wanted to say glad you are kinda back...I mean you said what you said and well now you are here!! Yippeee......I am sure a lot of us are happy to see you around...
That's all for now..
Laters
Christine
Thank you so much for that site. It is the best one I have seen yet.
And to think I knew alot already!!!! ;0
That is the best one I have seen yet.
I will be busy for a while!
Thanks again.
Chezz
your upbeat , positive way,
i mean that from my heart.
i hope to continue to see ya posting
no matter what is goin on in tour life
good or bad , your someone who helped me when i 1 st got here
along with , groovy, skipper , irish rose, mr. michael
and all the rest.
ya thinghs have been really positive around here latly ,
a lot of new people getting clean and sharing a lot of really good things.
well i hope your doing and feeling good.
miss ya your freind hippy
bmac
Sugarbeens
i have dealt with my experence from my chilhood ,
the foster home thing, i look at it this way my parents did
thier best , it was just a bad job. i used to feel really bad about being the only white kid in a all black neiborhood
but now that i am 42 and grown up i sorta look at like a blessing. i had a lot of trouble with the kids my own age teen agers, but the rest of the people in the hood were really good to me, i rember one day when i was 16 and walking out of the
the bad hood twards the white neiborhood, going to highschool
and there was 6 or 7 of my next door neibors little kids all about 7 and 8 years old walking about 30 feet in front of me and some white guys started throwing beer bottels at them
and calling them little ni#@ers, i felt so bad for them.
and i ran up to them they were all crying .i said everything was alright , and i walked them to school, i rember thinking that day, why was i even going to school, the world was such a lousy place, i guess i just learned that day why so many people are filled with anger and racism.
anyway, im rambling,
I BELEIVE THAT HATE ,ANGER RACSISM, ARE ACIDS THAT DESTROY
THE JAR THAT HOLDS THEM.
THE DELI LAMA WAS ONCE ASKED IF HE HATED THE CHINESE FOR
KILLING A MILLION OF HIS PEOPLE IN TIBET, HIS ANSWER WAS
IF I HATED THEM I WOULD ONLY BE HURTING MYSELF..
YA I LOVE MY PARENTS THEY ARE STILL AROUND.
FOSTER HOMEs REALLY SUCK. ALL I EVER WANTED WAS TO HAVE A NORMAL
LIFE , I FINALLY HAVE HAD ONE FOR THE LAST 18 YEARS,
I PAID A LOT OF ATTENTION TO MY KIDS , AND THEY TURNED OUT WAY DIFFERENT THAN ME.MY DAUGHTER IS MARRIED WITH A SON,
AND MY SON IS IN SARYCUSE ON A SCHOLARSHIP AND DOING WELL.
THANK GOD FOR THAT.PART OF THAT WAS MY OBSESSION TO RAISE THEM
OUTSIDE OF THE CITY, AND IN THE SUBURBS, WHERE ALL THE QUOTE
UN QUOTE NORMAL PEOPLE LIVE,
IM STILL AN ADDICT WETHER I AM CLEAN OR USE ing, I STLL HAVE THIS DISEASE OfF ADDICTION. IT MANIFEST ITSELF IN OTHER WAYS
other than drugs, like work, burning out credit cards,
clothes, books and reading like a feind.
but over all life is good, i enjoy the little things, drinking a cup of coffee in the morning sun, reading a good book,
playing spiderman with my 5 year old grandson ian,
praying at night with my wife, going to the movies.
readin the post here and seeing people getting better.
i love the openmindedness around here and the real care for one another.
peace
kava kava, valaarian root, and some others i can't think of
right now
hot baths help,
you might want to look up natureal remadeies on the internet
for sleep.
if you are clean , one thing that works for sure is,
nightquil, i would only take it in emergencies , but it
would knock me out for the night.
im sure someone esls will post some of the other sleep aids
the problem with acholol is it only works for a few hours then you wake up a 3 in the morning and ya can't go back to sleep.
some times just plain old alkaselzer cold plus heps me sleep.
good luck
Love Sugarbeens(Butterbean)
Sugerbeans, you mentioned ithing like crazy and sleeplessness. Both can be symptoms of allergic reactions. It is possible you may be allergic to the drug. Ask you doc and maybe try another pain killer. Just a thought. Good luck.
Chatahan
Love to all, Sugarbeens
Chezz man, I am so happy that you seem to have found the right combination of Docs and, it sounds like, meds. I think there is light at the end of the tunnel my friend, and I am VERY happy for you.
The surgical experience will not be easy, but the payoff is worth it...
Send me an e-mail when you have a chance, I am missing our regular correspondence.
All OK here. Day 32 behind me and feeling good. Strained my shoulder yesterday doing some carpentry, but advil was enough to get through, so I was pretty pleased with that.
Kids and family are great...D1 started lessons on a new pony and surprised us with how much she has progressed in the last 6 months. Seems to have tgotten her riding skills from her mother...which is a GOOD thing. D2 spent the day in the back harness while I worked around the farm all day. 25 extra pounds to lug, but worth it...she is a VERY cheerful 1 year old, so plenty of singing, laughing and chatter to keep my mind off the labor and a smile on my face!
PLEASE write if you get the chance..I miss your letters and I'm really happy that they seem to have come up with a solution chance for you.
pon
Ps. Wrote to Alissa, but no response...she OK?
pixi
Hello all, I am new here. This is my last visit any where at this point of my life.
Let me see if I can break this all done for all of you please.
I live in Arizona. I have been living with back pain for 7 years now,it is to the point that it just rips right through my body. I have been to multi doctors and at first when I first started having this trouble,it was as if it was on my head,as I read I am not the only one this has happened to. Now today I have multi levels of degenertive disk disease,it does not stop there. I have a ruptured disk as well as spinal stenosis...This is not all. I have lost my state medical coverage, due to my husbands income. We make so little that we strugle to feed our children. I can't afford priviate insurance,as I checked,but they don't want to cover me anyways.So today I have only 2 doses of pain meds and its over. I have been shoved from one doctor to another for so long. Treat you with pain meds and drop you. When I can't get help,I retreat to the ER where I am told that I am starting to look like a drug seeker:(...... even though, they know what I have. The pain is ripping through me as I speak.The one surgon said you must detox off all pain meds and stop smoking or I won't do the surgery,as it is a waste of time if you keep smoking, he said that they had to be able to control the pain after surgery..However what was I to do with all this pain? while waiting? Well that matters not anymore as I am alone in my pain and suffering and they don't seem to care.I have gone from 18 pain pills a day to 8,as of now, and I am so consummed by this pain.When the last pills hit my mouth ,it is over for me.I have done all that I can do and have called everyone and no hope avails for me...Thanks for letting me vent here..I wish you all the best...God Bless you all"Lovechiidelvis
Loveyes,
This may not sound feasable but if you are an American citizen and move to Guam, you can apply for the Medically Indigent program and wellfare and they will have to do the surgery.
If you have assets, you will not qualify. Have you considered calling the American Medical Society or your local public health center and asking them what are your best options to obtain this surgery. You may have to travel to another state for awhile to get it done but then you'll have it done. There are always other doors to open when others are shut. You need to pray hard for a new opening and guidance from the Lord to seek it. You may even want to start at your local church for assistance. Depression makes that nearly impossible, I know because I've gone through suicidal thoughts before.
If nothing else, call your local crises hotline and they should be able to find you some help. I'll be praying for you.
Good luck,
Chatahan
HI I WAS ADDICTED TO VICODEN FOR 3 YEARS TOLD THE DR. PUT ME ON # 4 CODIENE AND IT WAS EASYIER TO WEEN OFF. IF THAT HELPS ANYONE. ASLO IF YA HAVE HEP C LIKE ME I GET THE CODIENE WITH ASPRIN IN THEM. ITS EASYIER ON THE LIVER THAN TYLENOL. ALSO " MILK THISTLE REJUVENATES THE LIVER" ITS A fact!
pixi