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Love yas...
Suzie
It only affected me (Heart pounding High Blood pressure) for a few days. As far as anything else e.g. (long term damage) I don’t know for sure but I was on a very high dose of Morphine for over a year and I have no damage none. I am a little mental but I had that before I started the Morphine. If you are concerned get checked out by a doctor.
Good luck.
So when I joke around which I shouldn’t do here I realized I might have frightened or at a minimum caused some confusion, I will restrain myself in future posts. But
I was serious about not having any damage from the Opiate use not that I encourage anyone to have a license to indulge. I followed doctor’s instructions (even if he was a quack) and ate right and took lots of vitamins and had many blood tests.
Vette...I did not mean that everyone who has taken opiates is brain damaged, but that the opiates do affect the brain pathways and neurotransmitter's,that the brain is an organ, and I have read and heard all over the place that opiates do not damage the organs in the body, when obviously it does. I guess I should have been more clear.
Burn
It is a long haul to feel better. I've got 7 months clean time now from a methadone habit and you're right, it is a day by day thing. Some days are better than others, but the worst day of being clean beats the best day of being a prisoner to our drug of choice. That crappy obnoxious saying, "It didn't take a day to get this way and it won't take a day to get out of it." rings true. It sucks, but it is true. But when I'm having a rough day, I always take a minute and remember the first week of coming off that ****. No sleep, RLS, no energy. Kind of puts things in perspective.
For me, it took going inpatient. But I knew that I had the monkey beat the day I walked in the place. It wasn't easy to say the least, but its not impossible either.
While inpatient was a good thing, looking back, I STILL don't believe the "disease" hype; all the "powerless over your addiction" stuff. Who's powerless? The only part that seems incideous about this whole thing is that once you're in the throws of the problem, it seems easier to stay where you are instead of taking the scary, uncertain steps to help yourself. At least I know it was that way for me. Everyone is different to be sure. And for the people that have to endure chronic pain, man... those are the strong ones. And when you look at it in those terms, did I have it bad? Hell no.
again is when you have to suck it up and not indulge, which is hard to do. Sounds like you managed that, and I applaud you. Congratulations on your accomplishments! I agree we are not powerless, and buying into that sells us short. In a way we are lucky - if this is a disease, at least we can control our own recovery, unlike people dying from cancer. In that way, things could be a whole let of a lot worse. I think this is a very individual thing and no one can judge anyone else based on their own experiences, but at the same time we all go through a lot of the same ****, and it really helps to know that. Thanks for reaching out, and congratulations again.
T050
Burn, if you are a chronic physical pain sufferer who has chosen to stop using narcotics, I give you more credit than you can imagine. I always looked at having "real" physical pain as the absolute BOMB because then I could "legitimately" use "medication" for my pain. . .this to the point of ending up faking the pain and (very, VERY easily) pulling one over on physicians or, when all else failed, going against the most basic human survival instinct and deliberately injuring myself to have a "reason" to get pain medication. I know I am not alone here. Think for a minute how powerful this disease is if it can negate or reverse an instinct as deep as the one for survival. . .
And yes, it IS a disease. Again, I am not interested in (and please pardon the crudeness, as well as the bitterness that led to it in the first place) "mental masturbation". This is what I refer to as the practice of metaphorically stroking our long, white. . .beards. . .and "speaking knowledgeably" about subjects of which we obviously know nothing -- other than the regurgitation of other people's theories, the dropping of "power" buzzwords and -- in general -- the showing off of a lot of fancy "book larnin'" for its own sake.
Sorry for the mini-rant. . .but those of you who have done enough rehabs and counseling appointments have undoubtedly run across these types of individuals. I said all that only to say this -- that, to me, the theory and study of addictionology is a fine thing, and not to be disparaged. . .but if it doesn't keep a junkie clean in the Real World, then it just ain't worth SQUAT. I am a fervent disciple of the Church of Whatever Works. If you have remained clean today because of a) a Twelve Step group, b) your Higher Power, c) good rest and nutrition, or even d) a ritual that you do daily that involves a spatula, lots of rubber bands and intense Lint Worship. . .it's all good as far as I am concerned. If I met a rubber band, spatula-wielding Lint Worshipper who had been clean twenty years, I would be more inclined to discuss with them "How'd you do that?" than I would be to listen to an academic or even a physician who had no PRACTICAL experience to share with me. First, I want to get clean and stay clean. . .once I have that reasonably (and for the moment) under control, then I may be more interested in theories. . .and book larnin'.
So, now that I've lost almost everyone, here is what I have for you, Burn -- LOTS of admiration for choosing to deal with physical pain (how much of which, I can't even begin to know, since I'm not you), and a term which I'm frankly very surprised that the physician here did not even bring up, which is the exact syndrome you are now experiencing after "coming down" after a long period of opiate use. The term is Post-Acute Withdrawal Syndrome (abbreviated as PAWS). This is a set of symptoms very much like you have described: a "fuzziness" a "disconnected" feeling. . .absolute "blank" moments in the middle of a thought or train of thought. . .emotional volatility with little to no warning. . .and many, many other symptoms along those lines which I'm sure that, off the top of my pointy little head, I'm not remembering now.
While what I'm about to say does indeed suck, I still need to say it. . .this is absolutely NORMAL. Your brain and nervous system don't give a rat's patootie whether you were a hardcore horsehead spun out on the needle or a very legitimate pain patient taking perfectly legal medication as directed with no "junkiness" involved. Very simply, your nervous system has gotten used to adapting to being narcotically affected and has reacted accordingly, providing alternate pathways and solutions in order to keep functioning under what were, in a purely non-negative or emotional context, "un-natural" conditions.
With the removal of the opiates, the brain and nervous system now has a problem. Think of it as a society that had run out of petroleum for fuel hundreds of years ago. They junked or garaged all their gasoline-powered vehicles long ago, and have long since developed new ways to get around. . .the bicycle, the electric transport -- hell, as radical as it sounds, even walking. Suddenly, however, from somewhere, an unlimited source of petroleum for gasoline-powered engines is found! Hooray! Fire up the Hummer and let's ROLL, baby!
Well, not quite. The Hummer in question (and the Honda Civic, and the BMW, and the Dodge Viper, et al) haven't been used for a long, long time. . .haven't even been thought of, in fact. The very idea of paved roads may have long gone by the wayside, even. . .at least the kind of roads engineered to stand up to the kind of abuse they would take from heavy, gas-powered machines. Traffic signals would not be a thing of the past. . .but neither would they have much resemblance to the ones used "back in the day". Why have computerized, four-way signals to control eight to twelve lanes of auto traffic when the fastest vehicle used for the last hundred years was an electric bike with a top speed of fifteen miles per hour?
I hope I haven't lost anyone yet (mostly, me. . .) -- but your brain and nervous system (the fuel-less society) has adapted to the conditions it had placed upon it (the narcotics, or the "lack of fuel"). Suddenly, the fuel shortage is a thing of the past and the nervous system (the Hummers, the SUV's, the Toyota Tercels) are all still there but almost inoperable from lack of use. The society has to revamp everything (your brain and neural pathways, the "roads and highways") to accommodate the new (or is it old?) means of travel.
The good news? It can be done. . .I have been off of opiates for just over a year now, and believe me, I KNOW what you're going through now. . .it can feel awful, like you're the kid riding the shortest Short Bus to school sometimes, or like you want to laugh, then cry, then beat the hell out of something (all in the same several minutes). You have NO IDEA where you might have parked your car in the Wal-Mart lot, which is twenty-seven square miles in diameter, by the way (or so it seems).
This might be the oldest cliche in the book, but in this case, it's true -- it gets better. Really. The bad news? Although your symptoms WILL lessen over time -- noticeably -- the entire process of "re-routing" your brain and nervous system may take up to twenty-four months. All the advice I can give you is what worked for me -- educate yourself as much as possible about this (maybe begin with a Google search of "post acute withdrawal syndrome") and try to find a physician who KNOWS what PAWS is, at least. . .and if they do not, find an addictionologist. The best resource, however, is other people who have been through/are going through what you are beginning to experience now. . .namely, recovering addicts. I think many of us are familiar with the two primary twelve-step groups where you can find these people, although since you are coming off of narcotics, I think one may be more valuable than the other.
I want to thank everyone who stayed with me this far, and for allowing me the courtesy of taking so much room and time in this forum on one post. I tend to go on (and on, and on. . .), and for this I apologize if it appeared rude. This is just such an important topic to me that I felt it necessary to provide all the help and info I could. . .one of the primary factors leading to relapse of ANY kind of substance abuse is the emotional strain and stress of the symptoms of PAWS. Understanding won't make it go any faster, but maybe it can make it be a little easier. Let me know how you're doing.
Peace,
Kurt
Let me explain. I agree and have done research that yes the nervous system will have to readjust that’s a given I won’t beat a dead horse. But big deal, so while are nervous systems are adjusting to the new Opiate free environment we may feel foggy, shitty, a little “off” whatever. There are more than a few of us here I know because they hang out with me that have none no desire to take meds not now or ever they are sick of them they only took them for pain. Now that the pain or surgery if over they are done with them so unless this is one of my cloudy moments I always seem to interrupt at the end of posts that for whatever reason its implied that there will be a continua’s struggle with the pain meds over this extended period and I don’t understand or see that as the case?
Burn
Anyway. . .said that only to say this: no matter what led to the tolerance (if anyone has a problem with the word "addiction") to the long-term use of narcotics, in the end, post-acute withdrawal is something that EVERYONE must go through, no matter what. Yes, it does suck. . .especially if you are someone like my father who genuinely did not know what he was getting into and found himself screwed once he became aware of the situation.
The problem is, "addict", "non-addicted legitimate user", "chronic pain patient", whatever category you belong to. . .once you have used opiate drugs for a long period of time, things change inside of you, and the only thing that can heal those changes is time.
Am I saying that these people should be very careful about ever using narcotic painkillers again in their lives? In a word. . .hell, YES (well, two words, actually, but this is very important). Why? Especially if they didn't start using the drugs to get high?
Because the brain doesn't know the difference. The brain of someone who has used narcotics long-term will, in most cases, be "cleared" of most PAWS symptoms after twenty-four months or so. . .but once you put the same chemical back into the system, the "old patterns" are still there (unlike they would be in the brain of a person who had never used narcotics long-term). Therefore, it is much faster and easier for former narcotic users and abusers to become "re-addicted" than for first-time "virgins". In fact, chronic pain sufferers may be even MORE susceptible to this danger. Let me explain. . .
When a pain patient, for whatever reasons, desires to stop taking narcotic meds, he or she faces a unique obstacle that all of us other junkies somehow do not -- the deep, almost unconscious, urgings from within that tell them to keep using their medications. Like I said, the brain itself, as an organ, is neither good nor evil. . .it has no motives other than for everything to keep working as smoothly as possible, whatever the conditions. It's not surprising at all, then, that many chronic pain sufferers experience an INCREASE of pain even before they actually stop taking their medicines. There's nothing evil, or wrong, or shameful about it. . .it is the perfectly normal reaction of a brain used to a certain situation doing what it can to keep the status quo. There's nothing conscious about it, as far as the patient is concerned -- no deliberate attempt to con a doctor need be present (and usually for these people is not -- they leave that to the hardcore pill junkies like me :)
I hope I understood what you were saying, and you understand where I'm coming from, too. . .there are people from every walk of life and every situation who have been compromised by addictive substances, from the sweet little old lady with a bad hip to the gangsta in the alley shooting a speedball. The bottom line is, the condition does not care who you are, or why you began using what you use. . .leaving that substance behind creates a similar set of physical/mental/emotional issues to be dealt with regardless. It's all about the biology, baby.
Peace,
Kurt
God must love addicts, dandelions, and cockroaches. . .because He made so damn many of them and they're so friggin' hard to kill. :)
Peace,
Kurt
no prob! You made mine with that post :)
Seriously, would you mind if I referred others to what you wrote? I attend a few other substance abuse forums and again, that was very inspirational.
Kind regards,
Thomas
PS/ BTW, I am on the east coast but I lived in TX for a bit, near the beach, fist time I ever saw a pelican!!!! (other than in a cartoon :)
Thanks :)
I used to frequent the one on About.com http://alcoholism.about.com/index.htm?terms=substance+abuse
But lately I have been on the SoberRecovery.com forums. There are so many forums there, it keeps me busy enough ;) Like here, the people there are really great. I have actually referred some of the die hard opiate cases to this board, as there seems to be a bit more experience with that here (and having the doc is great too:)
Hope that helps.
OK, I am off to get some Z's.
Kind regards,
Thomas
Sorry, do not mean to be down, but how much can one really take before you just feel as if you've tried to get off of this stuff so many times that it becomes so hard that it's hard to think of recovery? I called 8 listings in the phone book this evening about substance abuse counseling, and they were all so curt and a couple people hung up on me. One NA guy was very helpful, so I'm going to go to a meeting on Thursday of next week @ 8:00 p.m. My dh even said, 'oh a guy, huh??" Geesh.
Dh did say some stuff that although I had already felt strongly, he said that these pills were taking the load off of my life. When I get quit taking them, I'm left to carry the load AND that which I hadn't carried before when I was taking the pills. The more we take, the more of a load we'll have to carry once we decide to come off of these things. That's exactly how it's been working with me. I have royally screwed stuff up in my life, and only I can repair it. So now is the time I start the clean up. Geesh, how hard it is. But there's no other way.
I can attest to the fact that the more you go through w/d, the harder they get, so it's best to nip it in the bud NOW. This is almost unbearable. The depression, the back pain I'm experiencing, the bone pain, the complete fatigue, etc. - I'm not trying to elicit any sympathy, really the contrary because I have dug this hole ALL BY MYSELF when I could have stopped it in its' tracks 2 years ago. It's just the physical/emotional manifestations that occur when you (me!) continuously put yourself in the position of constant relapse.
Man, I have a lot of respect for all of you who are doing this. You should be really proud of your accomplishments. And you'll come out the other side stronger.
Alexis
Also, you know as much as I do, how much hearing the stories of those that have been thru it and made it help those trying to get thru it. You'll be that inspiration to someone :)
Keep the chin kid o!
Best,
Thomas
But. . .as you undoubtedly know by now, being the loved one of an addict is not just a double-, but a triple-, quadruple-, or even more-edged sword. When I felt her concern, that early on in my WD, my responses could be (and usually were) wildly unpredictable (to her, certainly, and to me as well). As a reaction to her expressions of concern, or "nudges", I might, at any time: a) know that she cared and be moved to tears, feeling so much love for her, b) know that she cared but my own physical/emotional/spiritual misery was such that I barely acknowledged her gestures, c)even though I KNEW that she cared, would strike back and rip her head off. There were other variations and degrees of response from me, but these seemed to be the primary ones. You can't imagine the frustration when you KNOW someone means you well, and is going out of their way, in fact, to give you more than you feel you deserve. . .and the best you can do for them is dissolve into a puddle of tears and feel weak and humiliated, while the worst is even more reprehensible -- swatting them away even as they reach out to you. Even the apathetic responses made me feel guilty that I wasn't reacting to her (seemingly to me) heroic efforts to reach out to me.
It's part biology/biochemistry (as our entire system re-adjusts to "business as usual" without narcotic input). In early recovery, I felt wildly volatile and out of control emotionally. This, of course, is absolutely normal (see one of my rants about PAWS, or Post-Acute Withdrawal Syndrome, for details), and I was fortunate enough to at least be aware of what was going on inside of me. Still, every time I fell short -- that is, didn't react as positively as I thought I should have to one of my wife's "nudges" of concern -- it blew my already house-of-cards-like self-esteem to pieces. What an incredibly awful disease this is. . .it seems that, at every point in recovery, there is some greatly intimidating obstacle to overcome. Nowhere is this more evident (at least to me) than in the delicate early stage of recovery your husband is experiencing. . .it seems that the more he wants to do the "right thing" (that is, get clean from the junk), the more physically, mentally, and emotionally punished he will be. Recovery would be ridiculously easy if it felt as good to us as getting high used to feel. . .or even if it just didn't feel so friggin' awful. There are times your husband WILL feel that high, without the junk, if he makes it through. Simple things like taking a walk with you, maybe doing the dishes when he isn't asked, just being silly watching a movie or something. . .there ARE moments that make sobriety feel like being high, only better. It just sounds like so much bullshit when you're two weeks off and still feel like Lazarus just out of the grave, however.
In all good conscience, I have to add that the way you present the "nudge" can also be very important as regards the reaction you will get. "Buns in the shower to go get ice cream" is good, probably would have worked on me, too. . . :) Of course, on the other side of the coin, you may present something in a completely appropriate and loving way and STILL either just be ignored or have your head ripped off. In that way, I guess you (the addict's loved ones) are just as frustrated as we (the addicts) are, just in very different ways. It's taken me quite some time to be able to appreciate just how much suffering I put my wife and family though due to this disease. . .the earlier on in my recovery I was, the harder it was to look at the awful things I had done and own up to them without feeling like a complete waste of life (and thus being led back towards the drugs). Wallowing in the past is bad, very bad. . .but forgetting the pain altogether is even more dangerous. It's a fine line for all of us involved. . .addicts and non-addicts alike.
It sounds like your man has a great treasure in you. . .never forget that. Don't neglect your own needs at this time -- explore recovery groups for spouses of the addicted (there are several quite active out there, and I'm sure you have heard of some of them). I won't sit here and tell you it will definitely get better, no matter what. . .but each day he goes without the junk is a day he is closer to being himself. . .and to being the person you know he is, the person you love.
Peace,
Kurt
Anne
P.S. Please this post was not meant to ruffle the feathers of any 12 step devotees. I am actually for whatever works and keeps us clean and sober!--I have just had a real problem with that powerlessness thing"
I do believe I have a degree of power over this-I KNOW I do , if I did not that pill I found would have been in my mouth instead of the toilet! I SWEAR that things get better day by day, the longer you try, the easier it gets. I am now remembering EXACT conversations from a year ago. 2 weeks ago I never thought the fog would lift. We just have to hang in there and LEARN to live differently-pill free. We did NOT become addicted/abusers overnight, so the recovery does not happen after 5-7 days of WT. BUT-it does come, slowly. I truly believe it can only get better now that "they" are FINALLY out of my life! FOREVER!!!!!!!!!!!!!!!!!!!!!
Christina
*I am a former Health Care Professional. I SHOULD HAVE KNOWN BETTER, but it can happen to anyone.*
I could not have typed this message two days ago. I took my last pill Monday and the ensuing withdrawal EXCEEDED all expectations. Luckily, I live alone and do not work, so I could crawl around in my misery without having anyone witness the pathetic spectacle. I will spare you the details, but I am not proud, only proud that I have quit.
Here are some suggestions.
1. Imodium (immodium). OTC 2 tablets when the cramps and diarrhea starts and one tab every 2 hours afterward until cramping stops. I know that this exceeds the recommended dosage, but it didn't kill me and it sure helped. I just wish that I had started this the first day.
2. Benedryl OTC and/or Phenegran suppositories RX if you have them or can get them. Both are antihistimine, so keep that in mind. If you can control your diarrhea, both will help the nausea and help you sleep (HAH!), although fitfully.
3. Hydration and nutrition. Gatorade and you must eat. Drink plenty of water and if you get heartburn, put 1/2 teaspoon of plain Arm & Hammer baking soda in your water. This will help sweeten your system. I know, I know, you won't feel like eating, this is the last thing you want to do, but you must eat.
4. Spirulina Dietary Supplement from Earthrise. This is superfood and will help you. Start taking it before you quit the pill and continue through withdrawal. Take at least 7 tablets a day. Choke them down, you will not be sorry. Iherb online has the best prices, FYI. No, I don't work for them.
5. Hot jacuzzi baths will help the aches and help you get a little sleep. I literally crawled from the tub to the bed the first couple of days.
6. Exercise. I know, this is the second LAST thing you want to do, but only if it is just walking laps around the house and up the stairs, do it! If you stay in bed for a week you will only feel worse.
It has taken every bit of energy to write this. I only hope it helps someone. Each hour I am closer....wish me luck.
PS The Frey book is AWESOME!!! He and I think SO much alike about the downfalls of AA and how we manage our recovery.......I heard he was just on the Today show and I missed him, dammit!! I will try and post more tomorrow about some of my thoughts on his drama.
can anyone comment on how to deal with the depression that will obviously start to come back upon getting off these things (drug free hopefully)?
One word about depression. There are many remedies, but some of those have awful withdrawal syndromes too, mainly Paxil. There is a natural anti-depressant, St. John's Wort, but I don't recommend it. It can have an awful drug interaction with caffeine or decongestant. It will make you feel like you are in opiate withdrawal! Enough said, eh? Gosh, I don't know how I am doing this, but here I am, in HOUR 90 of withdrawal COLD TURKEY Oxycontin 240-300 mg. per day. I will never forget and never give these days back.
The trip went off without a hitch, but the world outside took on a surreal quality. It was blazing hot, but I was freezing and I had to wear a light jacket, sunglasses and a baseball cap. I made my meager purchases and hoped I could find my car [it was parked directly outside] and make my way back to the safety of my house.
Oh, I did score my bird feed, a major success story! This is good therapy, I will continue to post. I would love to hear from anyone who has had experience with what I am going through.
I know there will be setbacks. Right now I actually fee almost good, but I realize that this is only temporary, but *I'll* take it!
P.S. My birds are happier too