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I just had a complete physical done two days ago and the results were considerably better across the board than they were last year. This is in spite of the fact that I've been on strong pain meds for 9 months.
Everybody reacts to medication differently so take what I say as purely my opinion. J.B.
Good luck!
Jenny
How about a new doctor, maybe one that is a bit more compassionate!
I don't know much about it, but i've heard some people really talk up the patches as being very successful. I would definately try a new doctor, maybe he/she will have some different ideas and you can finally get some relief.
Good luck to you!
Jenny
That seems like a good idea. Are you located near Texas. If you are I would email you the name of the doctor my husband sees. He totally believes in helping his patients. He doesn't talk down to you. He believes that doctors under treat pain. There are also a couple of more doctors like him in the country that specilize in treating pain. You might be near one of them. This doctor had an article in the newspaper and I cut it out a year before my husband needed him. God was at work with that one. Good luck.
No, I don't have any intentions of going off my pain meds at this time. I just ran out early and happened to have some Darvocet that I'm using so I don't have to go through withdrawals. I was just asking Thomas because I remember him taking them. They really don't take care of my pain. I'd be afraid of taking 3 or 4 at a time because of the 650m tylenol in them, although I tell you I am really dragging. Hope you have a good trip.
I have Fibromyalgia and the kind of menstrual cramps that feel like labor (had a baby so I know).
I found a doc (been in my family for a while) who would prescribe the Vicoprofen for a few months because he thinks that I can taper off them eventually and get rid of all my pain with antidepressants and getting out of the house more often.
He subscribes to the school of thought that pain is largely in your head and therefore can be controlled by psychiatric means.
So I ran out early-happens every time-I called him and he was on vacation. I called the doc (biting my nails) that he left on his machine for emergencies. I consider opiod withdrawal an emergency.
He sounded shocked that I took these kinds of meds on a regular basis-I had to give him all the backround info, I told him that I have pre authorization letters from the state for Vicoprofen (and a few others), that I have a legitimate case, and he may call my pharmacy to confirm dosages and what not.
I understood his reluctance. He called in one days worth (my doc would be returning in approx 1 1/2 days at that point)
My husband went to the pharmacy (the doc called it in to one in the same chain but not mine by accident) and they refused to fill it.
My husband (bless him) gave them no small amount grief for that.
THE PHARMACIST WOULD NOT FILL 5 PILLS
I HAVE AUTHORIZATION FROM THE STATE
plus I have an illness that nearly cripples me if left untreated
I borrowed some Darvocet from an aunt for the day, but I had withdrawals anyway. My doc came back and decided to call in Darvon 100's instead of the Vicoprofen. He said that now would be a good time to drop the Hydrocodone to a lesser narcotic such as propoxyphene
ie; The pharmacy situation spooked him.
He said things like "one would have to wonder what folks did before all these meds and technology existed" and
"Could you just get up and go out somewhere to take your mind off it" and
"somehow you managed to call me so you can in fact manage the pain"
So I abruptly jumped from Vicoprofen 7.5 to Darvon 100
I had a sobbing spell today because I couldn't open a bottle of juice for my son. (I didn't break down in front of him) The pain and stiffness in my hand rendered it useless. I've had steady relief for so long that this is like beginning the disease all over again. I forgot how much it hurt.
I AM SO SAD
I don't want to take Darvon. This stuff is such ****.
I really wish I didn't have an illness. I hate pills. I hate chemicals and drugs. However, neither can I tolerate grinding my teeth against unholy levels of pain day in and day out. I don't know what to do. I suppose it will work out somehow.
Sorry so long-had to vent.
Pixie
Power & Magick 2 U,
Peace & Light On us all,
Wizard
Bless you, Milo
Power & Magick 2 U,
Wizard
Milo, My brother! You keep hanging in there for sure. Your last mail to me tells me some fine things about you my man. You keep digging for that special "knowledge" and believe me the truth will set you FREE! You GO dude! Remember every time you post to help it takes one more "Dragon" claw out of your back! Every time you post seeking help you take one more "Dragon" claw out of the backs of the responders! Like the song says "We are FAMILY" don't you see? Heeee Heeee! I gotta tell you the "dragon" was whispering a bit today again and here I am typing away and that little ******* is GONE. I replaced one negative habit with a positive one! Praise God!
Thomas, I'm thinking of you too brother! Your in my special "Angel" request prayers. Keep on Keeping On!
Angelica, you too! Wheweeeee! My fingers won't stop tapping the keys! Wow I'm cracking myself up again LOL!
J.B. you're there too! Wizard dust on all of you! jennyfla,susanlea,Shane where you been? Hope i haven't left anyone out ...You all Know who you are! God Bless all us Little addicts! Geeze people, I think I've worked up some lightning here. I'm feeling some Divine energy flowing. Cin, I think I'm turning into "Cosmic Wizard Surfer Dude" ROFLMAO again!
Well, I better go chang my key board I think I burned this one up!
Power & Magick 2 U all,
Peace & Light upon us,
Luv,
Wiz
First the main post, [Medievelable], long title, maybe that's why some did not respond, anyway I take 320 mg of Codiene Sulfate every day broken up 2-(30MG)pills every six hours or three and then change the remaining dosages if I awaken in extreme pain like this morning after last nights disgusting 15 minute seizure where I felt like I was in below zero weather, first time I have had a seizure where I felt cold, but that was much worse than just the violent shaking. I woke up shaking and thought it was just because I was cold because me teeth were chattering like when I used to live in Illinois over 25 years ago.
I tried to get up to get a blanket and was shaking violently from the coldness, so I thought, but then realized it was a seizure because I could not move my body. It really sucked!!!!!!
Anyway enough of my problems, I don't think you have to worry about your Codiene as I have been on the 240 mg daily with no problems, except it lowers the seizure threshold, uuhhgg.
Now to [Pixie], I know what you are going through it took me along time to find a good doctor who was willing to give the pain meds. It took becoming an alcoholic for my own pain management, improperly being detoxed and going through seizures and DT's on and off for three months, then in-patient detox, another relapse with seizures and DT's, and another detox, and then I finally got it through my thick skull to stop drinking booze forever. I now have a permanent partial complex seizure disorder.
The pain was still a major issue and my psychiatrist found a good doctor and they did all sorts of tests because they say the pain is from Fibromyalgia,,,,I say Lupus. I will receive a battery of testing next week called cognitive functioning something or other to see my brain function and it is supposed to show a number of things about what my brain is doing and it can even determin things like if it's Lupus or not. Then after they do that they, if they find brain damage, they try to do things to re-route the brain circuits, kind of like what the brain does on it's own after a stroke.
I hope you can find a good doctor like mine. Try a good psychiatrist. I have found women to be more compassionate then men. And tell her or him you need to address the pain issue because it is causing you severe anxiety, depression and it is making your life unfunctional and unbearable. They know people cannot struggle with severe pain for very lomg. I think you can find someone if you trust in God to help you and believe in our prayers for you and keep looking. I know how frustrating looking is, I almost killed myself over it many times in the past. God Bless You and We'll all be praying for you.
To [Cindi]- How's Florida??? Are you there yet. Yah, those mountains suck for driving, I would not want to try that especially in my mental state now!LOL Hope you are having a good time. Any nice looking hurricanes floating around?LOL Nothing over here yet darn it but the good ole Inter-Tropical Convergence Zone is finally doing what it should be doing across Micronesia!LOL
Sorry for the long post, I guess I am in a state of the Temporal Lobe Babble Syndrome again.ROFL
Lots of Luck and Best Wishes,
Dan..
To whoever asked if I live near Texas, Yes, I live in Dallas, right by Downtown. I love to know what doctors you could recommend. I'd really appreciate. God Bless all of you for responding, helping and caring. Rae.
This is all he does is treat people for pain. People come from all over the state to see him. I am not comfortable giving his name out here because I have heard him comment about people listing his name on the internet. But I would be glad to give it
if anyone one wants to email me. I can give his phone number and name. You can email me at ***@****. I have one brochure from his office. If someone would like it I will mail it to them. Hope this helps.
For those of you who are having pain and a truculent doctor at the same time, here's your link:
http://www.widomaker.com/~skipb/panic.html
Best,
Frank
Last night my husband, son, and myself went to visit relatives who are up from Kansas. My sister in law was doing a Mary Kay (can I say that here?) spa night complete with free massages by a practicing masseuse.
How lucky I was to have ended up there! I didn't know there was going to be a jacuzzi and massages there until I arrived! Someone lent me a swim suit, and I promptly indulged. The guy could tell I was hurting, and found just about all my trigger points (ouch). He was only twenty, but did seem very gifted. My husband encouraged me to stay late even though he had to be at work early this morning.
The guy said he would do house calls and emergencies. The most coincidental thing though was that he has just recently overcome a battle with codeine after having back surgery. We had a good laugh when we were trying to convey to ane another how we understood the pill situation-without revealing to the others in the room exactly what we were talking about. A nice little inside joke between the two of us.
It was nice. I'm stiffened back up now, and the knots are re-forming as I type, but it was worth it to have some temporary relief.
Mostly though, I just wanted to thank you for your incredibly supportive posts.
I had recieved contact info for a pain specialist that supposedly prescribes pretty much whatever it takes to make someone cofortable. (In addition to other pain management techniques I would imagine) However my medical coverage won't pick it up. The doc requires payment in full at the time of service, and you have to go through a pharmacy that caters to hospice patients (they are not spooked by strong medicine). The whole thing would end up costing so much money. Just like all of the "alternative" docs that I knew could help me, but I couldn't afford.
I'm not at all poor, but we are young and just starting out. We have a young child, a single income, and not much money to spare once we take care of business.
Do you see the irony here? The terrible oxy moron? I am not allowed to have the medicines that are strong enough to tackle the pain. But no one will cover "unconventional treatments", which I would very much prefer to drugs.
The patient is obviously the last person taken into consideration here. It's not based on common sense, but dollars and cents...
Well, I'll stop before I get anymore preachy or cliche.
Thanks again
Pixie
The Wiz is gonna go catch some bugs in his teeth LOL!
Power & Magick 2 U,
luv,
Wiz
Angelica
Have fun on that Harley, and be careful of yourself!!!!!! :)
Motorcycles are fun, my husband used to have them before the kids were born. He gave it up when he realized her was gonna be a daddy, and felt he better cool it.
I think it would do him some good to have one again, kinda like getting a little crazy without putting drugs in your body.
Have fun!!!!!
Lv Jenny
I haven't been on any other board and don't remember anything about a different one. Can you tell me about it?
Nice to hear from you.
Francoise
i'm ok if i take a little loracet, it's definately part of w/d, definately!!!!!
Hope this helped.
All i can suggest is take alittle more if possible, just alittle to get through it, or slowly decrease the dosage. Don't know you're exact situation (francoise), but if you take a dosage earlier, try to stand it as long as you can, and take the dosage a little later if you don't want to increase, that's what i do, or try to decrease the total daily dosage little by little. it helped while i was on vacation, got down to a whopping 15 mgs total, and i was fine by about day 4 with that.
I've screwed up royaly since i've been back in my world of 'hell', but this worked for me, just took a few days to get used to is. How about b-vitamins, they might help you get through it with extra energy. Anything is worth a try.
Nodded out again at my computer today, sigh, it gets so old!!!
Good luck to you both!
Lv Jenny
Pixie find a good masage therapy school they do massages for about $15 bucks and they do a great job. I have been to resorts day spas etc. and the schools are just as good I had so much relief with them doing trigger point work! Good luck!!!!!!!
Hi Cin just thinking of you and hoping you are having fun! I leave today and will not have a computer but I will be on the beach so I should be ok! I will see everyone in 6 days and will really need everyones support Thank you all just for your honest writing everyone always has something to offer bless you all!! Jules
Dan...
ps: I have been where you are and this is what solved
my addiction/pain problems. Thirty years+ of research
has proven methadone as safe and effective medicine and
non-toxic to vital organs.
What's the point if you can't tell it like it is? I'm really disappointed in our "editors." So much for a forum where we can be open and honest. I suppose they'll delete this post as well ...
If anyone wants to know what we said, write me at
***@****, that is, if it doesn't violate anyone's lofty principles ... 'can't wait for the self-righteous reply I'll probably get for this one. I'm so tired of fanatics.
If I'm wrong and just can't find them, (they would be for 6-22) I apologize, but I'm pretty sure they were deleted before they could infect anyone. And so it goes ...
Thomas
pixie -- jbear has a good suggestion for you there re the massage therapy schools. I have a great massage therapist who does all different kinds of body work. Last time I walked out of there feeling *so good.* I do sympathize with your frustration re doctors & insurance. I hope you find the effective treatment you need & deserve.
Angelica
ft
I can't highlight it, but this is the link. My letter is the last one, or second to last. Tell me what you think. I believe it would be a good idea for you to join.
http://www.asappain.com/DEAlettersOxyContin.html
I noticed they have a sneaky trick. They can delete the title of the thread posts so it does not appear to be there but if you scroll through the entire thing it is really there!!!!!
That damn doctor must play us for a bunch of fools lower than himself. He deletes anything that's against doctors, pharmicists even when no names are mentioned. That is true censorship!!!
I tried to get up to get a blanket and was shaking violently from the coldness, so I thought, but then realized it was a seizure because I could not move my body. It really sucked!!!!!!
Anyway enough of my problems, I don't think you have to worry about your Codiene as I have been on the 240 mg daily with no problems, except it lowers the seizure threshold, uuhhgg.
Now to [Pixie], I know what you are going through it took me along time to find a good doctor who was willing to give the pain meds. It took becoming an alcoholic for my own pain management, improperly being detoxed and going through seizures and DT's on and off for three months, then in-patient detox, another relapse with seizures and DT's, and another detox, and then I finally got it through my thick skull to stop drinking booze forever. I now have a permanent partial complex seizure disorder.
The pain was still a major issue and my psychiatrist found a good doctor and they did all sorts of tests because they say the pain is from Fibromyalgia,,,,I say Lupus. I will receive a battery of testing next week called cognitive functioning something or other to see my brain function and it is supposed to show a number of things about what my brain is doing and it can even determin things like if it's Lupus or not. Then after they do that they, if they find brain damage, they try to do things to re-route the brain circuits, kind of like what the brain does on it's own after a stroke.
I hope you can find a good doctor like mine. Try a good psychiatrist. I have found women to be more compassionate then men. And tell her or him you need to address the pain issue because it is causing you severe anxiety, depression and it is making your life unfunctional and unbearable. They know people cannot struggle with severe pain for very lomg. I think you can find someone if you trust in God to help you and believe in our prayers for you and keep looking. I know how frustrating looking is, I almost killed myself over it many times in the past. God Bless You and We'll all be praying for you.
To [Cindi]- How's Florida??? Are you there yet. Yah, those mountains suck for driving, I would not want to try that especially in my mental state now!LOL Hope you are having a good time. Any nice looking hurricanes floating around?LOL Nothing over here yet darn it but the good ole Inter-Tropical Convergence Zone is finally doing what it should be doing across Micronesia!LOL
Sorry for the long post, I guess I am in a state of the Temporal Lobe Babble Syndrome again.ROFL
I just wanted to repost the post that was invisible on the board but still in the thread if you scroll through. Let's see if the doc is so neurotic he censors it twice!!!!!
Angelica
I don't know if my husband is a person who will ever be able to eliminate all 'drugs/alcohol' in his life. The best alternative would be a methadone maintenance program, but the problem with that is, he is highly addictive personality, and it will only continue keeping him in the 'drug dependent' lifestyle, and continue to crave other things. I don't know who he can get past that one. Also, i believe, as long as he is taking the methadone, they do block the proper function of endorphines, from what i can see.
I found, when i decreased my levels drastically, even while using small amounts each day, i could slowly feel my endorphines creeping back to life because things were getting to me more than they had been while using higher levels. So it would probably depend on exactly how much methadone you plan to take each day; lower levels, more endorphines, high levels, less to no endorphines. Just my opinion! Hope this helps.
Jenny
Do you really want me to ruin your day w/ my pharmacy story. LOL Well, I'll leave you w/ this: Told me theother day that a shipment was coming in on Friday,and they could only fill half or I could wait(this is a whole other story, I'll email you that one later).....so this morning I went in to pick it up, and get this, The pharmacist tried to tell me that I had already come in to pick it up....I was like...WHAT??? Then I pointed out to him that ths was the other medication, not the Oxyc. !!!!! He says oh my mistake......duh
I'm really freaked out about this. I don't know what kinda fast one they're trying to pull, and this is a small pharmacy run by two family members.....go figure. Anyway, get lots of sun, and don't forget your sunscream!!!lmao Don't want you getting fried, literally. LOL Keep in touch.
Sista,
Angelica
I've been watching the boards daily and keeping everyone in my prayers. I wanted to thank you all for your prayers and tell you they paid off. I went to the doctor about the tumor in my stomache yesterday. He had the results from my tests on Tuesday. There was no sign of the tumor on the new xrays. The first test it showed up on was a cat scan. It showed up before and after the contrast was given. The test I had Tuesday was an upper GI. It showed no tumor at all ! The doc said it was just gone. GOD IS GOOD !!!!!! Thank you for all your prayers. I will go for now. I'm very tired today.
God Bless Everyone,
Kerrie
My best to your daughter, too,
so happy, Thomas
Power & Magick 2 U,
luv Wizard
Angelica <>< < ><
Your words brought me to tears. Your genuine concern for others and your faith in God is truly evident. Thank you all.
I wanted to share some news with you about my daughter. She has hit another obstacle. She went to her doctor the other day and was escorted out by the police. They said some girl she knew told them she had picked up her prescriptions at two pharmacies. I know this isn't true because the pharmacies said the girl was lying. However,the girl knows she's been to many doctors and uses many pharmacies and I think she told them this .They refused to give her records to her and the results of an MRI she had done and was suppose to get the results to. I know she didn't pick up those scrips but she was heading for this sooner or later. She talked to a lawyer because the one pharmacy she went to ,the girl told them pharmacist my daughter took one from another pharmacy and the pharmacist said she would testify against the girl. I think it's in her best interest to drop it because she was using her insurance under her last married name and her present married name and they will discover this if she persues it. I fear disaster is near. She does crazy things when she can't get meds.So I ask you all to keep this in your prayers. Gods will be done not mine. I know I can't do anything. I've tried.I've begged her to come to this forum and just read. But she won't.
Continue to keep me in your prayers. The pain is rough these last few days. Their trying me on a new medicine for the reflux.It's called Nexium. It's a new one from Prilosec. So far it's no good. I'm suppose to have a colonoscopy on Tuesday but I think I have decided enough is enough for a while.
Have a good day and Cindi, have a great time dear. Love you all. You have all become a special part of my life. Thank you all.
God Bless,
Kerrie
Going through turmoil with a husband is one thing, but with a child, that must rip your heart in two. I have three children (8, 5, and 1), and i hope and pray that one day, this ugly, nasty disease does not attack them because i know, genetically, they are vulnerable!
You take it as you can, and wait on that test. Give yourself a little time to recover from the stress of all the medical doctors, because i could imagine, it gets old fast!
I pray the right thing will happen with your daughter. Sometimes, the thing that seems awful at the time, ends up being the best thing for a person!
Love and prayers, Jenny
Thanks for the encouraging words. I know this trial with my daughter will come to a head soon. I feel it in my heart. I just hope it's not a horrible ending. I talked to her this morning and she begged me for a pain pill. I think she's having terrible withdrawel. I did give her one. I know she couldn't get high off one and I hoped it might ease her a bit. But I told her she need not beg or plead for another one because it won't happen . I've held to it and she knows I'm serious. She met me at church to get the pill and she looked sober but there's such a sadness about her. I reinforce my love for her everytime we speak but I also make her listen to what I have to say. I tell her each time ,I know she's an addict and that it's a sickness. I want her to understand what all of you have made me understand. I use to look down on her untill I met all of you. Thank God for opening my eyes to the truth. But I don't want her to use sickness as an excuse to continue. I've seen more than once how quick everyone is to tell it like it is to anyone not seeking help. I plan to do the same for her and my sister and brother. I'll quit now. I'm rambleing.If we ever do have a reunion with all our forum family,we'll never get any sleep. I could talk to yall for ever I think. Thank you all. God Bless you good people.
Kerrie
Love,
Angelica
God Bless you and keep you.
Power & Magick 2 U,
luv Wiz
whitedove
Pam
***@****
Please pray for me. As I've said once before, I hope that I am admitted and you won't hear from me for awhile.
Fondly,
Pam
whitedove
Power & Magick 2 U,
Peace & Light on us all,
Wizard
Wizard: What you said is so matter of fact!.....It's like you know him, cause you've been right where he's at. The mood swings is what I can't take.. He quits for me, (see your right, he's got to do it for himself) and then he comes down like gang busters on me, and blames me for everything. He's so sweet and genuine when he's clean... We got into one of the worst arguments, we've ever had. I guess, "I just got enough!" Thank you for your time and devotion to this forum, and for that post!!! Yall(LOL) have no idea what a relief it is....to finally have someone who understands.
To both of you and everyone......if I'm not posting, don't think i've given up on the forum....I love you guys too much. I'll always be back, no matter how hectic things get on my end. I am determine to see this situation resolve one-way or another. God bless my friends!
Love,
angelica
Hey you just gave me an idea!!!! I could print the pages out, and put them in his brief case.....He works nights at a university. Hopefully, God will do the rest.....
Angelica
luv Wiz
Your doseage of oxycontin as I know it if it is time released, and I think it is, seems a little high if you are adding hydrocodone to it. I believe the 100 mg is the largest dose per pill I've personally taken. But there are factors that are not clear here either and I'm not an M.D. I personally have taken MUCH more than you have described but that wasn't the directions from the Dr. I know of people here who have taken enough to put down an elephant. Me being one of them. The part of the picture that is important is how much pain are you in and what kind of quality of life would you have without the meds? If you are taking what your pain specialist has prescribed then you should be discussing this with him or her. There are other methods of pain relief that may want to ask your Dr about the fentanyl patch (spelling?) There are others on this forum who have more experience in these matters of chronic pain relief. I can tell you that if you are going to come off of the meds you have come to the right place for support. We have a group of "angels" here who have been lifesavers to a lot of us. What is important is that you are in the right frame of mind and body for your self and your children. THERE IS NOTHING WRONG OR TO BE ASHAMED OF by taking pain medications for the relief of suffering. If you are drug free and a basket case then there is no quality of life for you or your kids. God bless dear and I will pray for your relief. I'm sure some others will be jumping on here with more advice.
Peace & Magick 2 U,
Peace & Light from above on us all,
Wizard
Hey guys! My mouse was out.....more like dead, and I just replaced it tonight. Cin; i will get around to that email. We need to touch base chickadee.....lol Hope all is well ..you too wiz!.....I haven't seen any rainbows lately. LOL
I just read the comments on this page, you guys sound so supportive, it is wonderful. My question is what are the long term effects of pain medications on vital organs? I have been on norco daily for over a year now. It is a hard road, but you guys already know that. Thanks, lyn