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Sorry to hear about your cancer. That explains it though why your doctor is treating you with pain medication. Because you have cancer and it is a proven fact that cancer causes great pain. I on the other hand suffer from chronic back pain due to three herniated discs in my lower back and they come up with this theory that alot of people have dics out and suffer from no pain at all. They also think it is easy to fake pain when you have back problems.
Take care
Dana
First of all you shouldn't have to suffer. I am going to give you a web site that has a section for Pain Reps in your State.
Basically you email this person and he or she will get back to you and give you a list of reputable physicians in your area.
No one should have to suffer and no one shuld have to take Advil for any length of time as Advil is quite a bit more dangerous than opiods.
THere are an estimated 25,000 deaths per year from patients using NSAIDS (Advil).
Here is the site, simply copy and paste it in your browser if it isn't underlined when I get finished with my post. If it is underlined then point your mouse on the web site and double click.
Good Luck
<a href=http://www.widomaker.com/~skipb/PlacementReps.html>http://www.widomaker.com/~skipb/PlacementReps.html</a>
I realize now that just because someone is suffering from chronic pain and needs more then advil or tylenol, that doesnt mean that they are drug addicts! There are plenty of them on this that are addicts and there also alot of folks that are confused because since they suffer from pain they are dependent on the pain meds....thus confusing themselves thinking they are addicted. Thank you again for your help. Now I wait for the list of doctors that care about ME and my well being.......this should be interesting!! I have yet to find one!!!
being the most current. I know exactly how you feel. They can't
give you anything for chronic pain that works unless It comes
with the stima attached "addicting" woooooo! No kidding, but
what is the difference that my wife takes zoloft, or remron, or
paxil, or any of the other anti-depressants that are too numerous
to mention. Is that not an addiction? She can't get off of these
new generation drugs, any more than a street junkie can get off
heroin. At least I am taking something, that if, they wouldn't
fill it full of Tylonel or some other equally usless analgesic;
is a natural substance and if taken in the proper doses will
not damage your liver, stomach, or other organs it is, or would
be a substance that occurs naturally in nature,if they did'nt
screw with it. Twenty years ago valium was the drug of choice
for Jr. executives and housewives who were under stress. They
were called "mothers little helpers". The some lady with an
additive personality overused her medication, wrote a book,
the medication became taboo. Ask your hmo for a few valiums now
and check out the looks that you get. It is my prediction that
the current wave of new age medicine that messes with the levels
of naturally occurring subanstances in the brain will be the worst medicine that this country has ever known. What is the difference if you HAVE to take every day for the rest of your life and addiction? I'm sorry for rambling, but some of these
"care-givers" have never experienced chronic pain so you will
never be able to take a dose of an opiate like you can a dose of
Zoloft.
ever invented
What name do you use at the MGH Site? I will look for you over there as I frequent that site and only drop in here occasionally.
Peace,
Ronnieg
I forgot to give you this site as I bet I confused you. This site has an many forums including addiction and Chronic Pain forums.
I asked you your name in there and realized that the site I gave you was for something else. But please check out this site as the people there for the most part really care about everyone.
<a href=http://neuro-mancer.mgh.harvard.edu/cgi-bin/forumdisplay.cgi?action=topics&number=2&SUBMIT=Go>http://neuro-mancer.mgh.harvard.edu/cgi-bin/forumdisplay.cgi?action=topics&number=2&SUBMIT=Go<a/a>
Good luck with your search in finding a compassionate doctor.
Ronnieg
e-mail me:
***@****
good luck
So last night I went to the ER with yet ANOTHER horrible migraine(have CHRONIC, intractable in most cases migraines) which had been going on for about 5-6 days. (That is how I got into this whole pain medication mess in the first place) and I was given Dilauded (Hydromorphone) 4mg IM. Wow, that knocked me on my ass! I didn't like it AT ALL. Made me throw up about 4 times, plus I couldn't walk straight and was hallucinating. It sucked. Have any of you ever has this medication for pain? Anyway, the doc gave me an Rx for these pills, and I want to know if the same things will occur with the pills. I want to take them for pain, but don't want to wind up sitting up all night scratching and brushing away bugs that are landing on me! :)
Any info would be greatly appreciated! Peace...
P.S. - don't jump on me because this isn't the place for blah blah blah...I don't talk about this to anyone else, anywhere else - so YES it is the place to talk about it.
Dilaudid is very similar to heroine in my opinion as far as strength of painkilling effect.
I think that if you are used to hydrocodone, you should stick with it. Just my opinion.
Since they're pure Dilaudid, I imagine you could pulverize a modest amount and snort it, just to see if the stuff had less side effects when it didn't have to go through your digestive tract to get into your bloodstream. As long as you were careful with the dosage, what harm would there be? I mean, it has been prescribed to you. I know that oxycontin is great snorted.
Don't get me wrong, though. I haven't done this and am only thinking out loud. Do what you think is wise.
Hey tom - did you get my e-mail? I mailed you at patflann...you know the rest...I wasn't sure if the account was still active...but if it is I'd like to hear from you...You know, I was thinking - Propoxyphene, Darvon, I've been told is in the same family as Methadone...So in essence...you've kind of been doing the MMT treatment accidentally...probably helping yourself even at 16 a day Mg's wise over the Methadone...If taking the Darvon doesn't end your cravings for opiates, I'd say it's still a definite mental thing...the Darvon, since it's in the same family and is a much longer acting opiod than say Hydrocodone...you may do yourself a favor and just stick with that...I only butt my nose in because I've read your interest in MMT to Dan...And maybe he can help here. If Darvon is in the same family as Methadone...and say 65mg's of Darvon = 3 milligrams of Methadone or something...you may be able to save yourself some money etc. OR if the Darvon "therapy" isn't working for you to begin with - what's to say that Methadone will do anything more? Especially if it turns out MG wise to be a stronger opiate that what you are taking...Might turn out to be counter-productive for you - actually increasing your opiate intake over the Darvon...Something to think about...Tell me to shut up and mind my own business though if I'm intruding...Really...Thanks all for the ear - Mike
Before I had my hystorectomy, the doctor gave me a prescription for Tylenol 3. I took it as directed. When I called the doctor's office, the nurse said it wasn't in my chart to get it.
I wrote a nasty letter to the doctor saying "Will you please tell your staff that I'm not taking this drug for fun." They called me and apologized and gave me the script, but look what I had to go through.
I went to a pain clinic. $750 for the first visit. 6 weeks of physical therapy at $75 a pop. $120 per shot for prednolisone.
After a year and all that expense, I was still walking with a cane. For about $36 I could have gotten 12 months of relief, allowing me to be more mobile and perhaps improve my condition(s) but no. I finally had to write the doctor and tell him I could no longer afford the treatment.
I have a handicap placard for my car and every once in a while, a friend who's on regular pain meds will save some for me, which I take only on the days when I really can't stand the pain anymore (usually after 4-5 days, or when it hurts during the night)
I'm sorry to be so long winded, but that's my story.
Paul you are too funny.
Annie
I have run into a problem now and would like to know your opinions.
In May I was in a what I thought a minor car accident when I at that time thought I fell asleep at the wheel driving home from a singing compitition I was in. I went left of center on the expressway (thankfully there is a wide strip of grass between the two directions of traffic) I became aware enough to try and get back on the freeway and overcorrected and did 2 360's and slammed into the ditch on the other side of the road. I was the only car involved. I was taken to the ER the transferred to a hospital closer to my home. My heart was checked out and when nothing alarming showed up I was released after 2 days inpatient. The next morning I woke up and my legs were like wet noodles and I fell to the ground, I also couldn't seem to make it to the bathroom in time and a few times didn't even know I had to go to the bathroom until I felt something warm running down my legs. Thinking that this was neurological (due to hitting my head in the accident) I was sent to yet a different hospital where my neuologist works. It was there in the ER that my Low O2 levels were diagnosed along with scarring in both my lungs. I was admitted for further tests. A few days later due to low B/P and the low O2 levels I was transferred to the CCU. During this entire stay however I had been asking for Ambien which I take at home to sleep. (yes you can say I am addicted to it but I would rather say I am addicted to sleep because without the Ambien I will not sleep literally for days) I would ask Dr.s about it averytime they came in to see me but it seemed like everyone wanted someone else to say yes first and those who told me they had no problem with it seemed to have a problem writing it down in my chart.
So Like I said I was transferred and on top of no real sleep for about 5 days and having PMS I went off the deep end at about 4am. I told them I wanted to go home and unhooked myself from the moniter and demanded the catheter be pulled out. I had a picc line so it was decided to wait until my parents came (prop to see if they could talk some sense into me!!) before that was pulled out. Right after my parents arrived I remembered that I had put a few Ambien in a small case in my purse *I tend to sleepwalk and take more at night so I had split them up into about 6 different locations* I wasn't sure if I had taken them or not so I had my mom get my purse and I found that there were 4 pills there. Well I had enough and decided to take one. Just as I was putting it in my mouth I was caught by the nurse. Well she searched my property and I was properly scolded and I still keep my ambien because I was sitting on the little container and she didn't ask me to stand up. She also accused my parents of bringing me drugs. She asked me if I would be willing to take a drug screen to which I said yes and I took it. I was transferred back to the floor that day also. That afternoon while I was in the bathroom someone knocked on the door and asked for me by name. I said I would be out in a min. to hold on. She didn't and yelled thru the door that I had come up positive for benzodiazipenes on the drug screen and would that suprise me. I told her yes and was just about to open the door when I heard her say "yea right" very sarcastically. this stunned me for a second and by the time I had opened the door she was gone. The Pt's visitors in the room at the time looked at me like I was a criminal and they should consider getting there loved one away from me ASAP. I also saw a few looks coming from people in the hall. It was like there was a big neon sign above my head that said druggie!!! I was mad ! I then began looking up all of the medications I had been given by my Dr's and that the hospital and this nurse could have varified and found that one component of a medication prescribed by one of my specialists was a benzodiazepene!!! The label only said CDP and I never really looked it up. Now I am sure my chart at this hospital has me labeled a druggie.
I have been having severe headaches with dizzyness, extreme fatique and have not been sleeping even with the Ambien for about 4 days now. I really feel I need to go to the ER but I have noticed even before this that Drs are asking what has worked in the past.
Maybe it is just me being paranoid but I don't know how to answer this esp. now. Before the accident I would just really say not much but I am willing to try anything. They then ask if Vicoden or Darvocet has helped and truthfully no they haven't but my answer is always the same. I do know from past exp. it takes strong meds to get the pain under control and sometimes percocet has not even helped. Now I am afraid if I go back to this ER ( which I do only because if I am admitted they will put a picc line in immediatly saving me getting stuck multple times as I have really bad veins) I will be labeled a drug seeker and what happened in May will now forever effect treatment at this hospital.
I told every Dr I had in May what happened and most said they didn't blam me and that they would prob have done the same thing if they were in my shoes... but since they also said they didn't have a prob. with the Ambien and that never made it to my chart I little faith that any of this did either. I feel this nurse majorly violated pt confidentiality but I do not know who she is sho reporting her is next to impossable and I am afraid like I said I now will be labeled a drug seeker. I do not go to different ERs unless my Specialist works out of on specific hospital and that is who would have the most control over my care fpr the same reason. What do you guys think????
SO, I was confused about one thing -- were you on Ambien when your car crashed? I have heard of that happening before and the sleep walking and not remembering stuff sounds like it could be a problem. ALso ambien is a benzo so that is why your drug test turned out that way. It is a very dangerous drug and can be hard to get off.
I understand how humiliating it is to have a doctors and nurses treat you like a criminal, it has happened to me before. But I hope you dont mind me saying that it does seem like you are an addict. I know you have real pain and sleep problems which makes keeping this stuff under control even harder. If you think your file has been flagged, I would come clean with the specialist you trust. If there is anyway to get off the Ambien, I would do it. The sleep walking and stuff is so dangerous. Thank God you were okay, but next time another car could be involved or worse. Have you heard of Rozerem? It is completely non narcotic and helps a lot of people with insomnia.
I just wanted to clarify that so someone who's a benzo addict doesn't go and take ambien thinking it will help with withdrawal, when it won't do any good for a benzo user and will more than likely prolong withdrawal effects.