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help coming off 100 fentanyl ,

I've been on 100 patches for over 4 years now for my knee after finding out I had been wrongly diagnosed and 4 knee ops later which I have not needed I had a tubular re alignment,I have now been told to come off this medication just am really scared as I don't have much faith as you can imagine.I spoke to my GP and to be honest I was only spoke to for 5 minutes about it and no real information .I know there are going to be effects but really don't know what to expect,which is what's scaring me,I've changed both physically and mentally since being on the patches and not for the better either ,does anyone have any advice that may help me .thank you , uk poster.
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1235186 tn?1656987798
Thanks for the update. Congrats on your taper. What mgs are you on now? You are doing awesome.
Keep up the good work.
Debbie
Helpful - 0
Avatar universal
Well it's been a while,but I'm doing good on my reduction.I'm pretty close to being drug free very soon ,all the advice has been great thanks
Helpful - 0
1855076 tn?1337115303
Follow the Thomas recipe and stay very well hydrated.  You really need to do it very, very slowly.  It's going to take a while so be patient.  Make sure you stabilize completely with each dose you drop.
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Avatar universal
Well its been a good month now since my last post ,I'm finally signed up to a drug program but only coz I've pushed hard for it.i start next week so keep u informed,thanks for all the ongoing help,David
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1 Comments
Totally clean Yee ha,my life back and my old self, hard work,determined,support is the key, no magic wand.
Avatar universal
Finally flipped,my head is in bits the whole think has finally broken me.
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Avatar universal
Thanks gnarly,I thought my leg opp has taken a fight to get my head round but the more I read about this fentynal its pretty scary sh*t cheers for support
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Avatar universal
Hi...well I hope you get help soon fentynal is a real mother fer to come off off  we have several members who have done it a slow taper is best keep us posted  and dont use the diasapam it has its own vises to get off of  it is ez to become cross addicted trading one drug for another  keep posting for support and always remember it is not hopeless where here to help..........Gnarly
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Avatar universal
Well back from the GP,been put back on the 100s and Dr is referring me to drug&alcohol clinic but knowing uk health this could take ages,if I took illegal drugs or an alcoholic and had the same problems they would be throwing help at me left right and centre.but that's the uk. They have gave me some diazepam which I'm not to happy about. Its just pass you on to someone else,ill keep you all informed.
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Avatar universal
Glad you did that. A doctor supervised taper is the only way. Good luck and lkeep us updated.
Helpful - 0
1855076 tn?1337115303
Has your doctor told you his plan?  A very long, slow taper is best.  I came off by myself and didn't taper and it was rough.  I also came off several meds at the same time and had underlying health issues so it was a little rough for me.  Staying hydrated was my biggest challenge.  Drink its of fluids, Popsicles, fruits with a high water content.  I was dependent versus addicted so I didn't need any aftercare but if you're addicted,  an aftercare program is essential.

Has your doctor told you his plan for tapering you down?
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Avatar universal
Update,I am having to visit my GP today the last 3 days have been hell, surely they must offer some proper program because what I've been going through cannot be felt with alone.
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Avatar universal
Thanks for the advice so far I've found out more than from my Dr
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Avatar universal
You need to taper slowwwww.  Literally drop once each month or 2.
Helpful - 0
Avatar universal
Hi Dnuk Welcome to the forum..Well you came to the right place looking for advice coming off drugs, we have a lot of tips on how to get thru the wd (withdraw) did the Dr. say by how much they would be lowering your dose and how long they will taper you for ? This info would be helpful.. You will feel symptoms as they lower your dose the best tapers are long and slow getting use to the last dose before dropping again so the wd are not as acute. Other fent users that have gotten off it will chime in I'm sure and give you approximate duration of wd I can say that you will feel so much better off as will your body bloating the uncomfortable feeling when it gets close to changing all this goes as your normal body functions right themselves.. Yes it is well worth the pain of coming off. I just wanted to welcome you and add my support In that you can do this and we will be here to support you. lesa
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