Adrenal Tumor

Okay, got a question.  I have an adrenal tumor which is still small but has doubled in size in 2 years.  I feel awful - intermittent tremors, adrenaline rush at times, general malaise, nausea, ridiculous unexplained weight gain of 9 pounds in 8 days.  Went to surgeon yesterday and he did bunches of blood work but he says it is unlikely that my symptoms are caused by this tumor.  I think it ought to come out if it's doubled in size, but he disagrees because it is only 2.8 cm.  Every member of my family has had some form of cancer and I don't see any point in waiting til the thing gets bigger.  Any input anyone?

[evo123]

I have recently been diagnosed with an adrenal tumour.  I believed all my symptoms to be related but hormone tests have shown otherwise.  

What tests have you had done?  If you believe this to be a Pheochromocytoma then request a plasma free metanephrine blood test or if not 24hour urine collections to test for metanephrines (blood test is more accurate I have heard).  What are your blood pressure readings?  Do you have any other symptoms?

I also wanted my growth to be removed whether it functions or not, or grows quickly/slowly.  My opinion is if it's presence raises concerns enough to warrent further MRI scans periodically then surely the removel (removal) of it is justified.  I do not feel at ease with the knowledge that I have a growth that could one day cause me serious harm and it is being left there to develop.  

[evo123]

I have also been told that when a growth reaches 3cm then removal is justified.  If tests come back within normal ranges I would try putting this forward for reason enough for removal.

Also, if it is a Pheochromocytoma then tests may be normal if you are not having symptoms at the time they are done.

[rumpled]

Are they testing you for Cushing's as well? Cortisol would cause the weight gain like that. I would find another doctor.

[Barbstar]

Thank you so much!  You have just confirmed exactly what I think too.  Yes, they are testing for Cushing's.  24 hour urine and bloodwork for metanephrine and numerous adrenal hormones.  I'm going to go see this doc on Tuesday but if he continues to jerk me around, I'm with you and will undoubtedly find another doctor.  Seems to me that, if it doubles in size again in 2 years, it will be WAY past the point that is considered dangerous so I see no logic in waiting until I am older, sicker and it is bigger.  Will let you know what happens Tuesday.

[evo123]

Good luck for Tuesday

[Barbstar]

Okay, latest update.  Scheduled for surgery to remove my left adrenal gland this Wednesday.  All tests were positive indicating that the stupid tumor is indeed producing.  So it's coming out....  We'll see if it's benign after pathology.  Thanks for all the input.