Adrenal Insufficiency Community
Adrenal insufficieny with normal acth test??
About This Community:

This patient support community is for discussions relating to Adrenal Insufficiency.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Adrenal insufficieny with normal acth test??

Hi all,
I've been a regular on the Dysautonomia forum with Postural Orthastatic Tachycardia Syndrome.  I think before I get in to a ton of questions I should see if I'm even in the right place.  I've had a 24 saliva test and then a 24 hour urine test which both showed low cortisol levels but then I had the acth stimulation test which turned out to be completely normal.  Is it possible to still have some kind of adrenal or endocrine issue with a normal acth test? I keep thinking the low cortisol levels must mean something.  Anyone have any thoughts that might help here? My endocrinologist seemed at a loss and I want to make sure that I'm not missing anything.
Thanks so much for any help you can offer!!!
-Lala
Related Discussions
4 Comments Post a Comment
Blank
657231 tn?1453836403
Unfortunately, testing cortisol is part art and part science. You tested 2 days if I get your testing correctly - the saliva test covered one day and the urine another? That is not a lot of testing. Was it serum cortisol that was low in the morning? Have you had serum cortisol testing as well? Free cortisol can be interfered by medications and other things so it pays to test a lot to see the entire adrenal (were other hormones tested) and see what is up.
Is your sodium and potassium normal? The POTS could be related to an issue with them - were renin and aldosterone tested?
Blank
Avatar f tn
Ask for the Insulin stress test, which will also test your CRH response, which stimulates ACTH.

Blank
1401877 tn?1288111239
Thank you both for your comments, I just emailed my endocrinologist with your responses to see what he thinks.  I'm sure the POTS is related and I've spent over a decade trying to figure this out and hopefully some day someone will figure it out and I'll get some relief!!
Blank
657231 tn?1453836403
Make sure you get copies of all your tests!
Blank
Post a Comment
To
Recent Activity
5931836 tn?1466963790
Blank
ridey777 added the Heart Rhythm Tracker
19 hrs ago
5931836 tn?1466963790
Blank
ridey777 added the Anxiety/Panic Tracker
19 hrs ago
5931836 tn?1466963790
Blank
ridey777 added the Asthma Tracker
19 hrs ago
Adrenal Insufficiency Community Resources