Adrenal Insufficiency Community
Desperately seeking help
About This Community:

This patient support community is for discussions relating to Adrenal Insufficiency.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Desperately seeking help

My serum cortisol level is <1 and ACTH= 5.4. I take 40 mg Decadron weekly on Thursdays for Myeloma treatment and understand that this will lead to secondary adrenal insufficiency. I feel as though I am on deaths doorstep Monday through Thursday. My Dr tells me this is just how it works, but I am not satisfied with this answer. Any insights or recommendations. P.S I have been feeling like I was having adrenal insufficiency since well before the Decadron therapy started but my M.D.'s have declined to address my concerns for over 6 months.

657231_tn?1390151580
I would go see an endocrinologist. With the AI - you may need other support - as in florinef and testing to see if other hormones can be brought up to make you feel better.

Are sodium and potassium in range? Do you crave salt? Your ACTH is being suppressed by the decadron - but 40mg is really high. 5 to 7.5mg is a completely suppressive dose for the adrenals.

The once a week dosing schedule too - that would leave your adrenals high and dry - no tapering to get them to wake up and leaves you at risk for everything.
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
10584330_tn?1411329198
Blank
Ahmed92 joined this community
Welcome them!
12 hrs ago
Avatar_m_tn
Blank
labyrinth28 longing for jannah Comment
Sep 20
Avatar_n_tn
Blank
daniarcade commented on When Your Cold Is Not...
Sep 20
Top Thyroid Answerers
Avatar_m_tn
Blank
gimel
MI
168348_tn?1379360675
Blank
ChitChatNine
798555_tn?1292791151
Blank
LazyMoose
MN
657231_tn?1390151580
Blank
rumpled
Northern, NJ
1139187_tn?1355710247
Blank
Brucergoldberg
dallas, TX
1530171_tn?1362547225
Blank
TheLightSeeker
London, ON
Adrenal Insufficiency Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Thyroid Answerers
Avatar_m_tn
Blank
gimel
MI
168348_tn?1379360675
Blank
ChitChatNine
798555_tn?1292791151
Blank
LazyMoose
MN
657231_tn?1390151580
Blank
rumpled
Northern, NJ
1139187_tn?1355710247
Blank
Brucergoldberg
dallas, TX
1530171_tn?1362547225
Blank
TheLightSeeker
London, ON