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Does anyone else have the same issue?

Here's my story. I'm new to the site, so here goes. Back in 2011, I started having a lot of fatigue. I started dropping weight. My blood pressure was running around 84/56. I'd been hospitalized two twice before, but nothing was found. The doctor told me to come in for a four hour test, which ended up 7 days of hospitalization. I was diagnosed with adrenal insufficiency. They ran every test known to man. I failed 2 stress tests. I worked the night shift. 2 Ends, 2 Hematologist, 2 cardiologist, & 1 internist later, I still don't have a concrete diagnosis. I was in a crisis when they first found it. Cortisone level 2. Since then, all other specialist can't find anything wrong, other than to tell me, it's my adrenal glands. The endos keep saying, no, but my last cortisone test was a 6, but I took test after my night shift was over. Mean while, I keep getting sicker. I drink coffee just to make it to work. My joints hurt, I can't sleep, low blood pressure, I keep lay's potato chips to keep my pressure up, dizziness, some nausea and vomiting. I can't exercise anymore so I've gained weight. On top of it all, I have no family support. They think I can just take a nap and get over it. I'm lost. I've started to see an herbalist. They took 1 noninvasive test and found it right off the bat. I'm hoping for success with them. Sometimes I get so sick it scares me. Nobody understands. I feel like an alien.
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Avatar universal
Hello. I am confused by your post. You are diagnosed, so are you on a replacement? Which steroid are you taking?

If your BP is still really low, perhaps you need florinef?

If your doctor is not helping, find another. Get an endo to give you the proper scripts so that you will feel better.

As for family and friends, I use the internet as it is the same.
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