I have adrenal fatigue and hydrocoritsone makes me dizzy even at low dose of 2mg. I take 4mg throughout the day just so that I can get out of be and go to work.
Just wondering if anyone knows why this happens? is it low potassium? low blood sugar levels? I will ask my doctor to test this next time. I also get really thirsty and am getting some extra facial hairs (all these side effects are listed on the hydrocortisone leaflet).
I also have no thyroid so this affects my thyroid meds because I can't increase my T3 because I get even more tired if I do. I don't know if I need more T3 or cortisol because I'm forgetting words and my muscles are getting weaker (both are symptoms of low thyroid and adrenals)
my test also showed low DHEA. Will taking DHEA instead of cortisol also help my adrenals? Should I just take a lot of salt instead? I was trying only a pinch of salt with water in the mornings but maybe I need more like 1/2 teaspoon?
How can I help my adrenals recover? In Australia they don't sell that adrenal gland dried stuff (forgot the name!).
Has anyone read that book The Safe Use of Cortisol by William McK Jefferies MD? I can't find it in australia and in this website is really expensive (US$90). Just wondering if anyone has it, if they can tell me what it says about dizziness.
I have a lot of dizziness at times, and I am not on HC. I think it is because of the adrenal fatigue not the HC. You might want to check your aldosterone level. It might be low. That affects the dizziness.
I have had thyroid cancer and had it removed and I have adrenal insuffieciency, not just fatigue.....I cannot get myself below 10mg of hydrocortisone daily and still dizzy and sweaty...sort of what I imagine menopause would be like.....then my oncologist enlighted me alot more than my endocrinologist. He said quit worring about being on a high dose of steroid....he said it has no negative affect on the body as long as it is replacement therapy..... so he increased it to 15 mg daily 10 in am and 5 at 2pm and he said if I became ill to increase it to 20mg. Now I know this sounds like alot and kind of rediculous, but I nearly died in March by gradually dropping my steroid dose down to 5mg....I went into a full adrenal crisis and shock....luckily my husband was home, I hit the floor and lost control of my personal systems...if you get my drift....I only remeber flashes, but the EMS got here and grabbed me and ran.....no attempt at anything because I was blue....my husband and I are both RNs and did not recognize this coming because we did not realize the effect on TO LOW OF DOSE OF CORTISONE ON YOUR ADRENAL GLAND, AND WHAT A SIGNIFICANT ROLE IT PLAYS. I would feel my legs buckling and just not right and my Dr said people dont realize the gravity of the adrenal system...if its tired from STRESS...yes stress is your worst enemy with adrenal disease, then you need and use more cortisol which if it is not produced by you, needs to come from somewhere. That is one reason it is really important to be able to guage your own body and recognize when it is stressed and adjust your meds accordingly with your dr's assistance. I have felt so much better since I took that advice, but be careful. That episode of shock I went in from strictly to low of a dose of cortisone prescribed by my dr who also wanted me to go down more....haha...anyway I had to be resuscitated and spent almost the entire month of march in the hospital and I ended up with liver, heart and various other parts damaged...luckily, they have healed and I am in recovery, and take that steroid replacement so seriously....my life depends on it,,,does yours?
I know you did not write to me... but I have no adrenals and used to have Cushing's, so have done some living in this aspect too...
A total to 15mg is still a normal replacement dose - actually for most doctors on the low side of dosing but in the realm of what people take. 15-30 is what I hear most people take and divided doses like you are doing is better to imitate what a normal body would do with a cortisol rhythm.
Too little cortisol will dump you in a crisis - but too much can be damaging too (but 15mg is not too much). Are you secondary or primary and did your doc go over the importance of sodium and the role in a crisis - as well as potassium?
If you have AI - you need cortisol to live - and while you need to be careful not to over - stress dose so you don't give yourself steroid-induced Cushing's, the usual advise is fever, double dose, vomiting, double dose etc - push fluids and do you have an emergency kit with a shot in case you cannot take the pills b mouth? Something like zofran or phnergan in case you are ill to prevent vomiting? A medic alert bracelet or the like? There are links in the health pages about such kits and also stress dosing information.
Many thanks for your comment. I carry an injection, blue card, plus an SOS on my mobile, and am aware of doubling up on hydocortisone in a crisis. I feel I am a walking time bomb but have everything covered in case of adrenal crisis. The injection is a problem as I have to draw the cortisol from the vial then transfer it to a smaller needle and then inject. There is always a fear that I will go into adrenal crisis and be on my own and unable to do the above. The pen injection which diabetics have would be ideal but are unavailable at present. When I had all the ops for Cushings I was hoping I would feel much better but it seems the high cortisol levels in my body did there harm as it was 8 years before I was diagnosed. I also had blood clots on my lungs a near death experience which could have been caused by hydrocortisone.
Sorry in what context do you mean secondary or primary. I am aware of the sodium and pottassium problem. Had a major problem at one time but know more about it now and am aware of the symptoms. I also take flurdrocortisone.
Did you have piturity and adrenals removed because of cushings.
Ask for a script for an ACT-O-VIAL. The pharmacy may give you issues as they recently oddly changed the stock number for it - but that has the fluid and the powder together so you can just smash it and then draw it up - so it is faster and easier. Google it - solu cortef and solu-medrol come in that form. That is what you want anyway as you want a fast acting steroid.
They don't have a market (ha ha) for the easy pen like for diabetes - plus we need an IM not a sub-cu needle.
For adrenal insufficiency - it is primary if the adrenal stops working and the pituitary still works (they typically get tan as ACTH is high for the pituitary working overtime to keep trying trying trying!) and secondary is when the pituitary is when the pituitary stops signalling the adrenal so the loop is gone.
I had pituitary surgery for Cushing's and a prolactinoma. I also had both adrenals removed as well as Cushing's did not resolve. They think I have Nelson's - my ACTH is super high.
I have had pituitary surgery three times in 8 years. Plus gamma knife. At the fourth recurrence, they decided to remove my adrenal glands. This was 2 1/2 years ago. When they removed my adrenal glands, they said everything would return to normal after full recovery. Not True! My life will never be the same. I noticed in your post that you have had Cushings surgery and your adrenals removed. I was curious to know if you had a drastic change in your life and lifestyle after adrenal surgery. How active are you?
Yes, Rumpled is who to ask, but I know some stuff about coping with side effects of low adrenal or adrenal med side effects. Either way, on the dizziness thing, I have found a way to cope with it. As with many meds, particularly adrenal meds, side effects can be just awful and make you sick. What I do, which works, and I take Dexamethasone (sp?), which is a particularly strong adrenal medicine, and it makes me very dizzy, like when I stand or try to walk, I feel very heavy, I can lose my balance, and if I am down on the floor, I can swing around onto my back in no time at all.
Well, there is a product, you can find it in various drugstores, and it's for motion sickness. It's a set of soft, material-covered elastic lower arm bands that you wear around your wrist area, it has a round, smooth plastic "pressure point" thing on it. If you will pull one of those out of the little boxy packaging, altho they say use two on each arm, for me one is fine, and put it on your wrist, just above your wrist bone, and between wrist bone and center of wrist, closer to center, that button will push on a pressure point, and it will almost instantly stop most of your dizziness. I keep it around with me wherever I am in the house, it's sitting right here where I type, and if it isn't, it is always on my coffee table in a little cute box of doo-dads.
That way, when you get up, PUT THAT GIZMO ON every time, and wow, you can get up in one motion, and then when you walk, you do not tilt all the way over or even feel too uneven. It stops, in the main, dizziness, from either your adrenals being low or adrenal meds. HOWEVER, if you feel dizzy from not enough adrenal cortisol in your bloodstream or whatever is making you sick, you MUST realize the sign means low adrenal, and you should get your blood tested.
Me, I take 1/2 of a pill of the Dexa stuff, and some days I need more, some days I need less, and so next time I see my doc, I'm going to ask for more pills but less of a dose... that way I can take a little more, but not have to cut a pill in half most of the time, which right now my pill is too strong, so I have to cut it in half, a real pain in the neck, but other times I need a little more, like today. At lunch, I'll have to cut off a tiny piece to make it thru the day, and I've been particularly dizzy, so the not quite right feeling is being low on cortisol... like it's been MIGHTY cold lately, quite a strain on the adrenals, so I need a little more, I do believe! Sorry if that got complicated. Maybe rumpled can straighten out my message, and girl, if you need to tell me anything, go ahead!
For anyone else who wants to talk about side effects of adrenal medicines, PLEASE start a brand new post, and by golly, I'll put what I do for various side effects. And others here, you see, they are dealing with the same stuff, and they might know some tips. Now, this advice here is for adrenal meds, but will temporarily help with ANY dizziness, but being dizzy and having an adrenal problem and not being on meds is a SURE-FIRE SIGN you gots to get in to your family doc's referral to an endocrinologist and get your blood drawn, to test where your adrenals are at, and get you on some replacement-type meds!!! And keep in mind, diff meds have diff side effects... I had one that put me in the deepest depression I've ever been in, and I had to CHANGE meds, so that's another solution. Hope some of all this talk helps some folks, and of course you, iBlessed!
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