Adrenal Insufficiency Community
Looking for Answers
About This Community:

This patient support community is for discussions relating to Adrenal Insufficiency.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Looking for Answers

I have an active prolactinoma and adrenal insufficiency.  I am taking 10 mg tid of HC and cabergoline.  I am still suffering from fatigue, nasuea, low grade temp, high heart rate (but low bp) and constipation.  My endo says it is not an endo issue and my primary care doc quit.  I tested negative for aldosterone difficiency.  This has been going on for 6 months, is this normal for the condition or do I have another complication that has not been diagnosed?
3 Comments Post a Comment
Blank
657231_tn?1390151580
If you have low BP - what are your sodium and potassium readings? Are you taking florinef? Any testing on renin and aldosterone? Just aldosterone? Nausea is a sign that cortisol is too low - so it is not a good sign.

I would say your endo is not that good. Do you have a neuro-endo at a pituitary center? You should seek one of them out - as you should probably be getting more testing.

Your dose of HC is pretty low. What you are feeling is not normal - it sounds like you are under-treated. I take salt and florinef, and more cortef. There could be other issues - but you would need testing.
Blank
Avatar_f_tn
Renin and aldosterone tested normal, which suprised me, because I thought that was a perfect fit. Endo is best in 200 mi. radius, but I have wondered if I need to go to a Mayo or something.  I do not live in a metro area, so there is definitely no pituatary center.

Thank you for your comments, sometimes I wonder if I am crazy or just in a bad dream.  I can't even find a good primary care dr. that will take me on, its too rare and complicated for them to want to deal with.  Thank goodness my cousin who is an allergist is atleast willing to help me figure it out and order testing!  I just found out my IGG (auto immune) is low and we sent off testing for Crohn's and other GI inflammatory disorders, along with scheduling a colonoscopy.  

What testing would you suggest?
Blank
657231_tn?1390151580
Glad you have at least one doc that is helping you out.

Not a doc - and it could be literally thousands of things IMHO... so hard to say!

Pit centers are at larger hospitals and universities so there may be one around. I travel pretty far myself.
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
168348_tn?1379360675
Blank
ChitChatNine is happy! Comment
Jul 22
Avatar_n_tn
Blank
kmlksl66_ commented on An Insider’s Guide to...
Jul 21
922048_tn?1387946184
Blank
Sherri90049 commented on photo
Jul 16
Top Thyroid Answerers
Avatar_m_tn
Blank
gimel
MI
168348_tn?1379360675
Blank
ChitChatNine
657231_tn?1390151580
Blank
rumpled
Northern, NJ
1139187_tn?1355710247
Blank
Brucergoldberg
dallas, TX
Avatar_f_tn
Blank
UmmYeahOk
Dallas, TX
Avatar_f_tn
Blank
helyanna
Finland
Adrenal Insufficiency Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Thyroid Answerers
Avatar_m_tn
Blank
gimel
MI
168348_tn?1379360675
Blank
ChitChatNine
657231_tn?1390151580
Blank
rumpled
Northern, NJ
1139187_tn?1355710247
Blank
Brucergoldberg
dallas, TX
Avatar_f_tn
Blank
UmmYeahOk
Dallas, TX
Avatar_f_tn
Blank
helyanna
Finland