ADRENAL INSUFFICIENCY COMMUNITY
Need help, is this right forum?

Need help, is this right forum?

Been to doctors for two years kicking and screaming, but might finally be on to something.  Someone on these forums read some of the labs I finally got ahold of and said that maybe I am barking up the wrong tree as far as Cushing's, and try the Growth Hormone Deficiency support group, but I can't find it.

I do know that I am only 4'11, have thinning skin, osteopenia, depression, EXTREME fatigue, I have no hair on my body left other than the hair on my head (thank heavens for that), and just sick, sick, sick.  I went to this doctor two years ago and she was SO HATEFUL, I begged her to do more testing, but she didn't believe me.  

One other thing that I have, and this has happened to me twice before, once when I was in my twenties, and once in my late 30's, and no one knew why, and now this third time.  But, I gain a massive amount of weight!  First time, I gained 90lbs., second time, 84lbs. and this time I have gained a hundred pounds and can barely move around. The first two times, within a year, I started losing it as fast as I gained it, (in one year), but this time, and probably because I'm older, I'm not losing it.  I am leveling out, but instead, I'm getting SICKER AND SICKER.
I have horrible insomnia, muscle cramps, diabetes, hypothyroidism, GERD, inflammation of the esophogus, 4 crushed discs in my back (can't hold this weight) breathing problems (am on oxygen and CPAP), RLD, and on and on and on.  Anyway, I found my labs from when this first started, and I would like to know if we are barking up the right tree?

TOTAL T3, my range was 200-standard range is 90-180 units
DEHYDROEPIANDROSTERONE SULFATE- my range was 1-standard range is 26-200 ug/dL
TSH ULTRASENSITIVE-my range was 0.64-standard range is 0.50-5.00 mIU/L
CORTISOL-my range is 1-reference ranges are AM fasting (she never had me fast)0-22 ug/dL
                                              reference ranges are PM fasting-<10 ug/dL
ADRENOCORTICOTROPIC HORMONE-my range is 4-standard range is 6-58 pg/ml (test information ACTH)
CORTISOL (another time)-my range was 2-standard was AM fasting-9-22 ug/dL---PM fasting-<ug/dL
  (collected 6/1/  9:43am  and 6/2-2:24am
ADRENOCORTICOTROPIC HORMONE-my range was 5-standard range is 6-68 pg/ml
   (collected at 6/1-10:39am and 6/2-10:03pm
AFP TUMOR MARKER-my range was 31.5-standard range is 0.0-9.0 ng/ml
  (collected on 7/2/10 at 4:07pm and resulted at 4:42pm
ESTRADOIL-my range was 30 pg/ml (mid follicular phase is 27-122 pg/mL--mid luteal phase is 49-291 pg/mL
   ***postmenopausal females not on hormone therapy range is <20-40 pg/mL
FOLLICLE STIMULATING HORMONE-my range was 75-standard range is 1-19 miU/ml
  (follicle phase-4-9 mIU/mL--mid-cycle range is 5-23 mIU/mL--luteal phase is 2-5 mIU/mL--***postmenopausal is 17-114)
  (collected at 2:17pm)
ISTAT CREATININE-my range is 1.00-standard range is 0.6-1.3 milligrams per deciliter (isn't mine on the "high" side?
TSH ULTRASENSITIVE-my range was .57-standard range is 0.50-5.00  mIU/L
FREE T4 W/REFLEX FT4-DIALYSIS-my range was 1.20-standard is 0.58-1.64 ng/dl (isn't mine on the "high side?")

Please point me in the right direction, as I am about to give up!  I did find a neuro-endo and had my PCP put in a referral, but it is at the same hospital that this DOCTOR? did these tests and sat on all of this the entire time.  I begged her to help me, and she said I "dind't trust the doctors at the endo department" and kicked me out!

And, this doc is on the pituitary site as one of the top doctors to help!  I will straighten that out!


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Alas, re doctors, I have had many a top doctor tell me stupid things - most of them tell me I am not sick, never have been etc etc.

Your ACTH and cortisol levels are too low - that should be obvious to any doctor so that is rather weird... and you have a tumor marker that is elevated - any imaging to confirm or deny?

Do you have the option to go to a different set of doctors?
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