doctor appointment to am questions I should ask??

[kidzxpress]

OK, so I posted before, I could not get into the endo my cardiologist referred me to until december, you would think living in Columbus Ohio home of The Ohio State University I would be able to be seen sooner.  At any rate, I called the Univ of Cincinnati and they initally told me mid november, but while talking to the lady on friday, there was a cancellation for tomorrow!!!!   I already faxed office notes from the cardio, lab results, the letter from the idiot endo I initally went to see,  that said my cortisol was low and it indicated adrenal insufficiency and went onto say it was not an endo problem to go back to the ob/gyn, who referred me to a totally different endo from him and the one my cardio referred me to, but they too could not get me in until Dec.  So, we have to leave by 6am to get there for an 8am appt.  Is there any advice as to questions I should ask?  Tests?  I just want to try to make the most of this appt since I am having to travel.  Luckily my husband took the day off to go with me.  I know there is a HUGE difference between the doctors in cols vs cincy.  My husband sees a neuro at the univ cincy that I think walks on water, just absolutely incredible!  I just cannot deal with feeling this bad, which is why I continued to get the injections in my back, it at least gave me a few days of relief out of desperation.  
thanks for any advise

[stella5349]

I may have missed you already - since you were leaving so early. There is lots of information from Dr. J Wilson and google will provide a ton of information on this for you.

Sorry if I missed you

[kidzxpress]

Yes, I missed your post.  The appointment went well.  The doctor spent well over an hour with me and my husband asking a TON of questions, and actually putting my responses into my chart!  She ordered a list of labs that need to be done, and said that though the tests already completed were just a piece of the puzzle, that they were not done correctly, as 1130 am is not the time to do them, (yes, I was told that on here as well)  So now, I go back again friday, just for labs at 8am,then revisit the doctor in 2 weeks (nov 2) she said there is something going on with the pit. gland as in one case it is overproducing and another under and it made sense to her that the neuro indicated it was large.  That when I was hemmoraghing after the hysterectomy, she has seen before that it damages the pit. gland!!  She also does not understand at my age (just turned 41) and why my ovaries shut down within weeks of the hyster.  She couldnt believe I couldnt get in sooner here locally, and that other testing had not been done.  I ask if she could start me on hydrocort now and she said only if it is absolutely necessary because the serious affects if can have.  Also, she said NO MORE steroid injections!!  I know, told ya so....
Anyhow, wanted to thank all for all the advice
Here is a list of what she is doing
ACTH Stimulation
ACTH
aldosterone
vitamin d, 25 hydrodroxy
pth intact w/calcium
dhea
dhea sulfate serum
fsh
lh
osmolality serum and urine
prolactin
renin activity
igf-1
t4 free
tsh
t3 free
estadiol
renal function panel

[kidzxpress]

I had my labs drawn this am, they took 16 vials of blood initially, then at 30 minutes drew 2 (one was thrown out) and at 60 minutes 2 (one thrown out again)  Other than a brief flushing feeling, I did fine.  No headache/stomach ache.  The nurse said it was because they dilute it with saline to minimize the side effects per the doctor protocol.   I had to get up at 430 to get to the lab by 8am, so I dosed off during the acth stim test.  Will this affect the results?  I am sooo tired, but still unable to sleep for any length of time.  
thanks

[stella5349]

I think your doctor ran a very good panel of blood work. Get your lab sheets when they are done.