Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum.  ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
 | 

ms cervical spine lesions???

by pixiestixxs3, Jul 24, 2009 10:13AM
I was diagnosised w/transverse myelitis and MS in October 2008 and I've had 2 treatments of steroids that did not work, 2 treatments of plasmapheresis, which helped a bit, but wore off after a few weeks, and 2 IVIG treatments that wear off in about 4-6 weeks.My remissions do not last more than about 4 weeks and I was initially diagnosised w/primary-progressive ms that was not responsive to treatment, but now I've been told it is relapsing-remitting ms which I do not agree with. My mri's look fairly normal, but it has also been suggested that I have Ms of the spine.  I've been having severe Lhermitts sign nerve pain for about a week and it is effecting my left side from the shoulder to the foot. My arm is in constant pain, my left leg below the knee tingles, I have excruciating pain in my bladder w/incontinence, so I have to wear diapers again, and my left foot is completely numb and dragging when I walk. I have to wear a soft cervical neck brace all day to help decrease the pain, but I am still in constant pain, especially when I try to sleep. I take Neurontin and Tramadil for the nerve pain, but it wears off in about 2 hours and doesn't really help. I'm afraid that I might have a lesion on my cervical spine, and I'm wondering what type of complications I may have f/this.B/c my left foot is numb and dragging when I walk, and a few hours ago I started having more balancing problems when I try to walk and I just keep falling down, leading me to drag myself across the floor to get around. I'm afraid that I will become paralyzed again, but this time f/ above the waist. I've alerted my neurologist, and I am waiting for a response f/him and hoping that he will bump up my routine mri f/September, to some time soon. I can't take the pain any more, nor the incontinence which has plagued me f/day one. Right now I am going through at least 10 diapers, and trying to self catheterize has become harder b/c I do not have any feeling in my vagina, so it makes it hard to find my urethra. I don't know what type of treatments, other than medications, that will help alleviate these problems. I am at that point where I want to be catheterized, and I am wondering if it can become permanent b/c I am having some trouble putting on diapers b/c of the pain and weakness in my left arm.  I wake up soaked in the morning, and I'm getting diaper rashes b/c I pee in my sleep every night, but I do not notice it till morning. I've had accidents in public, so I have to carry a backpack w/diapers, a change of clothes and wipes to change myself  in public restrooms. It has gotten to the point where I do not want to go out in public b/c of this. I also get bowel incontinence about a week after the urinary incontinence starts, which makes me more home and bed bound b/c of this. I am divorced and live alone and I do not have anyone to help change me b/c it has become difficult due to  the pain, and my practically useless left arm. I need help getting around and doing household chores, and I am having to start to use my wheelchair, especially in public b/c I am also having balancing problems when I walk and  due to the paralysis of my left foot. Am I going to become more disabled f/this if I do have a lesion on my cervical spine no matter how big it is. Will I have to live in a nursing home for the rest of my life b/c I am truly alone and I won't be able to care for myself.Will this be as good as I get, and be left w/permanent disability f/this. I don't know what is wrong w/me and I need answers so I, and my quality of life can get better.
Post Comment
To
Comment
Post Comment
Recent Activity
jagrutbadani commented on An update
15 hrs ago
MJIthewriter commented on An update
Dec 13
peggy64 commented on An update
Dec 13
TrudieC commented on An update
Dec 11
April2 commented on An update
Dec 10
An update
Dec 10 by MJIthewriter
MH Community Mgr likes the My Cycle iPhone App .. ask me about it!...
MH Community Mgr commented on photo
Dec 03
RSS Expert Activity
EVIDENCE-BASED APPROACH TO NEUTER S...
Dec 15 by Arnold L Goldman, D.V.M.
HOW DO/SHOULD DOCTORS THINK ABOUT T...
Dec 15 by Arnold L Goldman, D.V.M.
Simple tool to Assess your Risk for...
Dec 14 by Lee Kirksey, MD
Community Members