Celiac Disease, Wheat Allergy, or Wheat Intolerance?

[KingsLily]

For over a year, I have had nearly every symptom of Celiac Disease (CD). Two months ago, I got tested for CD but the tests showed that I did not have it. It did show, however, that I have a very great vitamin D deficiency. I used to be anemic as well, but doctors told me I grew out of it. Do these things have any relevance?

During Lent, I fasted from wheat products (not all gluten-containing foods, however). I felt SO good. I could run without being as short of breath, I was mentally clear, all rashes were gone, I was "regular," and was happy and full of energy. Shortly after, I got tested for CD. Doctors say this fast threw off the test results. They diagnosed me as "undiagnosable," prescribed a large dosage of vitamin D, and advised me to play around with eating and not eating gluten and wheat products.

I still have every symptom of Celiac. Some of these symptoms occur almost immediately after I consume anything with gluten (wheat products like breads and gluten products like cream-based soups). These immediate symptoms include diarrhea, flatulence, fatigue (falling asleep for hours), and vomiting (if I eat foods like lasagna, spaghetti, or anything made with canned soup). If I have gone gluten-free for a week or more and eat something with gluten, I will get a very bad [and itchy] rash on my stomach and bottom. Sometimes, I will even get short of breath. There are, however, more lasting symptoms.

There are some symptoms that linger as well. These symptoms include irritability, mental confusion/fogginess, depression, and abdominal pain. In addition, something in my abdomen spasms when it is touched. It is very uncomfortable. If my abdomen is pressed on, it is painful (scale=6 out of 10).  

I am still eating gluten/wheat products because I want to have further tests done. But from what I've shared, do you think I have full blown Celiac Disease, gluten intolerance, gluten allergy, wheat intolerance, or wheat allergy? All, I have read, are very different.

I just want to be healthy! I am rather tired of this mess! I just want to be healthy.

[aat04c]

I am having the same problem!! I am 23 years old and I no longer have health insurance, so getting a blood test for Celiac's disease may  have to wait. I've heard of people testing negative, but still having a sensitivity to gluten, so they still give it up altogether. As for me, I've given up eating gluten and I already notice a remarkable difference. I've had stomach problems since a child and doctors never knew what was wrong with me. After doing much research, I decided to cut wheat out of my diet. Sometimes, only you truly know what's best for you in the end. If eating gluten is making your life miserable, screw validation and do what you think is best for you.

[ruffmagruff]

it doesnt matter what you call it,

you ingest wheat, you get all of these symptoms and its horrible. you do not need to think about it any more. stop eating all gluten! its hard at first but now its so easy, there is almost limitless food without gluten.

i had one Iga tranglutiminase come back negative, doc said i prolly didnt have celiac, but i had severe acid, indigestion, diahreaah, pain, lactose intolerance...now i have been gluten free for at least 5 months and i feel excellent compared to how i used to. i can eat dairy all i want. my intestines are healing.

just do it, it cant hurt you. but even a little bit of gluten can.
if you have an allergy, you have to totally avoid it, or you wont do much good.

i eat tons of veggies, my caloric needs are met with mostly beans and fish

please if you are hurting dont wait for a stupid doctor who sees you for 10 minutes a month...you know how you feel you know when youll feel better!

good luck
peace be
love free

~ruff