All over body burning,stining,pins/needles,chest pains...
I've got the gambit it appears. It started over 8 months ago. The first thing I noticed was itching in my “private area”. Upon inspection I saw some wart looking sores and what looked like paper cuts. In a few days time the itching progressed into major rectal itching and some sores at anal crack area. Then in a few more days, less than a week, it felt like my pubic hair, I know this sounds weird, but it had a life of its own. It felt like it was moving, like something was crawling through it. I then began feeling major burning in my “private area”, as if I had a major yeast infection. When I went to use the bath room it felt like I was wiping with icy hot. When I would sit, the back of my legs, private area, rectal area would burn and itch like crazy. I thought I was going insane. The sensation moved down my leg to my knee caps, then into my feet. I also experienced pins and needles feeling and I have had several times where it honestly feels as though a knife is on the inside of my skin and is piercing me to get out. The stinging, burning and pins and needles moved down to my feet and I started having sensations, like tingling, but in a creepy way, going up my back. Then it radiated out to my arms, mostly the back of my upper arms and the top of my lower part of my arms. I have had times when what ever this is has moved into my fingers, and there was a few days I could not bend one of my index fingers, it felt like wires were in my finger and they had no give, it was so painful. I have had all of this radiate up to my face, and into my head. I have always had mild tinnitus, but know it is severe ringing, very high pitch in my ears and I will also experience times when it seems like my hearing is going out, but it comes back. I know this all sounds so bizarre, you can not imagine what it is like living with this. I was crying daily for several months and I have become severely depressed. This also has affected my eyes and I get very weird pains in my head, I can not explain what they feel like, more like pressure. I am having an extremely difficult time finding a Dr. who cares about what is going on with me and willing to listen and offer testing and/ or options.
The sores in the private and anal area only happened back in December, they have not appeared since. I also experienced warts breaking out on my hands, especially fingers, and every time this happened there was stinging and pain, which alerted me to the wart (these were finally identified by a natropath, all other Drs I saw and showed them the raised blister looking growths, all very small, did not know what they were.) I had a few that were bright red, but went away. I have 5 that still remain and have been there for over 6 months. I also experience what looks like paper cuts, which appear out of no where on my fingers. Along with all of this I had an episode in the very beginning where my mouth broke out on the inside with canker sores and blood blisters. These went away after about a month, but I occasionally get what looks like a white head right on my lip. I am 52 years old and never experienced any of this before last December.
I have been STD tested several times. Last time for all STD's was in June of 2012. All are negative and ones which have ranges all come back extremely low. My gynecologist says this is not an STD, and no reason to test anymore, I am not sexually active at all. I saw an allergist who said this was cat dander and dust mites, simply because these were the only tests, other than some food tests which came back high. I do not believe dust mites/cat dander is my problem. I found out I have two compressed disks in my back, I went to physical therapy and the therapist says this is not related to my back. I have had several blood tests done, all come back fine, other than my immunoglobulin IGE was 400 and is not 425, but I have seen on the internet people who have this in the high thousand range. My ANA test was at 40, I do not know what this means, I am told this is elevated too. I found out I have been exposed to Epstein Barr, and also that most of the world has been exposed at some time and this is not my problem. Before all this happened I had pneumonia several months before, had my appendix removed and then had my first bought with kidney stones. Then a month after the kidney stones, all of this happened. Could any of this be related to something gone wrong during the appendectom? I know this is a very simple operation but I can't help wondering about this. Some of this has “died” down a little, but it is not gone and I will have days that it comes on like gang busters. One Dr said he thinks I have Lyme disease, but the test came back negative. According to him I have to pay for a “special” test which is over $200, but I am not sure I should spend the money if the general blood test did not show anything. I have worked with metal all most all of my adult life. I made jewelry for over 30 years, so there is melting of the metals, soldering, etc.., could this be a toxicity? If so, what tests should I be asking my Dr to do. I had a urine test done by a natropath Dr., but it only was basic heavy metals, and it only revieled trace elevations of lead and mercury, but only slightly in the medium category. Has any Dr on this board hear of Vulvar Pain Syndrome. I met a woman with Vulvodinia, but her issues are just in the female area, not all over as mine are. I am following a low oxalate diet, I do not know if that is why some of my pain has decreased and the rectal itching and vaginal breakout/itching has gone away. I am told I have a neuropathy issue, but what the heck is this. Please, please, any advise??
Understand your predicament. The symptom described by you could be due to neuropathy. It is a disorder of the nerves which causes numbness, tingling, unusual sensations and sometimes pain. Diabetes Mellitus can cause neuropathy. Other causes like vitamin deficiencies, alcohol consumption and certain medications can cause neuropathy. Please discuss this with your doctor am sure he will provide further assistance.
I have had an oxalate problem for a long time. I started following a low oxalate diet and my vulvadynia improved. A few weeks ago I ate a lot of high and medium oxalate foods for four days in a row, and now I have pains in my chest. They were in my head too, but have subsided. I am now wondering if I have an oxalate stone in my chest. When I move certain ways, it hurts there. I also experienced the stinging bumps on my hands that were wart-like. They went away each time on their own after a few weeks. Now I need to know how to get oxalates out of my tissues. I feel certain they are all over my body. I hope you continue to improve. I will post if I figure out how to get the oxalates out.
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