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Mastocytosis
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Mastocytosis

dear doctor, can you please tell where we can treat Mastocytosis, the baby was born with it and it's 2 months old now, he was born with swollen liver and spleen and he was treated only after a month with antihistamine, we are in Macedonia.
thank you for your time
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Avatar_dr_f_tn
Hello and hope you are doing well.

Mastocytosis is a disorder characterized by mast cell proliferation and accumulation within various organs. Skin is most commonly affected. Therapy is based on the symptoms. Besides antihistamines, oral disodium cromoglycate may help with the skin symptoms.

You can consult an oncologist or a hematologist for therapy. As we do not maintain a directory of doctors in this forum, I cannot provide reference to a doctor in your province. Your primary care physician or your pediatrician may be able to guide you appropriately. Good Luck.

Hope this helped and do keep us posted.
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thank you for your kind words, the baby is in a hospital but the care there is disaster, they never heard,let along treat Mastocytosis.We are hoping they will send him in Germany or Spain,so god help us.He is with swollen liver and  spleen,and skin lesions.Hope all will ok soon,will keep you posted
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Avatar_f_tn
we just lost the baby today,his name was Peter and he was just 8 weeks old,may you rest in peace our little angel..... we'll always remember you xxxxxxxxxxoooooooooo
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Avatar_dr_f_tn
Sorry Mam. May he rest in peace.
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