People are allergic to me too

[fecalbodyodor]

Before I had the people being allergic to me (this is new, only 4-5 months), I had  the fecal odor starting around puberty, it went away in 10th grade when I completely cut out dairy, so this is obviously a good idea.  The only thing is that the smell came back again 3 years later after, this time it came with the coughing/sneezing issue.

I am getting the urine test done because I wanted to see the levels of TMA I am producing, but I guess I should also get the blood gene test since they aren't testing for sulfur compounds.  A person on my website (HH - that you might want to theorize with about things because he also researches and talks about FMO3, dysbiosis, and sulfur.  His screen name on my board is "Rhett" if you want to talk him) wrote: "My other thought was that the FMO3 enzyme processes a lot more than TMA. I think it's the favored path of 6-atom soft nucleophile blah blahs that contain sulfur, phosphorus, or nitrogen. Maybe TMA itself is a small occasional part of the problem for most of us (due to low numbers of the bacteria), whereas the other endotoxin compounds that prefer the FMO3 pathway are more the problem. So FMO3 enzyme deficiency would be the problem, with TMAU being mostly only a sign."

Anyway, I went to HBRI (it's only 15 minutes from my house!) to pick up my test tube for the TMAU test, and Chamile (who was on the Tyra Banks show for TMAU) showed up at the same time! I thought it was her but I didn't say anything. We both went into the office together and the man that was in there (the research guy?) got up and gave her a huge hug and was like "Welcome!" and they talked for like a minute, then the man said to me "and what are you here for?", I said that I needed to get tested for TMAU. He had me take a seat at this desk and called the girl on the phone to come. I sat there waiting for a couple of minutes when Chamile came up to me and gave me one of those "help us find a cure" bracelets (like the yellow Lance Armstrong ones) that was for Trimethylaminuria. We talked for like 20 minutes! She said "so you think you might have TMAU?"....and then I asked her if she has met a lot of people with TMAU and she said yes, so I said do you have time for me to ask you a few questions? She said that she had time because she just got here from New York to shoot a show on TMAU. I told her that my smell was fecal and that it started at 14 and only happened in class. She said that stress could activate the smell, and that this was her case too that it only happened in class and not so much around friends and family. She said that there are many variations in which the smell be, that's why they don't call it "Fish Odor Syndrome" anymore. Then I said that the smell completely went away for 3 years after I cut out dairy and then came back in college. She said this could be because of stress. Then I told her about people being allergic to me and she said that she has never heard of that, but is an inexperienced person to ask. She said to email: ***@**** to talk to this lady (I forget her name) who knows a lot about TMAU and has dealt with many people who have it, she might have heard of this, and if she hasn't, Chamile said that she is very thorough and will find the right person for you to talk to. I think we should all email this person and tell her about us (and definitely ask/talk about the coughing/sneezing issue). Rhett, I think you should send her a nice long email with all of your information/questions/concerns on FMO3 and sulfur and bacteria and what not. Everyone should email her though, and don't forget to tell her to look at this message board.

Anyway, Chamile mentioned that she takes probiotics everyday because a healthy gut flora will reduce the smell. I told her about my candida and she said that A LOT of people with TMAU have candida. I asked her if her symptoms are under control and she said that by all means it could come back, but with probiotics and a low-choline diet she has not had a comment about her odor in a whole year. I thanked her and she gave me a big hug.

[cursedtoo]

FYI: Hydrogen Sulfide is classified as a Volatile Sulfur Compound (VSC) and is generated by sulfur producing bacteria found in the mouth and concentrated usually at the back of the tongue. They also hide in tonsils and adenoids (adenoids). I have read testimonmials on other forums where only after removal of the tonsils and especially the adenoids (adenoids) did chronic bad breath sufferers achieve relief. Even after doctors said they're tonsils/adenoids were fine!!! Some people who thought they had TMAU actually only had extreme levels of hydrogen sulfide (and other sulfurous compounds) aka bad breath, which created an malodorous aura. Remember that most people are non-confrontational and will not tell someone else they have bad breath or BO. I myself knew someone who had fecal smelling breath. I just accepted him for who he is, a nice guy.

[puzzledbysniffles]

Hi everyone,

I have also been going through this hell for the last 5 years - I somehow trigger allergies in others. I just knew there were more people with this issue and now I have found you guys.

Is this forum still active? It would be really helpful to exchange ideas with everyone and help out each other in solving this baffling problem.

I don't think there is an odour issue here. whatever it is, I think that in my case it is odourless, but it is making people sniffle, cough to clear their throat and sneeze as if they were surrounded by dust.

I have believed for the last few years that my problem was having been exposed to mould. But after reading your comments, I think it may also be gastrointestinal as I've ahd problems with this in the past.

Is this forum still active?

[cursedtoo]

This forum is/was maxed out and a new one started. I don't know how your post went thru, but the new forum is abreviated as PATM.

[Gracehelps]

Hello All –

I appreciate the honesty I have read from several different pages of those who suffer with this health condition.  I am the wife of a youth pastor, and I can’t tell you how difficult this has made my life.  When I spoke to my husband about my suspensions he thought I was being overly sensitive.  But that’s okay, I totally understand. I’m just thankful that he doesn’t seem to notice the smell.  Which brings me to my first point, not everyone can smell you.  In my case, it’s seems as thou people who have animals, those who smoke, the elderly (at least some of them), and people who take allergy medication are not bothered by me.  They will still sneeze and/or cough, but they don’t seem to back away from me.  So needless to say, my ministry is to the elderly.  You will notice the people who stay away from you.  Take notice of those who enjoy your company.  

This nightmare began seven years ago.  The smell came first, then three years later the allergic reactions started.  I can’t tell you how many times I have prayed for healing and how many avenues I have taken to stop this madness.  After four different doctors I had just about given up hope.  I think I have learned more on my own then with their professional opinions.  Which bring me to my second point.  As others have stated, I too believe this is some sort of problem with the way we process bacteria in our bodies.  I too have a white coated tongue.  If there is a Chemist out there maybe they could figure this thing out.  But I have noticed over the years if I eat a large amount of fruits and vegetables each day, that are high in Vitamin C the coughing and sneezing dwindles.  I'm sorry to say, I have used my co-workers to experiment with. :-(  Vitamin C in the pill form or capsule doesn’t seem to be affective with me.  Fruits like blueberries, fresh pineapple, and Welch’s Grape Juice seem to work the best with me.  (And no, I don’t work for Welch’s)  I think this will possibly help those of you who have stated you have noticed the allergies, but didn’t believe there was any odor.  Maybe we are dealing with two separate problems.  I don’t know, I’m just a country girl trying to figure out what’s going on.  As others have stated, I have noticed that meats especially beef and pork seem to make it worse. Caffeine drinks and sweets do the same.  There has been some who have suggested that drinking plenty of water helps, but in my case the coughing and sneezing seems to get worse when I’m drinking sizeable amounts of water.  Now if I’m eating items high in Vitamin C while I’m drinking the water, it’s okay.  Again, I agree that distilled water is the best water source for us to be drinking and we do need to drink at least 40oz a day - in small portions, of course.  

I hope I haven’t rambled, but I did want to say one more thing.  Before this began, I was very confident in myself.  As you well know, this health issue has humble me in ways I could have never imagined, and has opened my eyes to those around me who are hurting.  I can see the pain in their eyes.  Those who are not outgoing, those who are not perfect!  To me in a strange sense, it’s a gift, a path I would never have chosen for myself.  We get so caught up in ourselves and our needs, that most people don’t see the suffering happening all around them.  If you can be a help to someone around you, let me encourage you to take the extra step and offer them the help you are now seeking.

[cursedtoo]

Are you on any other forums that are more conducive to Q & A or available by other means? I would like to communicate further.

cursedtoo

[puzzledbysniffles]

It looks like most of us have, more or less, the same condition- we trigger allergies in others: sniffles, coughing to clear one's throat and sneezing. Conversely, we ourselves are feeling more or less fine. Our main problem is the anguish and stress caused by this mindboggling condition. Also most of us agree that we don't have body odor, but some of us do have bad breath which makes us suspect this may be related to a bacteria in our stomachs or intestines.

1) I agree with cursedtoo, that we need to find a medium or forum where our communication is more effective and will allow Q&As. Finding this forum was a blessing and relief because it confirms that we are not going through this alone and because we can get ideas from each other. However, the medium has limitations and has not been as effective as many of us would like. Does anyone have any ideas of other forums? msn messenger perhaps? Should we open a chat room in yahoo so we can talk in real time with each other? Please provide your ideas.

2) For the last 4 years, I have suspected that my condition was related to exposure to mold. I even suspected that my clothes or my hair may have been the culprit. Have you all been able to rule out your clothing and hair?

3) As far as solutions go, I see that a lot of people have mentioned probiotics, exercize, healthy diet and relaxation techniques.... has this worked?

4) I am disappointed to think that some may have found a cure or a bearable relief and have gone with their lives. I think that if any one of us should find a cure, we should remain commited to those that are still struggling. that is, come back here once in a while to report what is working for them.

5) for those that are demoralized, I encourage you to come back. perhaps if we present our case united, we may get the attention of researchers in this area.

6) Some people have mentioned that they want to find a doctor that BELIEVES them. i personally think this is a waste of time. We need to find doctors that will take this into consideration and look for evidence. In other words, to believe our condition a doctor would have to SEE IT to BELIEVE IT.  Hey, I mean if I was not going through this myself, I would find this hard to believe.

[puzzledbysniffles]

could this help??? http://www.health.co.uk/acidophilus-facts.asp

[Gracehelps]

I’ve never posted anything before; it is soooo out of my comfort zone.  I’ve read so many negative things listed, I just wanted to give someone hope with what I have experienced.  Yes this health issue is bad, but we can go on with our lives, we just need to know how. That's why pages like this are important.

[infecti]

I guess you guys need to change your diet? I've been experiencing those symptoms too. I suggest you eat more fruits and have a regular exercise. I think that has something to do with digestive system irregularity. You need to eat healthy foods and as much as possible avoid heavy meals. Try also to avoid sugar, carbonated drinks and coffee. Never go to bed after meals it will make the symptoms worst.
I have notice with my self, I  feel clogged nose on one nostril or the other but not both. I think my body is trying to protect me from the allergens I emmit.
I also feel stomach discomfort all the time. I believe this is not cause by a virus, because it takes time for a virus to invade a host. In our case, other people feel the discomfort immediately. It seems like we are emmiting some sort of chemical that stimulates mucus production.
I am not sure about this, but somehow the symptoms seem to decrease in my case.

[puzzledbysniffles]

I think it's better if we all stick to one board and do this chronologically... here's the continuation to this board.... http://www.medhelp.org/posts/show/4415

[cursedtoo]

You seem very thoughtful and level headed. I'm sure you will find an answer and relief from this curse in time. Please post any progress you make, I will check back periodically. Good Luck!

[needtoknowwhy]

I too feel that I am the cause of others itching around me.  Any idea on what it is?  Have you been able to get rid of whatever it is? I noticed you posted this comment a year ago, any luck on figuring out what the cause is?  My boyfriend thinks I'm crazy when I tell him that I think everyone around me starts itching.  Is it all in my head?  Please help! Thanks.  

[gurumath]

i have been suffring from the same disorder for the last 20 years. i always read this thread. and i am also from canada. if you would like to share ideas and work on getting solutions as a team, please write to me at ***@****. thank you. gurumath

[Gracehelps]

I had a thought the other day when I was reading about pathogens.  I know this is going to sound crazy, but what if our bodies are creating some sort of pathogens that are released everytime we exhale.  I just wanted to hear what you guys thought.

[myself123]

guys...

go to this forum:
http://www.medhelp.org/posts/show/4415

it's a continuation of this forum...

[KingKhan]

the first thing I would like to say to all is relax- I have the cure...

I will post it up april 3,2008

I have read every comment in this forum, my brother also have this unknown disease.

I will give you the cause of this now.

It is cause by over use of soap when bathing..

I am %100 sure all you are victims of mass soap users...
See you aprail 8, 2008 for the CURE

[myself123]

Hi,

How do you know it's because of overuse of soap? I don't think I use too much of soap, but maybe my skin is allergic or something

Looking forward to the cure...are you waiting for some test results until April 8th?

Thanks.

[KingKhan]

no i am not waiting for a result..

I just want you guys to wait every sec until april 3, becuase this cure will change for life.

I must say... this patm is a mother ****** disease....  

[danger33055]

Im so happy that I am not alone in this bullshyt.I never noticed it when I was in high school..I do know that I sweat alot and its easy for my skin to absorb odors. For instance if I pick up some change,I will smell like pennies until I wash my hands.I am 27 and I probably started noticing this when I first started college about ten years ago. I would notice people in class always coughing and sneezing near me, after a while I made the connection.I was at work one day and the trainer came to show me something and she almost coughed up a lung around me.I have panic attacks,and am always in fear of being around people.I make sure I dont go to the movies when its gonna be crowded,i avoid crowds at all costs.I know I dont smell, Ive tried every damn cologne in the world and nothing seems to stop the reactions others have.I know its not all people,but Im guessing its more than half.It really affects my life,if im in a grocery store line, if someone is a little to close to me I will get out of line as if I left something, just to spare them and myself the pain.I think it has something to do with our pores and some type of chemical it releases.I noticed that when my body temp. is higher the more response I will get from people.My qustion is, do people know where and why they are coughing? Do they know its us making them sneeze and cough? I have tried everything, I take a shower and 15 minutes later someone will be coughing, i truly hope someone knows what this is and will help.By the way im in miami.

[puzzledbysniffles]

go to this forum:
http://www.medhelp.org/posts/show/4415

it's a continuation of this forum...

[desperato]

how can I get Chamile's email?

[kanyoni]

Hi everyone; I just found this sight thru another site that I'm a member of; I too trigger coughs, allergies, sniffles and all kinds of reactions when I'm around people. My job requires a lot of contact with people so my day is a long drawn out nightmare. I've had body odor since I was young but I've managed to get it under control with diet and supplements but the sniffling and coughing, etc is making me miserable. I'm glad to find this sight and I hope we can all find a solution to this mystery.

[Jay23]

I too have recently noticed this reaction to my presence. I myself suffer from chronic sinusitis...almost always one nostril is closed up, and the doctors found a nasal polyp. I do not believe the polyp is the cause...I think it is the result from long exposure. I also don't think it's coming through our pores. This is what I think it is....Either bacteria or Fungus!! I think that we all have it in our lungs! and we are breathing it out. I have medical insurance so I cannot afford a battery of tests. Please if anyone can confirm my theory please post it.

[Scene23]

I have the same issue, except a lil different symptoms. I've noticed people sneeze around me, as well as cough, wierd stares as If I smell. I asked people repeatedly if they smell anything and they always say no. Then I read that if you bathe with lemon and baking soda with soap in the shower it will help your skin's surface from the issue. I've begin to notice after I take a shower, my skin somehow has a very funny dusty smell to it. My rectum also produces a very strong dusty smell to it. It all started after I had this cyst on my right buttock, and when the problem grew bigger, I've noticed the wierd systems. A leakage in my butt, and as well as the funny stares. I've also noticed that it attacks people who are smokers or who have weak immune systems. Has anyone else had a legion of some sort on their skin before their symptoms occured?

[saintash]

add me on the list. i got this when i was in 1st year college. i'm in 5th year now..

it has its pros but the cons are greater. hope we'll all find a cure ^^,

[tmalwan]

every1 try chlorophyll pills..u can find them at ur local health store herb store....its cleans out ur disgestive tracts..does every1 expirience bad breath?

[hummelmaker]

I have had this odor for quite a while now. I was so caught up in everyone elses reaction to the odor that I never noticed allergic reactions.  Oh, my odor is accompanied by periodic pain in my lower right rib cage. I woke up several times in the middle of the night with searing pain here. Anyhow, on June 21st of this year, I stopped using SPLENDA. Its 27 August and I notice it tapering off so now there is this faint odor but very seldom. I used to smell it after eating chocolate really bad. Get rid of all of the artificial sweeteners and all of that fake junk! I used it for the past 9 years so it will probably be a while before it is completely gone but I am better and not like all of the other experiments that I went throough. God know that I was at my witts end and he came through. To him be the glory!

[cindybates252]

My 15 year old daughter has had a fish smell since she was 7 years old. I have taken her to 3 gynocologist, hospital testing which was 2 thousand dollars and to this day I still have not one answer. It horrifies me that Not one of these doctors have yet to mention anything about the FMO3 Gene and that this could be the reason.  My daughter has been made fun of for years to the point where I have thought about homeschooling more than once.  Now looking back into the family I thought about another wierd thing that some of my family members get and its this HORRIBLE HORRIBLE FOUL SMELLING BURPS after eating eggs and other certain types of food.  I was wondering if this is associated with the FMO3 problem?

[sufernsneezen]

I too have this problem. My family thinks I'm crazy. My Psyhcologist is "helping" me with my paranoia. Heck even I'm beginning to think I'm nuts.  I believe. I know I make people sneeze in my presence. I've always referred to it as "tickling thier noses". Now I have severe  anxiety that has negativley affected my life. I am surprised and relieved I'm not alone. Although I feel alone due to the fact I've never been able to convince the select few I've shared my fear/knowledge about this effect I have on others, to "see" what I is really happening. I just decided to look on internet the first thing i found were feeding my anxiety that its a curse of somekind, because there is somewayotuthere history of sorts about this having some relation to bad spitirits and the like. Which Im ashamed to say, I had begun to believe exactly that. The only "symptom"  I dont have is an odor. I sometimes have bad breath though I know its due to my gum disease. (I take great care to prevent halatosis) I have always picked up smells on my body clothes especially my hair. from my environment (food cooking prep, etc..) I can't tell you all how many things i do or have done to eliminate this.  I've changed perfume, soap, bathing routines, detergents,care of clothing,(washing and storing). I need what I think alot of us may need is validation that  this "condition" is real, why it's happening to us, if we know  the why maybe we can correct it. I know there certain medical condition the experts have names for but no  anwers to why which equals no cure/remedy only treatments to contain/maintain sorta.  My fear is I will have to live with this for the rest of my life.  The thought of it is unbareble. has anyone ever had a medical professional explain what could cause this?

[nohurt]

Please I really needs H_E_L_P asap, I tried mostly everything so far for my BO and still there, already spend time and money than has not help me...am staring to loose confidence and hope.....even my boyfriend is alergic (allergic) to me!......If you have  any other tip please share it!.......

[rosewood47]

Hi All,

Please read my (rosewood47) post in

http://www.medhelp.org/posts/show/4254
and
http://www.medhelp.org/posts/show/4415

If you have any questions let me know.

Good Luck.

Thanks

[NoOneBelievesMe]

I am 18 years old and was just kicked out of college for missing too many classes. I have tried everything and anything. We need to make this disease know because right know no doctor has ever heard of PATM.

At first i thought i had TMAU but everyone i told about my problem told me that i dont smell. I kind of wish it was TMAU because at lease doctors know about it. Eventhough there is no cure they know the cause.

[hope630]

For the people that have the problem of people sneezing around them. I had this problem for a year. I have found the problem. Contrary to what is stated earlier.
***STOP EATING YOGURT!!!!*** ESPECIALLY IF IT IS PROBIOTIC.

[jane44]

PLEASE HELP ME!!!!!I I need the cure to this madness..

[daweito]

Hi I just found this site which is great because now I know I'm not the only one who makes other people sneeze, cough and get irritated eyes around me. It all began 2 years ago after getting a normal  flu. The symptoms I got along with being an allergen to other people was high body temperature, reduced smell sense, chronic gastritis plus H. Pylori infection, weight loss, small headaches, sometimes slight blurred vision, unexplained nervousness and feeling very uneasy in small places,very crowded places, and hating having to wait  in line at a bank, as supermarket, etc. first I though it was something psychological though I have allways being a very calmed, easygoing person, so It couldnt be that all of the sudden my personality changed from a calmed person to a highly anxious, uneasy and nervous person. Well, I have gone to several doctors including gastroenterologist, intern medicine specialist, dentist, hematologist, neurologist and a otorrhinologist.  every pill I've received from all of these doctors have been useless along with some unconfortable medical exams. the last thing I found was that I have acid reflux along with some chronic rhinitis.
sweet food, and dairy seem to makes things worse.
while I'm in a place surrounded by many people i.e shopping mall, college, office etc,some people cough even when they are 3 to 5 meters away from me! while other people who are closer to me don't seem to show any allergic symptom. I still don't get it. last week on a college exam, a classmate coughed like crazy during all the exam. she was  sat next to me, though I had other classmates next to me who didn't show any coughing, sneezing, or desire to spit. the same happened the day I went to cinema to watch a movie: the poor guy next to me coughed like 40 times.the funny thing is that he didnt seem to blame me on his cough. he even leaned towards my chair .!? he never made any angry look at me or anything, Im getting crazy
I know I have something, a real desease condition, virus, super allergic problem  etc but still dont know what is it.
Things I've Tried:
I've tried changing diet - some mild positive effect
Trying being more positive, better attitude- no effect
Sleeping more hours- no effect
-excersise- I havent gone back to the gym because of fear and shame of people pointing at me for making them sneeze, cough etc.
nutritional supplements- tried many, not any big effect
-Im ready to try anithing new to cure this or at least to get a right diagnosis, hope anyone can help

[jane44]

started my triple therapy PREVPAC today pray for me !!