cold urticaria anyone

I was diagnosed with cold urticaria seven years ago.  I would like to get to know people who has the same allergie.
I have no hives, only swelling of the mouth, coughing and choking if exposed to cold air, air condition, fridge, freezer, drinking cold drinks, etc.  I have to use gloves to touch anyting cold  otherwise my fingers will swell and get very red, or have broken blod vessels as a results. No medication is working, avoidance is the answer.
Maybe someone out there have the magic answer?

[Maya_33]

Hi, I have water urticaria, and its very hard not to get in touch with water, Prednisone work for me but not 100%, right now Im on IVIg treatment and it works for me... I have tried so many meds, like Reactine, Cyclosporin, Dapsone, Zantac and many more, right now I have a better quality of life :) Maybe Prednisone would work for you????

[Bhupinder Kaur, MD]

Hello,
It is true that cold urticaria has little treatment and avoidance is the best treatment option. Fatalities following swimming have been reported and those affected should be warned that swimming or having a cold bath could be dangerous.

Treatment is avoiding exposure to cold stimuli, including swimming or bathing in cold water. You can take antihistaminics like zyrtec or tegamet. You should enroll with Medic Alert and always carry Epi pen (injectable adrenaline) along with you.

It is very difficult to precisely confirm a diagnosis without examination and investigations and the answer is based on the medical information provided. For exact diagnosis, you are requested to consult your doctor. I sincerely hope that helps. Take care and please do keep me posted on how you are doing.

[kiskovi]

Thank you for your reply.  This is 100 % true about my allergie, at least this is what my specialist told me, also i did a lot of reserch on Google and in the hospital library.
I tried all the medications on the shelf plus prescription drugs, no change.
I wear the Medic Alert and carry an Epi pen.
It would have been helpful emotionally to get in touch with someone with the same problem.    Again thank you Doctor and if you hear from anyone with the same problem please send them my way.

[kiskovi]

If you wish to contact me about your allergie you can write to me on my email since you are the closest to my allergie that i know of and maybe i can help you with all I learned over the years.    ***@****

[Nikodicreta]

Hey Kiskovi.
Don't give up yet.
The following is from a previous post of mine to a mother and her son, that both suffered from aquagenous urticaria.

"There seems to be a fault in your immune systems that is incorrectly responding to any contact with water. Theoretically in order to delete this faulty program one must re-balance
the body's Energy system. This restores the immune system to respond normally again.
Try the protocol  I gave to "mariyamary" on the 27th. of Dec. Follow it step by step for relief/treatment.
The "hereditary thing" applies mainly to cold urticaria. I don't know. maybe you share something in your  genes that predisposes both of you to this, under given similar conditions.
I intuit that the original reaction is not to water but to"something" in the water. Perhaps chlorine or other additive. The body registers the co-relation in memory after a number of exposures to that water. Consequently the immune system responds the same to any body of water, irregardless of the presence or not of the original offensive  substance.
Besides the protocol I suggested earlier here, capsaicin in a cool organic lotion base would be of help.
Please post again if this persists, or if you need more info.
Blessings to you and family"

  Have you considered to seek out an Energy Medicine Therapist or Practitioner?
  Urticarias in general are energy based conditions. The immune system responds incorrectly to a particular code - in your case when exposed to cold - resulting in
all those symptoms that you described. To restore this  you may need to get your energy field re-balanced.
As I have no idea where you live, I cannot advise you as of where to go for this. Just do a search though, for your area.
I do practice Energy medicine in Canada -  various modalities including Allergy Elimination- and with very good results.

Hope this helps, however, do your own research or check with your health care Professional, before making any decisions regarding your health.

Blessings,
Nikodicreta