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3990971 tn?1348946305

severely allergic to water...HELP!!

since I've read this I found that I am not alone, I have a Neurological illness called Neurosarcoidosis and it has damaged my nervous system.
Every time I take a shower I have such pain and itching all over my body, for years I thought it was soap I am allergic to. I have tried every sensitive soap and natural soap, but it seems no matter what I use this happens, so I took a shower without any soap and OMG !!! itching so bad and pain everywhere and that is only after taking antihis. My Dr even gave me Periactin that I have been taking for 4 years now and it stopped working, on top of it all my insurance stopped paying for it anyway and every drug he tries they won't pay for.
I went to showering every three days, and in between washing at the sink, being so afraid of getting water on me.
please someone help, that might be able to suggest the right drug for me.
Today I took Half a bottle of benadryl  before my shower and it did nothing !! OMG I cannot take this anymore.
2 Responses
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3990971 tn?1348946305
thank you very much for your suggestions, I will try the distilled water than call the city.
Thank you again.
Jessica
Helpful - 0
1340994 tn?1374193977
I would by distilled water, a few gallons, and try taking a sponge bath with it by heating it up.  If you do not react to distilled water, then you need to find out what is being added to your tap water by the city.  If it's just chlorine, get a water filter for that.  If they add chloramine (chlorine plus ammonia), you will need a special water filter for that.  Those are harder to find.  But you would not need a whole-house filter - you could just get one to put on the shower.  
Helpful - 0
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