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Bettty

At the age of 57, my husband was diagnosed with degenerative brain disease. He is now 63 years of age. On November 20, 2007, he was placed in a nursing home. My husband knows who I am, but can only say a few words (what, no). He is totally dependent on the staff to feed, clothe, bathe, etc. He only says  (2) words (No and what). Is this the usual progression of this disease?
I have MRI's (inconclusive), spinal taps, etc.
Did I miss anything?  
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Avatar universal
I need to know if there was any pain with this. my wife dose some of the same things that your husband dose but not to that extent.

                                                                       doc19
Helpful - 0
Avatar universal
two years ago my husband was finally diagnosed with Picks disease but had it for 5 yrs. and his personaity change and he would do things he normally wouldn't .  Picks is the front lobes dying and has pick antibodies.  He repeats certain things over and over until something else comes up [momma me a} The Picks doesn't stop him from knowing me , matter of fact he know alot more but does get hooked on certain things and they don't notice they are doing it.  They say he will get down to not talking later and will be mute.  Now he gets mad over everything. He follows me around and wants me to do what he can't.  He wants me to get him everything but than he gets mad if I do.  reasoning is hard.  Even if you tell him why he can't understand it , so I say it another way and he gets madder still.  So most times he is mad and I learn to hide until he gets over it.  I'm frustated because He can't understand and I can't give him what he needs .  this disease begins in their 40, 50, and early 60's.  He is now 65 years old.  How did your husband react before he went into the nursing home.  One ladies husband  was kind of mean and he turned very nice.  He let her take care of everything with out a fight.  My husband would follow me around and ask me where does that go, what should I do with this.  I couldn't even go to the bathroom with out him asking me what was I doing in there.  He askes are you sleeping when I was sleeping.  He had panic attacks worrying about going to work.  He would wake up every 15min-every hr. dress to go to work  when he should have been sleeping.  He also started the stutter like he couldn't get the right words out . He is on Aircept and Namenda and now can do most stuff.  I hop you find out more.  The Neurologist is the one who help him and me. I wrote every thing down That I could remember he did that wasn't normal from stopping in intersections, spacy , do thing different than normal.  dumping garbage out into the street instead of the garbage.  My husband was very good at cleaning and he couldn't understand how the vacum cleaner could work with the long hose on it.  You need a name for the degenerative brain disease.  It helps alot to finally know what it is and How they can treat it. good luck. I went to regular doctor and other people and they said he was a very smart man and past all their test.  But he was normal most days and than he did thing he didn't do before so they didn't get to see it.  When we were going to the Neurologist he was upset and than you could see what he was just normal and the doctor got to see it.  Now he function almost normal except for small things and than he goes off the wall.  

rbcf
Helpful - 0
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