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Is it really Alzheimer Disease
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Is it really Alzheimer Disease

My husband is 47 years old.  Two years ago I started noticing significant change in his thought process.  Evenually, in May of 2008 he went to see a NeuroPsyc. where he was diagnosed with ADHD.  He did not receive any Meds until December.  He is an Engineer Assistant for a large utility company.  In August of 2008 he received his first warning in 10 years for poor communication, not following through ect.. I didn't find out about the warning until March.  In April he had an MRI and went to see a Nuerologist, who put him on Aricept as a precaution, and starting running tests for Alzhiemer.  He also went back to the NeuroPsyc for a second evalution which showed his memory had improved but his cognition was only at 30% now.  Since then we have had a PET Scan which showed syptoms (symptoms) of Early Onset Alzhiemers.  He lost 30 lbs. on the Aricept with no change in his mental state.  He is having severe headaches, hand tremors. balance problems, nasea, mood issues as well as thought processing.  There are times where he looks very pasty.  We went to a Psyciatrist last Thursday.  He has taken him off of Adderall (adderrall) and Straterra and He will start Cymbalta 60 mg. and Lamital today.   He is on sick leave until July.  We have no action plan right now.  We are not scheduled to go back to the Nuerologist until July.  His symptoms have gotten incresing worse in the last week.  Please give me your expert advise on what you would do if it were your spouse.  
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20 Comments Post a Comment
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535822_tn?1413656274
It sounds like it could be the Meds he is on as I know they can have side effects, did they wean him off the Strattera and Adderall (adderrall) or did he stop immediatly ,the headaches and other symptoms you describe could be withdrawal it would be best to ask his Doctor about that. You have to go by your gut feeling with this , personally and I do mean just that... I would make sure he isnt going to get another set of side effects from the new Meds.. You can google for side effects of the new ones he will be taking, Does he work with any Toxins ? You have my sympathy , its not easy is it, I hope he feels better soon.  
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Avatar_f_tn
We still do not have a diagnosis.  He weaned off all of his meds.  He is on B-12 and Folic acid only. Now he cannot complete a sentence because of severe stuttering.  He still has his headaches, hand tremors, balance issues and much more.
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535822_tn?1413656274
Then whatever they say something is going on and you need to seek more answers for him, ask for another opinion, ,as he has had a diagnosis of early Alzheimers maybe this is part of it, there is a new med coming up called Rember', it should help a lot of people Google it to get the latest information, it is on the 3rd year of Trials , hopefully be on the market in a couple and passed by the FDA  ..Good luck
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535822_tn?1413656274
I have just googled for an update, it says larger trials are starting this year 2009 so you may be able to get Rember if you found out if there is a trial nearest to you, google the Medical news and put Rember in, it is in the 2nd of a 3rd year trial at Aberdeen Uni versity and has been shown to have had success in halting the progress of mental deterioration .It should be on the market by 2012 ...It sounds like the best thing I have read about to date I have a husband may be battling early stages, due to working with Toxins in the Boat building business.
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Avatar_m_tn
Sorry to his illness, I also have a husband who is suffering from Alzhiemer, the progression of disease is rather quick than I expected.  
New drug is REMBER and it is still on trial from Aberdeen University.  We are hoping this new drug can help hundred of thousand sufferers and their families back to normal.  It is an awful diseas, it brings my tears to watch my husband going down hill.  He was a pilot, he is 73, he had feeling that he was going to have dementia, it is such a shame he is so healthy but his brain is just not functioning as it should be.

He wets the floor but not himself and talk to himself more frequently, sundowning appears between 2 to 3 am and he would be very active, yell out Hello, searching all sort of things and hide them, making noises, hearing, seeing children with no legs and arm and hiding in panry, or objects and also relate himself to TV or radio and some time if he upsets then he can be nasty but just nudge gently, usually he is a gentle person.  He also put tea pot and made a cup of tea in plastic container and a lighter (which I did not see him doing it if he dorped it in or left it in) placed them in microwave, of course, tea was all over the place, lighter splitted in half.
Dr prescribed him Exelon and was an excellent patch, did not have side effect but he can not go without it even a day, it is easier to manage him.  The previouse test his marks dropped to 16pts from 17.  Dr prescribed Ebixa, this is only his fourth day but so far so good.

This afternoon he broke into tears for his cousin and he calmed down.  He still can shower himself but he has his underweare on if I am not there to help him.  He put thick jacket on in summer time.  He do weird stuffs and we can not make conversation like we used to have or he can not understand also can not follow our conversation (entirely different subjects)

Margy, I hope his dr can fix him and maintain him for you to be able to manage him, it does drain your metally and phisically out from you.  Please take care and have a break, my friend is computer longer, skype my sister and talke to friends, shopping etc. from time to time I take him out if he is willing to go, please don't force him or her otherwise it will be hard to cope also you have to play role whoever he wants to speak to (I rang my daugther or son to be that person) then he calms down and happy on that day.
I hope you find the solution to cope with him. Take care
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Avatar_m_tn
Margy, this comment to Inta

Sorry to his illness, I also have a husband who is suffering from Alzhiemer, the progression of disease is rather quick than I expected.  
New drug is REMBER and it is still on trial from Aberdeen University.  We are hoping this new drug can help hundred of thousand sufferers and their families back to normal.  It is an awful diseas, it brings my tears to watch my husband going down hill.  He was a pilot, he is 73, he had feeling that he was going to have dementia, it is such a shame he is so healthy but his brain is just not functioning as it should be.

He wets the floor but not himself and talk to himself more frequently, sundowning appears between 2 to 3 am and he would be very active, yell out Hello, searching all sort of things and hide them, making noises, hearing, seeing children with no legs and arm and hiding in panry, or objects and also relate himself to TV or radio and some time if he upsets then he can be nasty but just nudge gently, usually he is a gentle person.  He also put tea pot and made a cup of tea in plastic container and a lighter (which I did not see him doing it if he dorped it in or left it in) placed them in microwave, of course, tea was all over the place, lighter splitted in half.
Dr prescribed him Exelon and was an excellent patch, did not have side effect but he can not go without it even a day, it is easier to manage him.  The previouse test his marks dropped to 16pts from 17.  Dr prescribed Ebixa, this is only his fourth day but so far so good.

This afternoon he broke into tears for his cousin and he calmed down.  He still can shower himself but he has his underweare on if I am not there to help him.  He put thick jacket on in summer time.  He do weird stuffs and we can not make conversation like we used to have or he can not understand also can not follow our conversation (entirely different subjects)

Inta, I hope his dr can fix him and maintain him for you to be able to manage him, it does drain your metally and phisically out from you.  Please take care and have a break, my friend is computer longer, skype my sister and talke to friends, shopping etc. from time to time I take him out if he is willing to go, please don't force him or her otherwise it will be hard to cope also you have to play role whoever he wants to speak to (I rang my daugther or son to be that person) then he calms down and happy on that day.
I hope you find the solution to cope with him. Take care
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212161_tn?1410016711
hi, sorry your going threw this. my mother passed this year from this and , she had other things she did, nothing like your Husband

is he repeating him self over and over . asking the same question, telling you the same story ?  this is a early warning sign something is going on and the start of Alz.

is he doing things and than saying he didnt, not remembering he did them?

He is having severe headaches, hand tremors. balance problems, nasea,  Mom didnt have these either . so not sure he has Alz, he needs to be checked out good and see whats going on with him.  these might be things my mom just didnt have .

she did get the off Balance in the last stages and her hand tremors but not till close to the end.

hang in there , you need try get rest and eat good so you can stay up in health . plz keep us up-dated
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212161_tn?1410016711
another thing Does it run in his family, and has he had a fall in life that could of caused this, or a stroke etc.
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