Will be thinking about you.
Have consult at university florida in few days. Thanks for answering me and it looks like I'll definitely need some luck. thanks again
I would get a consultation with an expert aortic surgeon. This isn't something that comes up every day. You've posted on the peer support forum, and you need an expert medical consultation. Were I in your situation, I would be planning to travel to an aortic center to see a surgeon with demonstrated expertise aortic arch surgery. There are relatively few such surgeons in the US, so you would be looking at traveling to one of a few centers, such as Cleveland Clinic, Mayo Clinic, Texas Heart Institute (in Houston) Debakey Center (also in Houston), Mt. Sinai in NYC, Brigham & Womens in Mass., Northwestern in Chicago Ill., or a place of that ilk. I have left some places out, but my point is, there are only a relatively few places and a relatively few surgeons who do this type of surgery routinely, and even for them, it is not "routine." The experience of the surgeon makes a huge difference in outcome. One of the critical considerations is protecting your brain while the arch is being operated on. Good luck.