Chronic subjective dizziness

[adelle55]

Has anybody ever heard of chronic subjective dizziness. That's when your anxious all the time and experience chronic dizziness. A dizziness like your on a boat, it's a swaying feeling. If you have this or you have had this how did you get rid of it?

[thedizzymachine]

I want to comment that CSD is very real although again not too many people and or doctors are familiar with it. I was told that Mayo's mission is to launch the actual medical code as it is a real condition and it a debilitating diagnosis .They told me they hope to launch the medical condition within the next 6-12 months. I returned from Mayo( two times there in the last three months), and dealing with this awful dizziness, spinning/vertigo/vision/sensory/motion sickness and most of all ANXIETY that is 100 times worse then it ever was before I received CSD along with many other diagnosis such as  Vestibular damage( non related to inner ear like most vestibular damage), Anxiety, Generalized Anxiety, and  depression.  I had to go to Mayo because I have had this for 14 months. I was given a Lyme's disease in Dec of 2013, and was  treated for it in my hometown along with sleep apnea, afib of heart, tremors, off balance, gastro problems and double/foggy vision problems( on and off), and dizziness and basically feeling like I wanted to die. In March of 2014 ( everything still going on 24/7), I started getting cognitive/memory problems. I fought through keeping my job until 7/1/2014( social worker), and finally it got so bad I surrendered( which is something I pretty much would never do). I have never not worked. Never..... I am set up with vestibular therapy along with cognitive behavior therapy. I can NOT TAKE SSRI due to an uncommon neurological malignant syndrome. MAYO thought they could make me a SSRI that would not be harmful however sadly enough when I returned in 10/2014 they denied any SSRI to me due to history of NMS. So with that said, I am hoping Vestibular rehab along with CBT will help me. This is the worst feeling I ever had and I just feel better knowing I am not alone in this thing. Thanks for listening.

[Neil34xxx]

I've been meditating and trying to calm mind. The anxiety and the dizziness feed off of each other, which feeds the autonomic arousal in the brain. It's a brutal cycle. Stop the anxiety and the dizziness symptoms could be drastically reduced. Try to occupy the mind with other things. All of this is easier said than done, but it is doable. According to Dr Staab, people with CSD are usually overactive thinkers, anxious OCD personality types. Our brains are stuck on the anxiety on switch. See what your doc says about upping the SSRI dose. I'm beginning to understand that the mind is a very powerful thing.
https://www.youtube.com/watch?v=v8O0xzD6Ax0

[savedbytheblood]

I have the same thing I was diagnosed with anxiety which makes u tense up and I get dizzy not spinning dizzy but like u have had a couple of drinks fealing so I did start on lexapro 3 days ago, I have had increased anxiety and sweats but I have read so much good about lexapro that I am going to stay on it they say 4 to 8 weeks to feel better

[savedbytheblood]

I have the same thing I was diagnosed with anxiety which makes u tense up and I get dizzy not spinning dizzy but like u have had a couple of drinks fealing so I did start on lexapro 3 days ago, I have had increased anxiety and sweats but I have read so much good about lexapro that I am going to stay on it they say 4 to 8 weeks to feel better

[Classictoo]

I have been on lexapro for a year now. I suppose I have gotten a little better but everyday life is very hard. Not sure if its the lexapro that has helped me or constant pushing myself to do things. Things that I use to like to do I still do, but its hard to do them so its not so enjoyable anymore. My other problem is I'm not just dizzy I'm very, very anxious, insides trembling bad and heart racing or skipping beats. I use to run everyday and that helped the anxiety a lot but it didn't help my knees so I have been walking. If you have family and friend support I believe it helps. I never had that everybody ran the other way and my husband and I separated and I lost my job. Sister lives in another state believes in hard love and if she can't fix you, she doesn't want to listen to you cause it depresses her. Yes, I sometimes get muscle tightness.

[Neil34xxx]

Have you tried SSRI meds? The theory is SSRI drugs can sort of reset the brain, using layman's terms. I'm gonna start SSRI meds. Have you seen improvement since symptoms began? Do you get a sort of muscle tightness when you're in motion? I'd like to hear from someone that's actually been cured of CSD.

[Classictoo]

This isn't something I really want to hear. I went to a vestibular doctor he told me I needed to see a phyc for meds. My phyc doctor and numerous other doctors I have seen they have never heard of CSD. I feel I'm wasting my life away and I could live another 20 years of this hell I'm living in.

[Neil34xxx]

I've had CSD for 3 years. I'll be honest, they don't have an effective cure to treat this at the moment. Your nervous system is basically wired for hyper-vigilance, so the brain never returns back to baseline because the alarm switch can't shut off and re-learn normal baseline function. Your brain has been changed by the initial shock to your vestibular system. Virtually zero research has been done in the field of CSD. Most doctors are unaware it exists. The term chronic subjective dizziness was created in 2007, it's a very newly discovered disorder. They'll usually "attempt" to treat CSD with SSRI drugs and psychotherapy. CSD is not a psychiatric condition. This is a problem with the way a hyper-alert and traumatized brain interprets signals. Probably the worst thing you will ever experience in your life.

[rocksolid321]

Ok, I guess just do a search.

[rocksolid321]

If you go to ************ ******* you can find the info.

[rocksolid321]

I read another forum where people talked about these issues and had their wisdom teeth pulled and some felt better. I don't know if I can post the link here but I will try.

http://www.****************/nausea__dizziness_wisdom_teeth__t174968.html?page=6

[cnote]

Are you on any prescription medications that could be causing this? Only reason i ask is because i had this feeling while being tolerant to Ativan (a benzodiazapine). It was awful but went away once I withdrew.

[sarainadream]

I have been dizzy on and off for the past 6 months. It was everyday for a few months in a row and now it comes and goes. I was treated for inner ear crystals and it didn't help so its likely that was not the cause. I got a new prescription for glasses and it helped my sight but not the dizziness. I really notice it when I close my eyes as I feel as if I am bobbing my head. If throws off my equilibrium when I walk. I am 26/f with no other health problems aside from chronic headaches and my doctor/neurologist cannot figure it out. I am going back to the neuro next week.

[rocksolid321]

I have had this for 3 yrs, I know your pain. I found out I was vitamin D deficient and a forum on this site has a link for people like this. Some people had light headed issues so I would say go get a blood test and check your vitamin D and B12. Most people are deficient on D but if it gets really low it can mess you up. By the way I am still light headed but only taking supplements for 2 months and I hear it can take up to a yr to fell better if that is the cause.

[Classictoo]

Gail; I have gotten some relief but I have chronic anxiety from it, this has been going on for two years now. I have never lived such a horrible life.

[gailrmd]

These are the exact same symptoms my husband currently has. It has been going on for 3 months now. I hope you have gotten relief and can tell me what worked for you.

[adelle55]

I don't have episodes of dizzziness it's constant when walking. I don't have ear pressure, tinnitus, or muffled hearing. I have a constant dizziness(swaying) when walking with chronic anxiety. I have seen more doctors than you can imagine and a lot of money. No doctor and nobody has a solution or has had this experience whether being a patient or personal experience. If it were episodes of dizziness could be a little bit more bearable. This has gone on for 16 months now and has affected my life tremendously, a life I wouldn't wish on anybody, it's cruel and torchure everyday, every hour, every minute, every second. And a very unsupportive husband.

[MYoungAtHeart]

I have had personal experience with Menieres disease.

Meniere's disease is a disorder of the inner ear. It can cause severe dizziness, a roaring sound in your ears called tinnitus, hearing loss that comes and goes and the feeling of ear pressure or pain. It usually affects just one ear. It is a common cause of hearing loss.

Attacks of dizziness may come on suddenly or after a short period of tinnitus or muffled hearing. Some people have single attacks of dizziness once in a while. Others may have many attacks close together over several days. Some people with Meniere's disease have "drop attacks" during which the dizziness is so bad they lose their balance and fall.

Blucrystal is correct that you should be seen by your medical doctor...

Good luck to you

M

[BluCrystal]

Sounds to me like you have something wrong with your inner ear, which is where your balance and sense of up and down are controlled.  I suggest an ear specialist for this.  Blessings - Blu