Dysautonomia thread

[tanns]

I'm assuming that the thread in which RCA was talking about dysautonmia has been removed?  Am I just missing it?  It is too bad because there was a lot of good info in that thread and I didn't print it out soon enough.  I think the best way for us to stay healthy is to stay informed and to go to the doctor armed with the best knowledge out there.   It was a well read thread and full of great information to take to a doctor if it is something that was suspected.

Thanks for the info Ryan!

[heartfluttersflyawayplz]

wow good to see you pop in again , was wondering about you yeaterday, hoping your life is going good and lots better for 2008, pop in now and than let us know how you are . Barbara

[TAZ71]

I was diagnosed with Dysautonomia about three years ago.  I have been on SSRI for many years.  I didn't think this thing was real but I recently got off of Cymbalta and started taking Wellbutrin.  I have been able to tell within days of stopping the SSRI that it was a HUGE mistake.  I have read about Dysautonomia tonight and I think I will call my Dr. in the am and get back on the SSRI.  I have been dx with generalized anxiety disorder but I can honestly say I believe in the dysautonomia dx now.  I have major episodes of syncope now that scare me to death.  I know coming off of an SSRI will do that anyway but I recall having some episodes of it while I was on the SSRI.  I mostly feel these symptoms around the time of my cycle.  Anyone else out there have that same problem?  Would a hysterectomy help or worsen the symptoms?  Does anyone know?  I live in Memphis so if anyone knows of a Dr. here that deals with this beast I would love to know.  Those of you recently dx I hope that things have turned around for you and things are going well.  Mine all started once I had my first child.  Hang in there everyone.  I'm very glad to see that this network is out there.  Thanks so much for any advise.  TAZ

[pfatt]

Hi Dragontu84,

From your profile, it sure sounds to me like you simply have panic disorder - a very common accompaniment to MVP.  Why do you think there is a dysautonomia component to this? If I were you (actually, I am... same symproms, etc), I would prefer a diagnosis of panic disorder because it's easy to treat.  Dysautonomia is not easy to treat at all because it can affect many many parts of the ANS.

I predict you have already had your appointment with your specialist and he has told you that your best course of action is counseling to help cope and to see  psychiatrist (even your family doctor can do this) to prescribe anxiolitics (xanax, klonopin, wellbutrin, paxil, etc).  These meds, along with a competent course of counseling can have you back to normal in a short time.

Please let us know what the doctor said...

[cal7902]

Were you referring to my thread on dysautonomia?  I would be happpy to discuss with you if you'd like.

cal7902

[DragonTU84]

No, check on page 2, on 5/22, and I have a thread called "Adrenal Fatigue."

[cal7902]

I posted the "Interesting Diagnosis" thread on 5/7.  I was diagnosed with Dysautonomia at the beginning of May.  

cal7902

[DragonTU84]

WOOO HOOO!!! My appointment with the Dysautonomia specialist got moved up to MONDAY!! THIS MONDAY, that's right!!! I am SOOO excited!! I finally wanna get properly diagnosed, and it seems like God is showing me the light!!! I am SOOOO happy!!! You have no idea!!

Let's just hope Ryan's intuition was right and I do have Dysautonomia so I can finally get properly treated for it!! WOO HOOO!!! :D I just FINALLY want to get a CORRECT AND RIGHT diagnosis!! Finally.....It is like a relief to my body and soul!! I will be celebrating all weekend up until Monday, that's for sure!!! XD

~Crystal

[DragonTU84]

OOPS, I meant another person, sorry. It was a person called captainhook619, but I realized his thread was still here.

You posted a thread too?? What happened to it??

[DragonTU84]

I do not know what happened to the other guys' thread. I was so anticipating to respond, and I have not had access to the Internet for the past few days except through via my cell phone, and ya know how typing can be on those things. >_< I was shocked and at peace to find somebody else who experienced my pain...but it got deleted I guess, or moved....

You can feel free to view my thread. It is titled "Adrenal Fatigue," and it is where I have finally come to the realization that the cause of all of my problems are caused by Dysautonomia. I am going to see a doc. here in MD, located in Columbia. He sounds really good, and has even written several articles, one in particular on Panic Disorder and its connection with the Autonomic Nervous System/Autonomic Dysfunction, or Dysautonomia. I am still trying to find a copy of the article. I would love to find it. He has also made appearances in some other states about Autonomic Dysfuncion and about the Autonomic Nervous Sys. in particular, I believe.

Dysautonomia is not well accredited, yet many people suffer from it, and it is a shame it is not more well-known and properly diagnosed. People go on for years never fully knowing what they have, and just going with what the doctors told them, whether it be "Panic Disorder," "Anxiety Disorder," "Chronic Fatigue Syndrome," "Syncope" and the other misdiagnoses many sufferers go through...

[tanns]

Duh!!  Okay, I swear I searched for that thing this afternoon and couldn't find it.  I must be losing it now!!!

Thanks!!

[Raine9]

Hey tanns,

Actually if you look on the next page, on 5/22 "Adrenal Fatigue??" posted by Dragan TU84, there's a lot of info.

And on 5/07 "interesting diagnosis" posted by cal7902.

Hope that helps.

BTW: I just sent your email.  

Take care