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EXTREME OCD my 6 year old don't know where to turn next PLEASE HELP ME!

I am at a loss and very distraught right now! After 1 and a half years of researching, natural pathic doctors, natural pathic pills, torque release from the Chiropractor, meditation, light therapy, yoga, home schooling, MD's, psychiatrists, nations best cognitive behavioral therapist, psychologists, baptism, praying, you name it-I have done it for my little girl including an all natural diet!!!! NOTHING IS WORKING SHE IS GETTING WORSE AND WORSE. SHE IS NOW 6 years old, her hands are always cracked and bleeding (even vaseline burns her hands, she will not walk in a room, got to the bathroom, EAT (losing lots and lots of weight and very skinny), touch anything, etc. I could go on and on. I am desperate here and very worried. She is just now coming off of Zolof as her pupils dialated fully & this and the Prozac made her extremely hyper, crying, writing on walls (normally would not touch a marker or crayon), EVERYTHING HAS GERMS TO HER. The psychiatrist says she will not prescribe her any more antidepressants because of her reaction to the Zoloft and the Prozac. These are the only 2 antidepressants she has tried. She has been diagnosed with EXTREME OCD. This all started her 1st day of Kindergarten (she was then 4 years old). PLEASE HELP I AM VERY VERY WORRIED ABOUT HER. SHE HARDLY EATS AS FOOD HAS GERMS ALSO. ISN'T THERE SOME SORT OF MEDICINE OUT THERE THAT MAY HELP HER. We are losing our home now because I have exhausted every possibility I can think of. The problem is; when we do find a place to move I know this will really throw her for a loop as she HATES CHANGE! IS ANYONE OUT THERE THAT HAS HAD THIS EXPERIENCE WITH A YOUNG CHILD. PLEASE PLEASE RESPOND AND HELP ME!
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Avatar universal
Ignoring the religious views, this thread has some very interesting information.

I don't know if it's OCD as yet, but our 6yr old daughter has just started saying that her brain is thinking of choking her brother, sister, mum, dan, dogs etc etc. She also wants to be on punishment (time out) for things she hasn't even done (saying she pushed someone on purpose when we saw it and know it was an accident).

She is seeing a Psch now and I hope they give us some answers. I hope it's just an attention grabbing issue. In the meantime we will explore giving her more vitamins and minerals.... can't hurt.
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459111 tn?1250038308
I am going through the same thing at present with my 8 year old son,  He has a different form of OCD. He always wants to call people names and say he hates people. If he is unable to say these things out loud he feels something bad is going to happen.This OCD has overtaken my childs life from the moment he awakes to the time he go's to bed. He was such a bright, loving, playful child who has turned into a depressed, sad, angry little boy as he thinks his going mad and he wants it to stop. I am lost, not knowing what to do.
Also I am a nurse and not even my medical knowledge can help him.I am taking my child to a major childrens hospital now to seek help. PLEASE GO TO A MAJOR CHILDRENS HOSPITAL IN YOUR STATE TO SEEK HELP.
regards
Kim
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Avatar universal
hi venora,

i am new to this forum, and just saw your post about your daughter. how is she now? have you been able to find any help?? i truly hope that you and she are both feeling better now, and your daughter is recovering. my prayers go out for both of you. i hope you are well. take care. please tell your daughter i love her. i hope she is better now.
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Avatar universal
i've read a strep infection could first trigger ocd in children.  also a chemical imbalance, or lack of serotonin in the brain could be part of the problem.  and, also vitamin b6 produces serotonin.  might help.  better STOP this soon, or she'll probably end up like me....nervous system collapse, always dizzy, sick and unable to function for more than a few minutes at a time without resting.  she's young, she still has a real good chance.  tough love..end this behavior now, or she will be like me in 40 years........take care.
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Avatar universal
i have had extreme ocd for 40 years.  i have been hospitalized 50 or so times in the last 10 years..i check and am petrified every second of my life. i find luvox, together with ativan and seroquel to help some.  and yes, it is like seizures without shaking because you 're caught up in a thought  and behavior you cant stop...i know.. ocd is worst when afraid or very angry   if not angry or guilty you feel less anxious to perform ritual.  go from room to room and say 'love' and 'good' on all knobs etc. and slow down her mind with meds and lots of love and make her feel secure and she will get better.  she is terrified and trying to control her enviroment.  tell her that by touching things, she is helping herself and her family and making everything cleaner and safer.  try. it might help.  i am there, i know...linda rose   take away that guilt.....
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Avatar universal
I understand your predicament as I was in a similar position at the very same age.

I am now a 39 y/o mother of 3 (youngest 2, then 4, then 7). Let me brief you on my childhood history.. I hope it helps!

My mother suffered from anxiety and depression as a result of her marriage breakdown not long after I was born. This was the 60's, and back then, there was hardly any support for single mothers as women were supposed to be the good, supportive wife NO matter WHAT hubby was like.

As a 4 y/o, I suffered terrible anxiety with death issues and constantly thought my veins were going to literally *pop*. As funny as this sounds, it was very real to me and it had me lieing in bed in a cold sweat, heart palpitations galore, whilst constantly looking at my wrists for *vein popping*. I have absolutely NO idea where this fear came from, however my mother tells me that I only mentioned it once to here, yet I remember it being an ongoing fear that kept me awake most nights. Lesson here, children do not always speak of their fears and tend to bottle it up in fear whilst in bed.

The next phase at 7 y/o was that my heart was going to stop. It was REAL to me! I would lie in bed in a cold sweat yet again, with hand on chest, feeling every beat of my heart and waiting for it to stop! Mum never new about this one, although it was very, very scary for me and created much anxiety and fear on an ongoing basis.... particularly at night. The next phase at 13 was a brain tumour. Now I'm starting to sound like I was a raging hypochondriac... and you know, I probably was! But I was a kid, and had no idea what was happening to me and why. I hardly spoke about it with mum and my step father, although from 8 years of age I suffered from child abuse (non sexual), at the hands from my step father. This fear was ongoing from 4 years of age.

To this day, I suffer chronic anxiety and depression and have only just recently started talking about it. Nobody ever knew! I've since spoken with a Psych, in addition to Counselors and my GP, and they really can't pinpoint the real cause of my early childhood anxiety and fears. I do remember one clinician in hospital however, who described my current status (I was 21 at the time and had been bitten by a spider and was in terrible fear of the outcome), as being that of being in a constant state of fear of death. He said it can occur from an early age as a result of early childhood depression.

To this day, I have no idea what may have caused this depression, but it IS very real and definately worth looking at and delving into.

My thoughts are with you and I pray that your daughter will be well soon. With mother's love and attention, she will most certainly heal and thrive and I wish you the best in your ordeal.

God bless.

Jul3
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Avatar universal
Hello, My five year old son was put on Respirdal for similar issues.  IT has worked wonders.  I would find a new physician if I were you.  also try www.truehope.com for supportive nutritional needs.  There products have done some great things for many people.  Good lUck
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Avatar universal
PS...Try getting the book "The Out of Sync Child"
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Avatar universal
The school system should be helping you and you need to find a better doctor...It sounds like she has a lot different issues including senory integration issues and really should be evaluated by an occupational therapist...I am really sorry for you and her.  I will keep you in my thoughts and prayers....Mary
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Avatar universal
There is an older book called Psycho Nutrition by Carlton Fredericks Ph.D. He says you can be accused of psychosis and given drugs when your real need is a reduction in sugar intake and a rise in the supply of nutrients for which your body and brain are pleading. Some of the Dr's patients symptoms were itching and crawling sensations on skin, digestive disturbances, unprovoked anxieties, allergies, twitching and jerking of muscles, night terrors,etc. Many of the people who supplemented their diets with lots of protein, an ample amount of Brewer's Yeast, B12, and glycine produced a dramatic improvement in less than 2 mo. , a total recovery in3 months. alergies could also cause psychic symptoms. This is also the diet for hypoglycemia , which is a symptom, rather than a disease but it makes normal people behave as if they were severely psychotic and have hypochondria. This book is very interesting to read. No sugar in any type of food should be eaten. An orthomolecular psychiatrist would be helpful.  
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Go to the Hallejulah website www.hacres.com. You can click on the testimonials to find our if anyone else has been helped by their diet. It seems that all of the people who begin this type of diet overcome all of their health problems. You could also call them. They have a toll free number and are very helpful. More drugs only mask the problem. You must find our what is causing this.
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After reading your letter over again, I think I would feed her only natural  raw organic foods, several heaping tablespoons of brewers yeast in juice several times a day which would help to calm her nerves plus a sublingal B-12. Try this for at least a month. Forget the Olive Leaf  Extract. Sprinkle some Natural Calm magnesium powder in with the drink plus calcium.
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Avatar universal
please read up on olive leaf extract. It sounds like this would work for her.
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Avatar universal
To kyleain, had you actually had OCD as severe as you say, you would know there is no common sense in the disease.  You don't have to be taught something to fear it with this disease.

Verona, I truly empathize with you (having dealt with it myself).  I am starting to see anxiety in my 8 year old which has me terrified.  I, myself am in no means cured, however I have come to a manageable place with it.  

Take this for what it's worth as we all know different things work for different people.  I started with the germ thing in my teens.  For me, that ran me into my twenties when I really started to try and confront it.  What I found was that it was stemming from my fear of death.  Once I confronted that and dealt with it, my germ paranoia started to dissipate. But here's the catch - the anxiety (being the demon that it is) will try to manifest it some other way with some other concern.  The trick here is to recognize that feeling and squash in its beginning stages before it snowballs.  But how to teach that to a 6 year old.  The only thing I can say for sure is, when she does make strides, don't ever let her let her guard down.  I have come to accept this is a lifelong curse, but with the proper precautions it is manageable.  I wish you all the best.

There is a good book which I once read that might be worth reading for you.  "The boy who couldn't stop washing."  Not sure of the author, but I will look it up if you need it.
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Avatar universal
sorry Venrona wasnt meant for you
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Thank you so much for the reply! We even had her baptized and have 2 different churches praying for her along with us of course. I will keep trying to contact psychiatrists. All the doctors keep telling me that they will not know what to do with her at the hospital. There were many evenings that I wanted to take her there because I was at such a loss. All I do is rock and rock her and tell her it will be ok and that we will fix this. She says that doesn't help and it doesn't; but it is the only thing I have left.

Sincerely
Kelly
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212753 tn?1275073111
Oh honey I dont know how there is anything left for you do to.Have you checcked into the hospital?I know that sounds drastic but she does need meds probably and she needs therapy desperatly.
Can you pinpoint anything that might have started her with this germ thing.(and I do understand about the germs becasue I have been there with the germ thing and I still relapse now and then)
Now there are other antidepressants but I would maybe go for the depakote as they say ocd is like having seisures and that is why the depakote works best for this ocd. you and your daughter are in my prayers Keep me posted on her progresss.Prayer can work miracles.
Love Venora
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