I am writing because I don't have much support right now. I've been on opiate meds for 9 years for Trigeminal Neuralgia. I had brain surgery (twice) and both failed me leaving me with a diagnosis of Anesthesia Dolorosia. Not fun. In Feb. I decided to detox to see if I would be better...It was hard to find any opiate based drugs that really worked, however, I found Xanax 1 mg 5x/day has helped with the pain. When I was in rehab they gave me Klonopin and I had no pain for the first three days: Then, the pain in my face came back with a vengenance. I was sure this time it was a dental problem but it was hard to tell betwen the A-typical facial pain and dental pain. It was a bad tooth so unfortunately I was not successful in a complete detox tho we did get me to a lower level of pain meds. Now I am ready to try again. I want to see if Xanax will help me cope with this disease. Today I am doing very well since my psychiatrist changed my RX from 3/day to 5/day. Of course, this won't work for long term. Do I need to ask my dr. to put me on the Klonopin? I'd love some feedback. I also appreciate the support.
I forgot to mention that I also have severe resless leg syndrome. I don't think it is right to ask me to take anxiety med for restless leg; but then I guess I can't add another med into the mix. Dr. did RX Neurontin. Does Neurontin help with Restless Leg?
There is a laser treatment center is South Carolina - that helps patients with TN. I have a-typical facial pain after sinus surgery and have lived in severe pain for several months after my surgery. I would call them and see if there is an option for you to try laser therapy.
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