Aa
Still worried about MS-Brain MRI tomorrow
Well, been seeing a neuro now for about 6 months, I had a my first brain MRI last spring, after 5 years of these awful "weird" feelings. A c-spine in August last year. My neuro asked me the other day as soon as she came in the room, if I was still taking my Prozac, I said no. The side effects drove me batty. She gave me a script for Pamelor. She said well, from your testing, you don't have RA, Lyme, Lupus, Multiple Myeloma, your sed rate is fine, no MS. Well, then what do you think it is? She responded, a post-viral thing. Holy cow, its been 6 years I told her. These things can last a long time. I asked if I could repeat the brain MRI because its been a year, she said yes. So, tomorrow is the day. I hope and pray that everything is still normal up there. She really confuses me, one time she says it may not show yet, then she says somethings going on, then the next breath, its not MS. I can't stand it anymore, I'm ready to scream. I do not believe that anxiety can cause all these weird sensations, I have them everyday, bug crawling sensations, razor burn feelings on skin, cold water sensations on arms and legs, come on, I'm not having an anxiety attack either when this happens, its not ANXIETY. There is something going on, I'm so frustrated.
did you celebrate? do you feel better knowing that your MRI is clear? Hopefully now some of your symptoms will lessen. and yes, it is nice to talk to someone who knows how I feel, because it can be pretty lonely. The numb feeling in my big toes is very concerning for me - do you think that if it were something serious it would go away during the day? I can't get to see my doctor until the 18th. talk soon,
Thanks for the support. This would make this brain MRI number 2, 1 c-spine, and a ton of bloodwork, everything is normal. Thanks so much for your concern. Talk again, Jen
Hi there, yes, I get burning pains, but it feels more like razor burn, like if you shave your legs with a razor and no water, OUCH!!! They only last for a few seconds , and they are gone. The toe thing, I had this just recently also, but I had just got new tennis shoes, and they were a little to tight, once I broke them in, it went away. Please keep in touch!!! I wouldn't wish this on my worst enemy, but this may sound rude, please don't take it to heart, but its nice to know that I am not the only one with this crazy ****!!!
i am so relieved that your MRI came back normal - reading through your posts one can sense your true fear - but this should put the fear of the worst to bed. You should celebrate!!!!! Now, I wonder how anxiety can cause all this strange stuff, too, as I have never been an anxious person. I went from totally healthy, happy and secure, to this worrisome, depressed, and obsessed person who I didn't know, and didn't like. I felt bad for my kids. I want another MRI, but I am afraid to go. do you know what I am getting these days? At night I am getting wierd sensations in my two big toes, not numbness, because I can feel them, but just strange. When I move them around, it goes away, and I don't feel it during the day. This is freaking me out, as i googled numb toes, and guess what comes up? I am hoping it has something to do with my switch to sandals, but that's a stretch. did you ever have a sense of burning, not so much like the sunburn, but burning in your muscles? I am really happy for you, and it offers promise to someone like me. thanks for sharing.
I was reading your posts. I just wanna say that I am relieved and happy for you that your MRI came back normal. I hate medical tests and think I will need a chest x-ray coming up soon. I am dreading it. Again, congrats on the normal MRI!!
Hi Jenny
It's been a while since all of this started, but I know that it started with some strange zapping feelings in my legs, and then some muscle twitching. I googled it right away, and totally panicked that I had MS. This was around Dec. 22nd, 2004. I saw a Doctor two days later, and he said it was just a virus, and that I should relax and it would go away. I couldn't relax. Soon, I had burning feelings in my arms and legs, tingling and some more electrical zaps. Muscle twitches everywhere! On Dec. 27, i went to emerg, and he said that i had to relax, and that he thought i was fine. did some blood work, and my calcium was low. my family doctor referred me to a neurologist. In the meantime, I went to the states, and paid for an MRI, which was clear. When I took it with me to the neurologist, he said I wasted my money, that I was fine, and no way I had MS. I asked to go for a second opinion, big mistake, and she said, hmm, maybe... and referred me for a second MRI. At her office, she gave me a test that sticks needles in you, and zaps you. I'm not sure what the test is called. That test was good, and the MRI came back clear. She said that I had peripheral neuropathy, or fibromyalgia "whatever that is" she said. But that was hard to take, and I have a hard time getting the "what if..." out of my mind, because my body continues to do very strange things. When you wrote of the cold water feelings you had, I had no idea what they were, and then one night I got them, and I thought of you! Isn't that wierd, I don't even know you! anyway, those are my tests, I'm on cipralex, but still am worried. Keep in touch,
It's been a while since all of this started, but I know that it started with some strange zapping feelings in my legs, and then some muscle twitching. I googled it right away, and totally panicked that I had MS. This was around Dec. 22nd, 2004. I saw a Doctor two days later, and he said it was just a virus, and that I should relax and it would go away. I couldn't relax. Soon, I had burning feelings in my arms and legs, tingling and some more electrical zaps. Muscle twitches everywhere! On Dec. 27, i went to emerg, and he said that i had to relax, and that he thought i was fine. did some blood work, and my calcium was low. my family doctor referred me to a neurologist. In the meantime, I went to the states, and paid for an MRI, which was clear. When I took it with me to the neurologist, he said I wasted my money, that I was fine, and no way I had MS. I asked to go for a second opinion, big mistake, and she said, hmm, maybe... and referred me for a second MRI. At her office, she gave me a test that sticks needles in you, and zaps you. I'm not sure what the test is called. That test was good, and the MRI came back clear. She said that I had peripheral neuropathy, or fibromyalgia "whatever that is" she said. But that was hard to take, and I have a hard time getting the "what if..." out of my mind, because my body continues to do very strange things. When you wrote of the cold water feelings you had, I had no idea what they were, and then one night I got them, and I thought of you! Isn't that wierd, I don't even know you! anyway, those are my tests, I'm on cipralex, but still am worried. Keep in touch,
My MRI came out normal, except that just about every sinus opening in my skull are thickened, meaning I have sinusitis. I never had the EMG, neuro said that it would be different if I had muscle weakness, which I don't, just these other strange feelings. Well, its now been 6 years with this, 2 normal brain MRIs, 1 normal c-spine, 2 negative lyme tests, thyroid, sed rate, lupus, multiple myeloma, hemoglobin, lipid profile, FSH, RA, everything normal. I have read that anxiety can cause these feelings, but its so hard to accept that, that it can truly cause this much havoc on a body. Its awful, totally awful, and I know exactly what feelings you are talking about, but 6 years later I'm still here, maybe physically, but not mentally, LOL. I would not wish this on my worse enemy, and thats the truth. Please keep in touch. Talk again soon!!! Jen
Hi, the MRI went fine, called today to see if doc got my report back from the hospital, he did, but the receptionist said that he would have to call me, well, I waited until 5:30, called and he was already gone for the day. So, tomorrow he is closed, maybe I can get in touch with my neuro tomorrow for the results. Yeah, I have been posting for a while now, its been 6 years of these crazy symptoms, everything negative so far, which I guess is good, but it doesn't answer anything. I hope my current MRI is alright. What are your symptoms? What tests have you had done? How long have you had them? Hope to talk to you soon, Jen
Hi Jenny
I have been following your posts for quite some time now, at least a year, and am always interested in how you are doing, as I think I have very similar symptoms as you. This is my first post anywhere. I would like to know how your MRI went. I hope it went well.
Thanks to all who post on this site and offer reassurance to those of us who seek it out. Your input is invaluable and gets us through really tough times.
I have been following your posts for quite some time now, at least a year, and am always interested in how you are doing, as I think I have very similar symptoms as you. This is my first post anywhere. I would like to know how your MRI went. I hope it went well.
Thanks to all who post on this site and offer reassurance to those of us who seek it out. Your input is invaluable and gets us through really tough times.
My doc confuses me too. I have an ongoing them with my lungs. I saw him earlier in the month about this shortness of breath I've been having. He tells me that what they saw in my lungs last summer is not common for young people and that he's 90% sure there's nothing wrong with my lungs, and tells me I should see another pulmonary spec for a second opinion. Then at the end of the conversation he tells me "BUT I REALLY DON'T THINK THERE'S ANYTHING WRONG WITH YOUR LUNGS. I REALLY DON'T" ARRGHHHH!!!!!!!!!!
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