help pandas

My son has PANDAS. I was very glad and surprised to see it has been addressed so well here. We have been dealing with his symptoms for five years (almost six in Feb. ) I am so frustrated. How do you find  GOOD DR's. who understand and can help you deal with this horrible disease? He is just a little guy at age six and this anxiety is tough for him and me. I don't know how to deal with these repetitive behaviors he gets after illness or being around strep. This fall he has been sick three times and he is now doing toe curling tics and finger cracking tics over and over. It is going on six weeks after they started. He is on several meds too, zoloft for anxiety, abilify for the moods and attention and tics. Omnicef for the strep reaction. How do I know if the meds are working if he is having these bad flair ups? The zoloft is new three weeks Fri. I think the repetitive tics maybe slowing down but he seems more irritable. He is so sensitive and cries so easily. I notice him overreacting to things. He is in OT for the fine, gross, and visual motor delays and sensory issues, What more can I do? How do I find the right Dr? I feel now he is being treated in pieces. Tics and attention and anxiety by the neuro and  antibiotics for the PANDAS by the immunologist who just informed me will no longer be able to write scripts because he is leaving the practice and the new Dr's don't treat PANDAS. My ped knows nothing. I am so scared that I won't be able to get him antibiotics soon. Should I consider IVIG and does it work in these persistant cases?
Another issue is the school. How do you get them to understand the affects of the stress? My son is average so doesn't qualify for SPE but seems to have difficulty with some concepts mainly Math because he has the dysgraphia and visual perception trouble, The school is not very supportive other then giving him OT. They look at me like and I am making this up.