Mate, I'm not so sure this is anxiety either but I am no expert. How many doctors have you consulted? Have you gotten an EEG or any bloodwork? Please do get second and third opinions -- if what you hear doesn't chalk up to your experience, go with your gut.
eventually that should make sense to me doesnt it?! ;)
my problem is how can it be anxiety if I dont feel so anxious...?
In my experience, anxiety and depression can certainly manifest itself in certain ways. They can also cause many physical symptoms which you describe in my opinion. You said you have gone through extensive tests and multiple doctors believe it is anxiety and/or depression. That can be a really hard thing to accept sometimes, but have you ever had anxiety issues in the past? Do you have access to talk to a therapist about this? For me, accepting and confronting it was the first step and talking to someone about it can give you the knowledge and understanding to beat it.