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Biologics
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Biologics

Ok, heres one for anybody out there.  Has anyone tried the Enbrel, had no luck with it and gone on to either the Remicade or Humira and gotten results?     It's a beautiful day here in the NE and the pup is telling me it's time to get out there!  Make it a good day everyone and I will check in later today.

Sue & Casey, ha ha!
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I have had RA for six years.  I was on Embrel for quite some time.  Not much luck with that.  I am on Humira.  I have been for a few years.  The shot is very painful.  I Use the pen.  When the medicine goes into your body it burns like buckshot.  I think it helps control the deformity in my hands.  I did try a few infusions of Orencia  to see if that would help me more but it didn't.  Most of the RA drugs would work better if you can take methatrexate.  Alas, I can't tolerate that drug.  Hope this was helpful.
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Actually is was helpful, thank you very much.  I have been on the Enbrel for 10 weeks now and about 2 weeks ago the pain and stiffness from the AS was markedly improved.  I also have ReA ( Reactive Arthritis ) and my hands, knees and toes do not seem to be any better,  Like you I cannot tolerate methotrexate at all, it made me severely depressed and suicidal.  When I was first dx I was given Ketoprophen which is just a RX anti-inflammatory but it worked wonders for me.  Over the years ( been 4 since DX) I stopped taking the keto.     I just started it again around the 9th shot of Enbrel and bingo relief from the AS.  My doctor wanted me to go on Remicade after only 1 month of the Enbrel.  I do not have time to go for infusions and am in the process of changing doctors because we just don't see eye to eye on things.  If the Humira and Remicade are the same drug then why make me travel and give up 1/2 a day to be infused.   $$$$$ is why!    I used to work at the practice he is at and they just started an infusion clinic, a no brainer...  Money for them, inconvenient  for me.   In your experience how much better are you for being on the drugs?  I guess I am naively thinking that I will be "the old me " at some point.    Sorry to have rambled on so much but I would be very interested in knowing what % of better you think you are since taking the drugs.  Thanks again for sharing your thoughts with me.


Sue
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I have severe psoriatic arthritis (it's like RA, just not quite as deforming) and used Enbrel for four years 3X a week plus one injection of metho. For me it was a miracle drug! I felt like a spring chicken again! I could go up and down stairs, I could squat, I could get in and out of chairs or off the toilet without help.............I felt normal for the first time in years. I stopped taking it last August, almost a year ago, and it's been a nightmare. The arthritis seemed to come back with a real vengence, but I just began to read some things about Enbrel I didn't like. Mainly that the long term side effects weren't really known and I didn't like that. Since August I haven't been using anything and it's really starting to wear on me. I did try the Humara for a few months, but it didn't do anything for me, and the shot hurt like hell..............my bone doc said that about all he could do for me was offer some heavy duty pain relief in the form of narcotics, but I'm NOT going down THAT road. So, I take some Aleve which barely touches the pain and does nothing for the stiffness. Don't know why I bother. I am just learning to live and work with the pain and stiffness, to give up things that I loved to do, like my gardening, but until they can prove to me that Enbrel won't make me blind or crazy or full of lymphoma, then I shall just continue to hobble around, saying "ouch" all the time and deal with it. So, there you have my tale of woe.
Peace
Greenlydia  
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Thanks so much for writing, it is after midnight here and I need some shut eye badly.  I am very interested in talking with you and will check in with you tomorrow evening.   Take care.

Sue
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