I have no idea where to go next.? HELP

I have had 2 surgeries in 2 years for CTS. The last one in 01/2006.I have since gotten worse and still not returned to work. My neck and shoulders, arm and hand all hurt worse now. My middle, ring and pinky finger all go numb at times.I drop things without knowing my hand opens or can feel it do so.If I lay on my side to sleep it hurts, if I sit too long in one position it hurts and if I walk with my arm to my side it hurts.I also have muscle aches in my hip pelvis area.My leg muscles are weak.I can not climb stairs without stopping after a couple.My legs and hips ache while laying down.This has been going on for about 2 years also.My muscles feel like they are burning and my husband said I feel hot to the touch even though I am freezing.My shoulder joints, neck and wrist joints all pop and crack constantly had MRI and it showed bulging disc at C5-6 but surgeon said it was not causing my muscle weakness and has ordered new test from a neurologist.He gave a diagnoses of muscle damage?I had RAI in 2/2006 for Graves disease but my doctor has checked my levels every month and they are under control.I now take replacement thyroid medication. I saw a neurologist on 10-18 and he ordered blood work and Emg/Nvc. I had those done yesterday here is a note on that.First it went bad because he did the two test he wanted an EMG/Nerve Conduction test and said " they are normal". I hit the roof and said "I refuse to accept that, you don't have numbness, hurt and drop things for no reason when you are only 44 years old". After refusing to take that as an answer he agreed to do a test on my ulnar nerve, or what he told me at the time was for it. Turns out this was a F Wave test.It only took 2 minutes and there is a HUGE difference in what my left arm is and what my right arm is suppose to be according to the neurologist. He send the nurse out to tell me that is what he saw after it was finished.He would not give me a diagnoses until he confers with another doctor because "it is workman's comp". I was to call his office back the next day to check and see. All the blood work isn't back yet so I still don't know about my muscle aches and weakness.Well today I called the doctor like I was told and he will NOT give me a diagnoses and the nurse that did the test called and told me the only diagnoses he will give is "pain".I asked her why did he say yesterday I have a HUGE difference but today it is only pain? She didn't have an answer and he is referring me to a Physical Medicine and Rehab doctor. I am so upset and confused . I am NOT faking. I am just at a loss now. This was the 4th doctor. The first one did the 2 surgeries, then I had a MRI that shows some disc problems so I got him to send me to a neurosurgeon.When he heard my history he referred me to the neurologist because he thinks I have multiple things going on and wanted more test run. I also saw a Physical Medicine Doctor before the neurologist that would not touch me until I had further testing. She told me after examine me and touching two areas on my shoulder and under it that it looks to her I had 2 surgeries for no reason because all of my original symptoms are still here plus I am worse. I am so tired of hurting and my not being able to use my hand. Any suggestions will be appreciated.

[Kevin Pho, MD]

Most of the tests that I would suggest have already been done.  The EMG and MRI would determine most causes of the nerve pain.  If surgeries have already been done or considered, you can consider more conservative therapy, such as the referral to the rehabilitation physician and physical therapy.

Rare causes of the pain can include various metabolic causes such as diabetes, B12 deficiency or thyroid problems.

I would consider another neurological opinion to confirm the diagnosis.  Preferably, this should be done at a major academic medical center.

Followup with your personal physician is essential.

This answer is not intended as and does not substitute for medical advice - the information presented is for patient education only. Please see your personal physician for further evaluation of your individual case.

Kevin, M.D.
kevinmd_