P/C office called and my bloodwork showed
plateletPlatelet associated antibodies
Platelet count count was 120. I go to my rheumy every 3 months and he did not mention it last time I saw him in March so I figured it was okay. My p/c said to come back in 1 month for another bloodtest.
My meds are:
PrednisonePrednisone
Prednisone anhydrous 5 mg,
Arava 10 mg,
FolicFolate deficiency
Folic acid
Folic acid - test
Folic acid and birth defect prevention
Folic acid-ferrous fumarate
Folic acid-ferrous sulfate
Folic acid/cyanocobalamin/pyridoxine hydrochloride Acid 1 mg,
ActonelActonel
Actonel with calcium 35 mg, and
EnbrelEnbrel
Enbrel prefilled syringe
Enbrel sureclick 25 mg 2 x a week injections (been on enbrel for 6 months or more).
1)I know enbrel can cause low counts. I do not have symptoms except except night sweats (I'm 58) but do get little spider veins on my face and a flushed face in the am. I do notice after showering that the veins are quite distinct. Not sure if that has to do with the ITP (or what they call low platelet counts).
2) Is 120 dangerous? I am going on vacation for 2 weeks and a little concerned. I know I read that drs will sometime increase the prednisone to raise the platelet count. I will talk to my rheumy on Monday.
3) Why do drs offices call on Friday with results at 5:30 when the drs have left for the weekend? (You don't have to answer that)..lol
4) The nurse said the doctor thought it may be related to my medication..and if so....what would the next step be? Since the enbrel helps my inflammation but may likely lower my platelets. Decrease med..try another..increase prednisone? I know your not my dr and haven't seen me but in general what would he/she do in this case?
Thanks you! Paula
At some point, we all face a health issue. Having someone share their health experiences, fears, afflictions and triumphs can provide you with insight, confidence or hope to tackle yours. If you are interested in having your story told in a more open and interactive forum, I'd love to hear from you.