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Orbital Myositis

by montypie, Apr 24, 2009 03:13AM
I have been told that Orbital Myositis is connected to Arthritis and I have now been put in 150mg of Azathioprine daily plus still taking 30mg of prednisolone daily. is there anyone else who takes these medications???? I'm very concerned about side effects, I have been getting sweating episodes up to 20-30 a day ranging from 2-10 minuets each time, also I can not sleep for more than 2 hours without getting up 2-4 times a night. I have been told so many different things by all the doctors I'm seeing and I'm really confused!! IS THERE ANTONE OUT THERE WHO I CAN TALK TOO !!!. I have tried so many sites in the UK but never seem to be able to connect with anyone!! Maybe there maybe someone in the USA.

Thanks

Montypie
Member Comments (1)

by txsilver, Apr 28, 2009 10:32PM
To: montypie
While I am not on that medication, when I took methotrexate for my RA I use to have to sleep on an ice pack to combat the feverish sweats I had nightly.  I would wake up every few hours to change the packs when they grew hot.  It was a misery.
Have you talked to the docs to see what other medications are available to treat your condition?  Sometimes another drug will not have the same side effects and, with luck, you may find something on which you experience no ill effects at all.  
The best advice I can give you is to go to your doctors, explain how much worse the meds are making your quality of life and ask that something else be tried.  Please let us know what happens and how you are doing.  You are not alone and people here do understand what you are going through.
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