My mother has a chronic lung condition that has been diagnosed as RA. She has damage to the lungs, confirmed on scans and
bronchoscopyBronchoscopy
Bronchoscopy with transbronchial biopsy. She was initially diagnosed as suffering from
idiopathicBell's palsy
Fibrous dysplasia
Guillain-barre syndrome
Hypertrophic cardiomyopathy
Idiopathic aplastic anemia
Juvenile rheumatoid arthritis
Orbital pseudotumor
Pseudotumor cerebri pulmonary
fibrosisCystic fibrosis
Cystic fibrosis - resources
Neonatal cystic fibrosis screening. This diagnosis was excluded because, basically, she has lived too long and the disease did not progress as IPF would be expected to. Biopsy of the lung was deferred because she was told that there would be no definitive treatment regardless of what pathology showed. She is oxygen dependent (3L), has been on long term predinisone and methatrexate therapy. Her joints are relatively unaffected. The methatrexate was recently discontinued and the
prednisonePrednisone
Prednisone anhydrous is slowly being reduced. She has not improved but has gotten slowly worse. Assuming the diagnosis is
correctCorrect (new formula), are there any new therapies which may be available to assist her. While her doctors are caring, I am afraid she is now falling into the "You've lived a good, long life" category (she is 80 years old). Would pulmonary therapy be beneficial -- her blood
pressurePressure ulcer and heart function are wonderful. This woman never smoked a day in her life and she lives as if she is in end stage emphysema. Any suggestions would be greatly appreciated.
Brian
I have RA and have had the diagnosis for about 3 years.
Can she take Enbrel? It might help with relieving the symptoms of inflammation.
I currently take Enbrel and methotrexate as well as Naproxen (the lattrer is for OA).
Also, there is a new med just approved by the FDA which my arthritis group is looking into and it is Retuximab.I believe it has good success wth RA.