i see that a few have posted positive for parvovirus. is this significant in arthritis and /or lupus?
i,too, have a positive test for the parvovirus B19 IgG. i also have oa in rt hip and osteophytosis and ddd of l1,2,3 and possibly lupus
Hi there!!! I found this info from Suite101. My understanding of parvo is it can trigger an autoimmune response and it can cause lupus and arthritis type symptoms and it can become a chronic thing for some people. I would definately ask your Dr's about this, I think parvo is much, much more than a simple virus.
I hope this info helps some, please keep me posted.
"Infection with Human Parvovirus B19 is characterized by a petechial (causing small bruise-like eruptions) rash similar to the skin lesions seen in Sweet’s syndrome or erythema multiforme. This rash occurs in a “glove and stocking” distribution in the pattern of a lace-like or reticular rash covering the trunk; another finding is a characteristic reddening of the cheeks referred to as a “slapped cheek” sign. Other symptoms of infection include a systemic lupus-like syndrome of arthritis, edema, mucosal ulcers of the mouth and/or genital tract, uveitis, fever, joint pain, muscle weakness, and purpura or bruising of the lower extremities.
Human Parvovirus B19, a species of parvovirus that infects humans, is associated with the development of several different autoimmune diseases including dematomyositis, mixed connective tissue diseases, a lupus-like illness, a serologically negative (negative RA factor test) form of arthritis, granuloma annulare, autoimmune thyroid disease, autoimmune schizophrenia, and various forms of vasculitis, including Henoch Schonlein purpura, Kawasaki disease, Wegener’s granulomatosis, and polyarteritis nodosa. The development of autoimmune conditions following Human Parvovirus B19 occurs in people of all ages and occurs more frequently in females. Autoimmune disease development is also known to occur in adults exposed to children with fifth disease."
thanks for that.i have yet another rheumatologist who is it appears uninformed. i really don't want to have to too much to do with them but if i need prescriptions i must unfortunately get it from them. i was an rn as mentioned and i feel the less i have to do with them the better. i would ideally like to be like my grandmother--had all her kids at home and went to about twice in her 92 years to the doc--less the better, at least, for me.
most of the people who have the illnesses ane more informed due to necessity.
i will definitely read more about it. my son had 5 ths disease which is where i contracted it. she was dubious since he was 10 and this young thing said only younger children get it.(my son and friends contracted it) too bad her theory was disproved --ah well....
Wow this is interesting. I had been experiencing Joint Pain for months, and went to my PCP. She said I tested positive for Parvovirus B19, and probably contracted it from my son ( He was sick over the winter is bright red cheeks) She informed me that it was nothing to worry about, and the pain would subside after a few more weeks to months. She said it would go away on it's own. She did not inform me that it could lead to a autoimmune disease..... And she knows I have a family history of auto-immune.
She did however, mention that if my Joint Pain persists for more than another month, to call her and she would refer me to a Rhuemetologist. I was busy at work when she called .. so I didnt ask too many questions.. but if my symptoms would just " go away on their own" why would I need a Rhuemetologist? I guess that may be why... and she just didnt want to tell me, and stress me out.
I also have a B12 dificiency and need to go back in a couple weeks for a shot. I will ask her what is up when I go. Thanks for this post, I had no idea one could lead to the other !
I was diagnosed with Chronic Parvovirus I was diagnosed back in February of 2010 and today I still have alot of pain and problems from it even though the levels have dropped to normal in my blood work. It has taken its toll on me, I was a 30 yr old very active women who would always be hiking or biking anything active! The day i got this virus I could barely walk, It took me a few months to be able to even walk right, I felt like i was dying, I couldn't use my hands or wrists properly, i had horrible bone, muscle, and joint pain... I haven't done anything active since i was diagnosed with this virus. I have lost 25 pounds i believe from the ultram, which i had stopped..I had 8 injections in my wrists for the pain but that has now worn off and I am not really wanting to do it again it was painful... Pain was IN EVERY joint in the beggining but has now been just in the wrists, ankles and some days knees for the past 2 months. I had to leave my job as a CNA in a nursing home and switch to Home care because i couldn't do my job with the debilitating pain i was having.. it really ruined my life and is still ruining it. I hope its out of my system soon because it is getting to the point of ruining time i have with my husband and kids since i can't do to much physically.
This is the second time I have heard of this human parvovirus. I find it very interesting. I was diagnosed by biopsy with the Sweet's Syndrome five years ago. My health has gone down hill since. I have Fibromyalgia, Osteoarthritis (neck), which causes me alot of joint and muscle pain. I was very healthy before this hit me. The only explaination Doc's could come up with was an upper respitory infection the week before had triggered it. Now it's in remmission. I have other medical problems too....its like the battle never ends.
I've had painful joints and other symptoms of Parvovirus B19 for almost a year and a half now. I was 23 when I started experiencing these symptoms. I have seen numerous doctors with no avail. I have found that Rheumatologist don't understand the virus. Although I tested positive for Parvo b19, I was told the most I could suffer from a virus is a few months. They put me on rheumatoid arthritis medications as a best guess, but I stopped using them. I was amazed to see what little is known about this virus. In my research I have found that treatments include blood transfusions, IVIG, and I recently read an article about a "vaccine" with VP1 and VP2 capsid proteins and MF59C. I'm researching this more now. IVIG seems to be the most successful but is expensive and can be an intense experience.
Good luck fellow suffers. I hope we find a solution to this problem, so we can reclaim our lives. You're not alone. Stay hopeful
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