I am a 31 year old female. In November of 2002, I had a strange red/purple dry spot appear on two of my knuckles of my hand. The red knuckles felt and looked irritated. However, the rash went away, only to come back more and more frequently affecting different knuckes, and even the joints of two of my fingers. Then, about one year ago, I developed urinary urgency with quite a bit of bladder pain. After many sleepless nights from the urinary urgency and painful bladder, the purple spots seemed to appear more and more frequently. When they would appear I would notice a sharp pain in those joints. The urinary issues were finally diagnosed as interstitial cystitis. With the flares I have of interstitial cystitis and the sleepless nights, the purple spots recently seem to be accompanied by an odd sensation that I cannot move my left leg from the calf down and my left hand. Sometimes, it feels as though my left foot and hand are asleep, but more often than not the sensation is that I will not be able to move my left foot, although I can. Frankly, this sensation scares me. It comes and goes, just as the purple spots on my hands do. Most recently, a purple spot has appeared on my left hand where the thumb bone meets the rest of the bones with a few tiny purple splotches above it. I have begun to wonder whether the Interstitial Cystitis is actually something else related to the rest of my symptoms, or it may just set the other symptoms in motion due to the lack of sleep. I am unsure whether to seek a rheumatologist's opinion or a neurologist's opinion. My GP has said the rash looked like dermatomyositis. Although, I only have the immobile sensation on my left side. When I went to the rheumatologist the purple spots had disappeared, so he did not mention dermatomyositis. He said I tested positive for ACL (anti phospholipid); however, a repeat blood test was negative. What does this sound like to you? What specialist should I see? What tests should be run?
A rheumatology referral can be considered if dermatomyositis is considered. This is a disease characterized by a rash as well as muscle weakness. Typically a biopsy is considered to rule out other causes.
Myositis-specifc antibodies, such as the anti-Jo-1 antibody can be helpful in the diagnosis. A test for ANA and rheumatoid factor can be considered to evaluate for lupus and rheumatoid arthritis respectively.
I would consider a second rheumatological opinion as well as a dermatology referral to evaluate the rash. A biopsy can be considered for a more definitive diagnosis.
Followup with your personal physician is essential.
This answer is not intended as and does not substitute for medical advice - the information presented is for patient education only. Please see your personal physician for further evaluation of your individual case.
Copyright 1994-2017MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.