I have a 23 year old daughter who has been suffering from chronic ear & sinus infections all her life. We are beyond frustration. She has a moderate-severe bilateral hearing loss & Hashimotos Thyroiditis. She has been through allergy testing, allergy shots, nasal wash, nasal sprays & Homeopathic remedies, we keep a scent free home etc. She's been on so many antibiotics your head would spin & she's sick again. She has seen a ENT, who gave her yet another nasal spray. She informed him that she had lost more of her hearing, but he said "that was normal". Her general doctor is very concerned. This latest episode has gone on for 4 weeks & she can feel the fluid in her ears & she can barely hear. We worry that she will lose more of her hearing if this doesn't stop, but with the way things are going maybe she'll become deaf before anyone can figure out how to help her! She's a fulltime college student (that's the only way we can keep her on our insurance & financially we're broke paying for all of the useless office visits) . Please we're asking for any type of help, anything to stop this. Where can she go? What else can we do???? HELP PLEASE...we're desperate
What you describe is, indeed, a desperate situation for you and your daughter; the chronicity of her illness and her progressive hearing loss (never “normal”) that have made it most difficult to lead a normal life. I can only imagine how difficult it must be for her to engage in college studies.
Ear, nose and throat infections are common medical problems in persons afflicted with what are called immunodeficiency states, of which there are many different types. Persistent and recurrent ENT infections should be suspected as originating from a possible underlying immunodeficiency. Some of these conditions are relatively common, others rare.
Your description of your daughter’s illness and care suggests that her doctors have done their best; yet she remains ill. I can appreciate your added concerns about family finances and sense reluctance to incur further medical expenses, but that is exactly what I recommend. That you work with her “very concerned general doctor”, to seek consultation at a major, medical-school associated center, staffed by specialists familiar with the unfamiliar, especially in the categories of diseases associated with chronic recurrent infection.
I am sure that her general doctor would concur with this recommendation and assist you in arranging for consultation at the nearest major medical center. I have no information on where you live but would recommend institutions such as the Mayo Clinic, The Cleveland Clinic, the University of California (San Francisco), the University of Pittsburgh (Pennsylvania), John Hopkins (in Baltimore) and my institution, National Jewish Health (in Denver, Colorado).
I recommend that you proceed with some urgency, given that your daughter is only 23 years old and will likely have to live with whatever damage (especially to her ears) she experiences at this time in her life.
Your daughter is fortunate to have such a caring parent.
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