Hello. I am a 28 year old male with Olivoponto cerebellar atrophy and a dandy walker malfoemation of my cerebellum. Only my gait and legs are noticably affected--and just my coordination. They are currently screening my DNA for SCA 5 and 26. My mother also has OPCA.
I am here to find a treatment. The mantra "there is no cure, only relief of symptoms" is BS. It is BS because progress is being made eyery day.
anyway, I found several peer-reviewed articles that mentioned a deficciency (sp) in dehydrogenase within the brain...
Cerebellar α-Ketoglutarate dehydrogenase activity is reduced in spinocerebellar ataxia type 1
Multiple system degeneration with glutamate dehydrogenase deficiency: pathology and biochemistry.
as I understand, glutamate dehydrogenase is an enzyme... is there a spieces of probiotic (bacteria) that produces it? how about Lactobacillus plantarum ?
it is nice to meet you. This forum has just beeen added recently and not much activity yet. it looks like you have donne research that is over my head today:)
I dx changes through the years since the genetics has not been pos. I have ms and some type of cerebellar ataxia . My cerebellum is atrophying also.
I have been offered and tried different treatments(for symptoms) through the years. So far unfortunately none have seemedto help or given relief.
II just wan tot o say hi and hope you are feeling ''well' today
take care, amo
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