Aa
Aa
A
A
A
Close
1143625 tn?1261413317

PLEASE HELP

my son just got the diognosis of autism. i have no idea what autism is nor how to parent an autistic child. how does one differ from autistic behavior and "normal" 3 year old behavior? how does one punish if not knowing what is what? i am still waiting for OT and other therapies to get in touch with me but in the mean time for the last 4 days since i got the dianosis i have been none stop thinking about this and terrified to yell or punish my son in fear that im going to do damage to him mentally?
8 Responses
Sort by: Helpful Oldest Newest
1194672 tn?1267449568
Hi

I hate to interrupt this thread , but my 3.5 yr old son sounds veryy similar to your girls

I would love to get some advice.He has been recently diagnosed with autism spectrum.He is an extremely bright kid with excellent memory.He knew reading ABC 1-20, planets day months colors continents by age 3.He taught him to write uppercase lowercase and 1-10.

But he lacks social cues and unable to focus on activities too long.He is better at 1 on 1 activities,but in a preschool setting where he has to coexist in a group , he just moves out and isolates himself.He cant focus , and wont sit still for too long.He is a happy kid and never has tantrums and he is developing perfectly well physically.He has recently started making friend's in the neighborhood..but does not necessarily know how to play with them , max for 5 mins he may run with them..then he goes into his own world but when he does not meet them for 1-2 days , he misses them and talks about them.He has a huge vocabulary, but his sentence formation is still delayed.In preschool teachers kind of get fed up as he aways wanders away into other classrooms and gets in other kids way.He is very restless  He takes other kids things (BUT does NOT destroy anything).He goes to Early intervention classes 2 days a week.He loves going to school.But teachers find it hard to handle him.

Please advice what can I do help my son be calm and attentive and less restless.I want to be able to teach him how to complete tasks that he begins.

Pls help me out !

Thanks
Helpful - 0
340676 tn?1383321884
MEDICAL PROFESSIONAL
I think the comments from another parent of a child with an autism diagnosis are very valuable here. Your son is still your son. You won't break him but he is unique and discovering his strengths and weaknesses will be a lifelong journey. It sounds like you are on the right track, seeking out professionals in your area. There are people who have vast experience and expertise teaching and working with children similar to your son. The most important thing is to get him early intervention as soon as possible.

There are a vast array of proposed treatments for individuals with autism and they are often quite expensive. Learning to navigate through the research and propaganda and identifying the best treatment for your child is one of the most difficult tasks that you will have. The most important thing for you to do is to test and prove that an intervention works for your son. While I respect the strong opinions that others have on the topic, dietary treatments cannot be considered an empirically supported treatment for individuals diagnosed with autism. In my experience and based on the research in the area and the position of the scientific community, I would strongly recommend that you do not spend your money on them. There is no convincing evidence that any improvements on a diet of that sort are any greater than what would have been observed if the diet had never been implemented. In fact, most high-quality treatment centers refuse to implement them. The most effective and most supported intervention is applied behavior analysis. For that reason, I recommend all parents of individuals diagnosed with autism seek out behavior analytic services. As you get to know more professionals with experience working with individuals with autism, draw from what they know. Ask for help and advice. At the end of the day, it is up to you to prove to yourself that your son is benefiting from the services that he’s getting. This seems like an enormously daunting task but you’ll definitely get there.
Helpful - 0
1144369 tn?1261553357
Hey
I recommend looking into groups where you live.  I found before I met people in the same boat as me I was swallowed up into Autism.  It was hard.  But when I finally found people, moms in particular going through the same thing it took me out of this lonely world I was experiencing.  It can be very hard sometimes and having someone around who you can get out with helps...but I'm always here so you can always chat with me :)  Making friends for Riley will be a tough one and it will hurt at times.  I will kid you not.  That's probably the hardest part for me.  It just breaks my heart.  She so badly wants to play with the kids, and now the kids are older and don't understand some of her quirky behavior.  They can be mean...even at 3 and 4.  Though I know they just don't understand, but it doesn't hurt any less.  I  can just imagine how Adriana feels.
Anyway, diet.  HUGE believer.  When I found out that Ariana may have autism right away I put her on the diet.  It's a glueten and Casein free diet.  Pretty much no wheat or dairy.  It's not an easy diet to do.  It's very hard.  But it can't hurt them it can only make them stronger.  Each child reacts to it differently.  I know of someone who put their son on the diet and within 24 hours he spoke.  Before he couldn't say anything.  My daughter, she became more focused, better eye contact, longer senteces, less hand flapping, more engaged within three weeks. I do a lot of naturopathic things with her.  She's on supplements, cleanses, and different diets.  I'm looking into the body ecology diet.  It's with no starches.  I had Addy on a yeast cleanse and found it remarkable, but since she's been off it I've noticed she's very unfocussed.  So I'm looking into that.  Try to find a DAN doctor around you if you're interested.  It's expensive, but they treat children with autism.  They are all natural approaches.  They find exactly what your child is allergic to, what minerals/vitamins your child lacks, what toxic substances your child has in their body.  Addy has too much mercury, alluminum, arsenic in her body.  So we're cleansing her of that.  I'll let you know how it goes.  We've not done it yet.  It's all very interesting.  I figure it doesn't hurt her.  We're healing her body in order to heal her mind.  You don't need a doctors approval.  Research it if you want before you go out and buy it.  BUt my DAN doctor told us right away to do the gluten free casein free diet, put her on a teaspoon of Cod liver oil, that is to help with speach and brain development, and no more tuna.  Tuna is full of mercury.  The majority of these kids have mercury overload.  So doing that can't hurt Riley.
Babysitter....You need someone who understands Autism and understands your son.  Until you find that I would hold off on going out.  We don't have any family around so we don't go out much.  The only time we do is if I've got her asleep and a close friend comes over.  My monkey has major anxiety issues.  They have seemed to lessen as time goes on.  Visual schedule has helped with that as well as the supplement Taurine.  Everything is so different for her.  What seems perfectly normal for me is completely insane for her.  Like if I switched something in her routine without warning.  That brings on a melt down.  I remember one time I took a different route on our walk and she just broke down.  I had no clue why...at the time.  Or my man will try to pull the wagon with her in it and if I'm around she'd scream because I have to pull the wagon.  My man still has a hard time putting her to bed and doing her d\bed routine.  It upsets her too much.
What do you mean what works with other kids doesn't work for him?  Other kids with autism?  These kids are a mystery and such a puzzle.  Moms are always having to play detective.  It's exhausting.  And once you figure them out it always seems like something new has surfaced and your starting all over again.  That's how I feel anyway.
DON"T take away the things your child loves!!!!!!  That's cruel.  However, limit it when you can.  At first you should be getting into his world and allowing him to trust you before you ask him to take part in yours.  So when he's spinning the tires on his cars or what not go sit in front of him and spin a car.  See if he looks at you.  Try that for awhile.  It might encourage him to want you to be with him to play or to communicate in some form.  Just do what he does and copy what he does.  After some time when you see that he's getting comfortable with you add something.  Like a word, or a new action, or a different car.  Bring a new toy to the table/floor and do something major simple and prompt him to do it with you.  Always when he's done something different and new reward him with things he loves.  Never food though.  You can totally use the things he obssess over to help him learn and try new things.  I'm telling you get the book More than Words.  Fabulous!!!!!  Addy had  not much of a toy selection.  She liked her stuffies and animal figures.  She never wanted to play toys with me.  Now she's getting better and more intersted in other toys.  Though those others are still her fav.  But she has tea parties with me now, is doing puzzles, games.  I just can't get her interested in playing kitchen.  :(  I so badly want to play house again. :)
Well gotta run.  We'll chat soon.  
Have a Merry Christmas!!!!
Helpful - 0
1143625 tn?1261413317
yes i have heard of her and her diet. do u know what it is or the basis of it?i am very interested in it all and please overwhelm me haha i want to know everythign and the more info i have the better i can understand him. my bigh problem is i dont know how his brain works and what works with other kids doesnt work with him. or what he thinks like am i going to be able to get a normal baby sitter for him or does it need to be family becouse of anxiety??? you have been a big help and i am glad i found someone to relate with seeings how our children have pretty well the same  mannerisms. i have also heard that if is a autisitc child is obsessed with some thing that u take it away and try to get them to play with something else because the more they spend in there world its harder to get them out aka cars for my son and thats all he plays with even sleeps on the floor poop guy. have u heard of anything about that or something about that. or should i just let him play with what he is interested in????? your daughter sounds adorable as well and i kinda wish we lived closer so riley could have a friend who understood him and it would be nice to have a momm to go have coffee with
Helpful - 0
1144369 tn?1261553357
From your description I have a pretty good idea of what he's like.  He sounds a lot like my daughter and some of her friends.  I want you to know that he's going to be alright!!!!  It's not going to be easy and it is going to require a lot of work on your behalf.  There's a lot to do in such a small window of time.  They say children with Autism have a window of opportunity where they obsorbe and learn so much info.  It use to be six but data now shows it's 8.  After 8 they are still able to learn just not as much as fast.
14 hours of intervention (therapy) is not bad.  Where I live BC I use to get 20 then we had gov't cuts recently and now I'm down to 10.  I will let you know that research recommends 20-25 hours min. of therapy per week.  So it's usually up to the parents to do it.  Anyway, I wont get too much into that as I don't want to overwhelm you more.  There is a lot of info out there and it can be very overwhelming for a parent to figure out what they should do for their child. Have you heard of Jenny McCarthy?  Her son has autism and she's put out some amazing stuff.  Not all people agree with her, but I think a lot of her stuff is fantastic and I've used a lot of her suggestions with my daughter and have found great results.  So websites to check out Teach2Talk is a good one, and TACA Talk About Curing Autism.  These sites are american, but the info is all the same.  I'll message you more sites.
You talk about him knowing where he is going.  These kids thrive on routine.  Routine is everything in their lives.  I know if I go out of routine with my daughter it completely messes her up especially when it comes to sleep.  Welcome to the world of no sleep.  My daughter is a complete monkey when it comes to sleep.  Like last night she was up until after 1.  She stays in her bed a recites her movies or stories but she's up.  I've had problems with her sleeping from day one.  Sometimes she gets up in the middle of the night and doesn't go back to bed at all.  When she was younger I had to sleep on her floor for six months because she would get so upset.  Don't punish him for it or let him cry it out.  I would wait and talk to your behavioral consultant and they can give you some program to help you get him to settle and sleep on his own.
Most of the time tantrums are because he can't communicate to you what he's feeling, needing or wanting.  The next thing beside routine that is crucial for these guys are visual schedules.  I'm sure your consultant will tell you more about this.  But once you have him on one of these then you guys will have more ways to communicate and he will start understanding more of whats going on around him.  When I got Addy working with a visual schedule (which is just pics of what is going to happen in order ex lunch, story, nap, or pics of choices he can choose from ex: juice or water) it totally helped with tantrums.  Whenever she has a tantrum that I know it's because she's not understanding what's going on I pull out our visuals.  But that should be a big part of his life. HUGE!!!
You say he has 20 words.  That's good that he has words.:)  A good book to read is More than Words.  It will help you find out where he is at and how you can help him.  It's an easy read and very informative.
Do something about that door of yours!!!!  I have friends that their kids escape during the night.  These kids have no concept of safety.  You have to teach them EVERYTHING!  For his safety I recommend getting baby locks for the door or something.  I have one on my door too.
I have so much to tell you and don't want to overwhelm you with info.  But always feel free to talk to me about this.  It's a life long journey with many challanges on the way but great surprises too.  Your little man is going to teach you so much about life.  I really think these guys see things at their purest.  There are many advantages to having autism I think.  We just need to help these little guys cope with the world so that they can have the chance to live an enriched life and show everyone what they're made of.
Your reaction to your mom is so typical.  Everyone has a story like that to tell.  I knew my daughter had autism but I was in denial.  If my man were to say anything was wrong I'd pounce on him but secretly I would go to my mom and ask her for her opinion. :)
If you're interested there are many therapies out there for your child to try.  ABA is the only evidence based one that works so it's a must have, but if you're interested in knowing any of the others like supplements, cleanses, diets I'd be happy to tell you about them and my experience.  I wont throw that on you now, but I'm here if you want to know.
A little about my monkey...she's four and was diagnosed when she was three.  She knew her planets in order before she was two, her letters, numbers, shapes and colours.  This kid has an amazing memory.  Right now she knows all the countries of North, South and Central America.  This is called a splinter skill.  She had some language but most of her language was echolalia which is repeating things she hears ex: from movies or books.  A year latter she's telling me what she wants, likes, dislikes, and just starting to tell me what she has done.  Her expressive language is higher than her comprehension of language which is hard to remember sometimes.  She didn't play with toys properly.  She loved to line them up or do "physics" experminets.  That's starting to change now.  I have been learning how important play is for all kids and especially for these guys.  Appropriate play is the building blocks of EVERYTHING, socialization, communication, problem solving you name it.  Anyway, she's very quirky.  She has lots of silly little things she does that at times can be uncomfortable around people who aren't sure of her, but that's my issue I'm trying to cope with.  She is such a picky little eater which is very common with children on the spectrum.  She's very hard to play with because she's so rigid.  She has sensory issues too.  A lot of this stuff is helping her to overcome.  Like she's in gymnastics and this week was the first time she went on the high balance beam.  She would scream bloody murder before.  But that day she must have been feeling pretty confident.  It's all baby steps with these guys I'm learning.  Her great accomplishment right now is understanding how the computer mouse works.  Now she's plaing sesame street games. :)
When I got the diagnoses I felt all my motherly intuition was thrown away.  I had no idea how to parent her. and I had to mourn the loss of my idea of my daughter and who she was.  The best advice I can give is to get as much info about autism in your head.  Don't worry about disciplin quite yet.  First try and understand who he is.  Autism is a big part of who  he is and in order to help him you need to understand that part of him.  But from what you said he sounds lovely.
All the best.  Keep in touch!
Helpful - 0
1143625 tn?1261413317
plus i for got he is very repetitive like in speech they brought a cart with wheels in withh toys in it well they put the toys on the table and for an hour he put the toys back on the cart and wheeled it into the room it came from shut the door and came back into the room we were in sat down and got back up opened the door got the cart and put all the toys back on the table just to turn around and put them back on the cart and do the same thing finally the speech therapist said were not geting anything done u might as well go home.
Helpful - 0
1143625 tn?1261413317
ok i wanna say thank u so much first and second i live in saint john new brunswick canada, they didnt tell me how for on the spectrum he is at but i will say from just me maybe i just dont see it all the time but i think he is pretty high functioning. my mother is the one who told me to have him checked. i am a first time single mother and i thought he was "normal", i woud yell at my mother tell her she only had girls and boys are different and he will catch on or catch up before school.
now that we have the diagonsis i see where they came up with that , i have done some research on it and he is very visually smart like on a high way he knows what exit to get off to go to fredericton where my mom lives or the second exit to go to my dads or if u keep going straight were going to the camp and he says bike. he knows where all the coffee shops are in town because he knows hes gonna get a doughnut and he thinks he is going to daycare every day of the week. he is very high strung all the time it is very hard to get him to bed at night i have to lay down with him in my bed he wont sleep in his now i used to just let him cry it out but since i got the diagnosis of autism i have a hard time letting him cry at all. he loves cars trucks and busses he hates to be on a bus he is sooo scared. but that is all he will play with and he lines them up and i cant take one out of the line or play with him
. when he was on a routine i had all his toys in his room and he would het his million trucks and cars and line them up on his bed and sleep on the floor so i had to remove them fromm there and thats when it became my bed to sleep in and i dont know how to get him out, he freaks out over everthing as well.he is totally unsafe to be out side he will run after a moving car if it looks like one of my parents or when he sees my steep fathers truck in his work parking lot ( which is a mall) he will dart for it with no care of getting hit. he has tried to get into strangers cars to pla with the steering wheel i have had ppl actually walk me into my apt so he would go into the house with little fuss about not playing in there car. he is not interested in playing at the park or with other children. he doesnt praticapate at daycare however he loves going there, he doesnt talk maybe 20 words or so and has a speech therapist and we have only seen her 4 times and he asks for her all the time when hes not goig to daycare he thinks hes going there he has no consumption that its the weekend and we only go on the weekdays. hes very loving tho which is good but maybe too loving if there is such a thing. he grinds his teeth because he doesnt know how to proccess his love and thats how it comes out he has never picked one fav thing so he tangles his fingers in my hair and when he is sick he will suck my hair,\
    we are waiting for the autism clinic to start with apts we have a needs apt on jan 18th and he will spend a total of 14 hours a week there to get him ready for school in a year and a half. and hopefiully they can tell me how high on the spectrum he actually is. and the autism clinic has parenting classes as well and i will be taking them,
  i just dont know what he understands like the art of munipulation when a child thinks hes won in a battle i dont know if thats what he thinks or hes just happy im with him, and as for the punishing part it was always hard to give him a time out actually it was never dont and stuck, its just what i thought was normal isnt and i dont know whats what i am scared to sleep with out a baby gate at my door in fear he will get out he knows how to unlock the chain lock and theres no bolt but i think he would know that to. life is turned up side down how do u turn it up side right again
Helpful - 0
1144369 tn?1261553357
Hi
I have a four year old daughter with autism.  I know exactly what you are going through. Although you're freaking out right now, and rightfully so, it will get better.  To help you I need to know where you live, what country because it's different everywhere.
First thing...don't yell at him or punish him.  I think the first thing you need to do is to learn about him.  He's still your boy whom you always knew, but there's a completely other level to him you need to learn about.  You need to understand autism.  What kinds of things is he doing that you feel you need to punish him for?  I may be able to help a bit and let you know if this is a characteristic of autism or just typical three year old behavior.  I still have a hard time figuring that one out too and we've had our diagnoses for a year.  I read a lot about Autism and go to as many classes, workshops, or seminars as I can and or afford.  Note though, if it is tantrums don't punish him.  He's doing them for a reason and usually it's because they can't communicate with you or understand what's going on around them.  Our world is very scary to these guys.
You need to remember that he doesn't perceive the world as we do.  Where is he on the spectrum?  He is in a totally different world than you and it's up to you to get into his world and bring him out.  I know that sounds trippy and really scary but I can explain this more if you tell me more about your son.  I have lots of info and suggestions as to where you can learn more if you are interested.  Remember you're not alone and neither is he.  These children are gifts to the world and will teach you so much and will humble you.  Every little achievement my daughter makes I go nuts over.  I was so proud of her when she finally understood the concept of yes at three or learned to play patty cake at three.  You'll appreciate so much more.  All the best :)  I hope I can help you out.
Helpful - 0

You are reading content posted in the Autism & Asperger's Syndrome Forum

Didn't find the answer you were looking for?
Ask a question
Popular Resources
Fearing autism, many parents aren't vaccinating their kids. Can doctors reverse this dangerous trend?
Yummy eats that will keep your child healthy and happy
What to expect in your growing baby
Is the PS3 the new Prozac … or causing ADHD in your kid?
Autism expert Dr. Richard Graff weighs in on the vaccine-autism media scandal.
Could your home be a haven for toxins that can cause ADHD?