ive recentlly been told my 8yr old daughter has trates of asperges but her doctor is unable to give a diagnosis as these trates are not prominent in school (apparentlly) . she is a verybright girl and has recently told me how scared she is of getting in trouble at school and manages to bottle it up throughout the day exploding when she returns home .i feel people either think it must be a parent problem or that we are exaggerating her problems .my husband and i feel totally alone without support . is it common for clildren with asperges to behave in this way? or cld it be possiable there are other issues? all suggestions and advice appreciated
My kid is Aspie all the time - he doesn't turn it on and off (though we wish he could). I would take her for a second opinion - you aren't really describing anything that is particularly Aspergerish - exploding at home (though horrible) is not the defining trait. My middle child is a school devil/house angel because she wants everyone tosee her one way in public. At home, this "sweetest kid" you ever met is dictorial, mean to the cat, bosses around her siblings - and is absolutely apoplectic if we take away the tv or ask her to do her homework.
My son - the neurotic asperger's wreck, is pretty tame at home - but he fits criteria perfectly. Extreme schedule that has to be maintained, obsessive behaviors (reads about 2,000 books a year and has over 400 Bionicles, and is totally literal. The kid could right out a contract and can argue that you are violating it like a Philadelphia lawyer. if the right meal is made, his homework list carefully typed up and deliniated, and the week's outings carefully told to him a few days in advance - he is the calmest of the three. Veer off - like say we are going to see "Horton Hears a Who" without preparing him (and he loves movies) is a nightmare scenario. Inflexibility, even when they enjoy something, is a good sign.
I almost cried when he tried a burrito this week. He ate avagolemeno soup for 5 days in a row.
It helps if you try not to view your child as a "wreck" or direct quoted from above "the neurotic asperger's wreck". I know if my parents viewed me as a "normal" child wrecked by autism or "autism destroying a good child"
I would feel extreme anxiety, not to mention low self esteem and it would manifest itself in many ways... It would help to view autism as a way of life and not as a disease needing to be treated. This may or may not be your view, but if the school teachers are acting this way, then it still hurts. They need a viewpoint change!
If I was thought as “the neurotic asperger's wreck" I'd probably feel like I am being loved at a lesser level than the so called normal child. And let me tell you that’s not a good feeling. It's something to think about.
I'm sorry if I missed the point, but I hope this may help in some way or another. There are good resources written by autistic people to go for. I recommend looking for stuff written by autistic people and from autistic communities to get a better view of autism.
Let's just face it... if you go by thesis papers written by aspiring medical students, you're likely not going to get a good view of the big picture. Same with doctor reports, etc. There's a difference between studying Europe and actually being there, for example.)
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